{"id":8129,"date":"2026-06-25T15:57:53","date_gmt":"2026-06-25T19:57:53","guid":{"rendered":"https:\/\/deepconnections.net\/?post_type=tribe_events&#038;p=8129"},"modified":"2026-08-17T12:02:27","modified_gmt":"2026-08-17T16:02:27","slug":"a-caregivers-guide-to-seizure-medications","status":"publish","type":"tribe_events","link":"https:\/\/deepconnections.net\/ary\/event\/a-caregivers-guide-to-seizure-medications\/","title":{"rendered":"A Caregiver&#8217;s Guide to Seizure Medications"},"content":{"rendered":"<div  class=\"tribe-block tribe-block__event-website\" >\n\t<a\n\t\thref=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_QGzZQFtdQyee1AHmh7xYoA\"\n\t\ttarget=\"_self\"\n\t\t\t>\n\t\tRegister Here\t<\/a>\n<\/div>\n\n\n<div  class=\"tribe-events-schedule tribe-clearfix\" >\n\t<p class=\"tribe-events-schedule__datetime\">\n\t\t<span class=\"tribe-events-schedule__date tribe-events-schedule__date--start\">\n\t\t\t\u063a\u0634\u062a 27\t\t<\/span>\n\n\t\t\t\t\t<span class=\"tribe-events-schedule__separator tribe-events-schedule__separator--date\">\n\t\t\t\t @ \t\t\t<\/span>\n\t\t\t<span class=\"tribe-events-schedule__time tribe-events-schedule__time--start\">\n\t\t\t\t2:00 \u0645\t\t\t<\/span>\n\t\t\n\t\t\t\t\t\t\t\t\t<span class=\"tribe-events-schedule__separator tribe-events-schedule__separator--time\">\n\t\t\t\t\t &#8211; \t\t\t\t<\/span>\n\t\t\t\n\t\t\t\t\t\t\t<span class=\"tribe-events-schedule__time tribe-events-schedule__time--end\">\n\t\t\t\t\t3:00 \u0645\t\t\t\t<\/span>\n\t\t\t\n\t\t\t\t\t\t<\/p>\n<\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Presented by DEEP in partnership with CDKL5 in Color<\/strong> \u0648 <strong>Rory Belle Foundation<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Seizure medications are one of the most common and important tools used in epilepsy care, yet many families find themselves trying to understand unfamiliar medication names, treatment plans, side effects, and frequent medication changes. Learning how anti-seizure medications work and why they are prescribed can help caregivers feel more confident when making decisions alongside their healthcare team.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Join DEEP and CDKL5 in Color for an educational webinar with&nbsp;<strong>Heather Nichols, Neurology PharmD<\/strong>&nbsp;from Children&#8217;s Hospital Colorado. This session will provide caregivers with a foundational understanding of anti-seizure medications (ASMs), including how they work in the brain, the major medication classes, and the many factors clinicians consider when developing an individualized treatment plan.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In addition to clinical expertise, this webinar will feature lived experience perspectives from caregivers who have firsthand experience navigating seizure medication journeys. Parent panelists will share the realities of trialing medications, balancing seizure control with quality of life, managing side effects, and advocating for their child&#8217;s unique needs.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Designed for caregivers of children living with developmental and epileptic encephalopathies (DEEs) and other complex epilepsies, this beginner-friendly session will help families better understand the role medications play in epilepsy care and prepare them for more informed conversations with their healthcare team.<\/p>\n\n\n\n<h2 id=\"h-you-ll-learn\" class=\"wp-block-heading\">You&#8217;ll Learn<\/h2>\n\n\n\n<ul class=\"wp-block-list\">\n<li>The major classes of anti-seizure medications (ASMs)<\/li>\n\n\n\n<li>How seizure medications work to reduce seizures<\/li>\n\n\n\n<li>Why medication selection differs based on seizure type, epilepsy syndrome, age, and other individual factors<\/li>\n\n\n\n<li>How clinicians approach medication combinations and treatment adjustments<\/li>\n\n\n\n<li>Common side effects, monitoring, and medication safety<\/li>\n\n\n\n<li>Treatment goals beyond seizure reduction, including quality of life<\/li>\n\n\n\n<li>Questions families can ask when discussing medications with their healthcare team<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">Whether your child is starting their first anti-seizure medication or has tried many different therapies over time, this webinar will provide practical, evidence-based information to help you better understand your child&#8217;s treatment journey.