This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – Get Your Community Prepared,” which was held on September 14th, 2020.
This webinar included a beginners lesson on genetics, an overview of the drug development and clinical trial processes, precision medicine 101, the language of clinical trials and what YOU can do!
Our Caregiver Voice was Lisa Smith, a Dravet mom and advocate.
Our panelists were:
Dr. Anne R. Pariser – Director of the Office of Rare Diseases Research at the National Center for Advancing Translational Sciences, which is housed within the National Institutes of Health (NIH).
Dr. Adam Hartman is a Physician at NINDS/NIH, serving as a Program Director in the Division of Clinical Research. He oversees the Child Neurology clinical research portfolio at NINDS, providing guidance for the development and implementation of clinical research, developing initiatives aimed and reducing neurological disease burden, and promoting and coordinating research in Neurology.
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