There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP and prevent future cases of SUDEP.
Our caregiver speaker is Jill Paradise. She was never told about and then lost her daughter—Quinn—to SUDEP and has since become a fierce advocate for parents being informed about SUDEP
Elizabeth Donner, M.D. is the Director of the Comprehensive Pediatric Epilepsy Program at the Hospital for Sick Children in Toronto & Michael Bahen Chair in Epilepsy Research and Associate Professor in the Faculty of Medicine at the University of Toronto
Tom Stanton is the Executive Director of the Danny Did Foundation and Danny’s uncle
William D. Gaillard, M.D., is Chief of the Divisions of Child Neurology, Epilepsy and Neurophysiology & Director of the Comprehensive Pediatric Epilepsy Program at Children’s National Medical Center and current President of the American Epilepsy Society
This is the recording of the “SUDEP – What Can We Do?” webinar which was recorded on October 28th at 5pm EST.
For more DEE resources, check out our resource center
We recognize that your privacy is important. Our privacy statement outlines the types of personal information we receive and collect when you use this website, as well as some of the steps we take to safeguard information. Please read more here.