<\/p>\n\n\n\n<h2 id=\"h-clinician-speaker\" class=\"wp-block-heading\">Clinician Speaker<\/h2>\n\n\n\n<div class=\"wp-block-group is-nowrap is-layout-flex wp-container-core-group-is-layout-8f761849 wp-block-group-is-layout-flex\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/1.jpg\" alt=\"\" class=\"wp-image-8220\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/1.jpg 400w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/1-300x300.jpg 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/1-150x150.jpg 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/1-12x12.jpg 12w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/1-100x100.jpg 100w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n<\/div>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Heather Nichols, Neurology PharmD<\/strong>, is a pediatric board-certified clinical pharmacy specialist in pediatric neurology at Children&#8217;s Hospital Colorado. She has been in this role for 3 years and has overall practiced pediatric clinical pharmacy, including neurology, with children&#8217;s health systems for 10 years after obtaining her PharmD from the University at Buffalo and completing residency training. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Her particular areas of interest include drug-resistant &amp; explosive-onset epilepsies, DEEs, FIRES\/NORSE, and women&#8217;s health in epilepsy. Her passion is working with families, providing medication education, and applying personalized medicine to optimize therapies for patients in her daily practice.<\/p>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 id=\"h-parent-voices\" class=\"wp-block-heading\">Parent Voices<\/h2>\n\n\n\n<div class=\"wp-block-group is-nowrap is-layout-flex wp-container-core-group-is-layout-8f761849 wp-block-group-is-layout-flex\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/2.jpg\" alt=\"\" class=\"wp-image-8221\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/2.jpg 400w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/2-300x300.jpg 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/2-150x150.jpg 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/2-12x12.jpg 12w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/2-100x100.jpg 100w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n<\/div>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Hailey Adkisson<\/strong> lives in Salem, Oregon, with her husband, Derek, their sons, Wyatt and Nolan, and their daughter, Juniper. She is a full-time communication faculty member at a local community college and a passionate advocate for disability inclusion and accessibility. When she isn&#8217;t teaching or advocating for her daughter, Hailey can usually be found digging in the dirt, attempting to nap, or perfecting her sourdough recipe.<\/p>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-group is-nowrap is-layout-flex wp-container-core-group-is-layout-8f761849 wp-block-group-is-layout-flex\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/3.jpg\" alt=\"\" class=\"wp-image-8222\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/3.jpg 400w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/3-300x300.jpg 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/3-150x150.jpg 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/3-12x12.jpg 12w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/3-100x100.jpg 100w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n<\/div>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Marissa Bishop<\/strong>, is mom to Gregory, a ten-year-old boy who lives with CDKL5 Deficiency Disorder. Diagnosed with epilepsy at 2 months old, Gregory has tried numerous anti-seizure medications with varying success. Despite years under her belt, Marissa still feels like many DEE parents &#8211; that treating seizures feels like a guessing game. She wants to have a better understanding of how anti-seizure medications work and how doctors may make treatment decisions so that she can better advocate for her son. You can learn more about Marissa, Gregory, and life with CDKL5 by tuning in to her podcast, <a href=\"https:\/\/www.cdkl5incolor.com\">CDKL5 in Color<\/a>.<\/p>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-group is-nowrap is-layout-flex wp-container-core-group-is-layout-8f761849 wp-block-group-is-layout-flex\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/4.jpg\" alt=\"\" class=\"wp-image-8224\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/4.jpg 400w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/4-300x300.jpg 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/4-150x150.jpg 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/4-12x12.jpg 12w, https:\/\/deepconnections.net\/wp-content\/uploads\/2026\/06\/4-100x100.jpg 100w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n<\/div>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Rachel Heilmann,<\/strong> is a residency-trained, board certified, Clinical Pharmacy Specialist. She practiced in primary\u00a0care and specialty pharmacy as well as led a team of 15 Clinical\u00a0Pharmacy\u00a0Specialists in a large health care organization for 15 years.\u00a0 Following the death of her daughter Rory Belle, she left health care in 2022 \u00a0to co-found The <a href=\"https:\/\/therorybellefoundation.org\">Rory Belle Foundation<\/a> to raise awareness and research for NARS1 Disorder. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">She went on to complete a qualitative research fellowship in neurodevelopmental rare diseases at COMBINEDBrain, a consortium of patient advocacy organizations working towards clinical trial readiness. She recently\u00a0started a new business rePURPOSEd Pharmacy Practice, where she works with advocacy organizations in deciphering and prioritizing their drug repurposing efforts.<\/p>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<div  class=\"tribe-block tribe-block__event-website\" >\n\t<a\n\t\thref=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_QGzZQFtdQyee1AHmh7xYoA\"\n\t\ttarget=\"_self\"\n\t\t\t>\n\t\tRegister Here\t<\/a>\n<\/div>\n\n\n\t<div  class=\"tribe-block tribe-block__events-link\" >\n\t\t<div class=\"tribe-events tribe-common\">\n\t\t\t<div class=\"tribe-events-c-subscribe-dropdown__container\">\n\t\t\t\t<div class=\"tribe-events-c-subscribe-dropdown\">\n\t\t\t\t\t<div class=\"tribe-common-c-btn-border tribe-events-c-subscribe-dropdown__button\">\n\t\t\t\t\t\t<svg\n\t class=\"tribe-common-c-svgicon tribe-common-c-svgicon--cal-export tribe-events-c-subscribe-dropdown__export-icon\" \taria-hidden=\"true\"\n\tviewbox=\"0 0 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tribe-events-c-subscribe-dropdown__list-item--gcal\">\n\t\t\t\t\t\t\t\t\t<a\n\t\t\t\t\t\t\t\t\t\thref=\"https:\/\/www.google.com\/calendar\/event?action=TEMPLATE&#038;dates=20260827T140000\/20260827T150000&#038;text=A%20Caregiver%26%238217%3Bs%20Guide%20to%20Seizure%20Medications&#038;details=%3Cp%3E%3Cstrong%3EPresented+by+DEEP+in+partnership+with+CDKL5+in+Color%3C%2Fstrong%3E+and+%3Cstrong%3ERory+Belle+Foundation%3C%2Fstrong%3E%3C%2Fp%3E+%3Cp%3ESeizure+medications+are+one+of+the+most+common+and+important+tools+used+in+epilepsy+care%2C+yet+many+families+find+themselves+trying+to+understand+unfamiliar+medication+names%2C+treatment+plans%2C+side+effects%2C+and+frequent+medication+changes.+Learning+how+anti-seizure+medications+work+and+why+they+are+prescribed+can+help+caregivers+feel+more+confident+when+making+decisions+alongside+their+healthcare+team.%3C%2Fp%3E+%3Cp%3EJoin+DEEP+and+CDKL5+in+Color+for+an+educational+webinar+with%26nbsp%3B%3Cstrong%3EHeather+Nichols%2C+Neurology+PharmD%3C%2Fstrong%3E%26nbsp%3Bfrom+Children%27s+Hospital+Colorado.+This+session+will+provide+caregivers+with+a+foundational+understanding+of+anti-seizure+medications+%28ASMs%29%2C+including+how+they+work+in+the+brain%2C+the+major+medication+classes%2C+and+the+many+factors+clinicians+consider+when+developing+an+individualized+treatment+plan.%3C%2Fp%3E+%3Cp%3EIn+addition+to+%3C%2Fp%3E+%28View+Full+event+Description+Here%3A+https%3A%2F%2Fdeepconnections.net%2Fary%2Fevent%2Fa-caregivers-guide-to-seizure-medications%2F%29&#038;trp=false&#038;ctz=America\/New_York&#038;sprop=website:https:\/\/deepconnections.net\/ary\"\n\t\t\t\t\t\t\t\t\t\tclass=\"tribe-events-c-subscribe-dropdown__list-item-link\"\n\t\t\t\t\t\t\t\t\t\ttarget=\"_blank\"\n\t\t\t\t\t\t\t\t\t\trel=\"noopener 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v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>A Caregiver&#039;s Guide to Seizure Medications - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/ary\/event\/a-caregivers-guide-to-seizure-medications\/\" \/>\n<meta property=\"og:locale\" content=\"ar_AR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A Caregiver&#039;s Guide to Seizure Medications\" \/>\n<meta property=\"og:description\" content=\"Presented by DEEP in partnership with CDKL5 in Color and Rory Belle Foundation Seizure medications are one of the most common and important tools used in epilepsy care, yet many&hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/deepconnections.net\/ary\/event\/a-caregivers-guide-to-seizure-medications\/\" \/>\n<meta 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