{"id":2468,"date":"2020-11-13T15:39:56","date_gmt":"2020-11-13T23:39:56","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2468"},"modified":"2024-09-27T06:40:29","modified_gmt":"2024-09-27T13:40:29","slug":"sudep-old","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/as\/medical-2\/sudep-old\/","title":{"rendered":"SUDEP (old)"},"content":{"rendered":"<h1>\n\t\t\t\tRescue Medication\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Epilepsy-300x200.jpg\" alt=\"Seizures - Epilepsy\" itemprop=\"image\" height=\"200\" width=\"300\" title=\"\u09ae\u0997\u099c\u09c1\u09f0 \u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\" onerror=\"this.style.display='none'\">\n\t<h1>\n\t\t\t\t\u09f1\u09c7\u09ac\u09bf\u09a8\u09be\u09f0\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Webinars.jpg\" alt=\"Webinars\" itemprop=\"image\" title=\"\u09f1\u09c7\u09ac\u09bf\u09a8\u09be\u09f0\" onerror=\"this.style.display='none'\">\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/01\/26\/sudep-part-3\/\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 3 \u2013 Family Perspectives\"><meta itemprop=\"datePublished\" content=\"2021-01-26\"><meta itemprop=\"dateModified\" content=\"2022-06-22\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/1\/\"><meta itemprop=\"name\" content=\"Matt\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/01\/ef-sudep-inst-e1629146805584.png\"><meta itemprop=\"width\" content=\"277\"><meta itemprop=\"height\" content=\"182\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/as\/2021\/01\/26\/sudep-part-3\/\" title=\"\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP) \u09a4\u09c3\u09a4\u09c0\u09af\u09bc \u0996\u09a3\u09cd\u09a1 \u2013 \u09aa\u09f0\u09bf\u09af\u09bc\u09be\u09b2\u09f0 \u09a6\u09c3\u09b7\u09cd\u099f\u09bf\u09ad\u0982\u0997\u09c0\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/01\/ef-sudep-inst-e1629146805584.png\" alt=\"ef sudep inst\" itemprop=\"image\" data-no-lazy=\"1\" height=\"182\" width=\"277\" title=\"ef sudep inst\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP) \u09a4\u09c3\u09a4\u09c0\u09af\u09bc \u0996\u09a3\u09cd\u09a1 \u2013 \u09aa\u09f0\u09bf\u09af\u09bc\u09be\u09b2\u09f0 \u09a6\u09c3\u09b7\u09cd\u099f\u09bf\u09ad\u0982\u0997\u09c0\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2020\/10\/28\/sudep-part-2-what-can-we-do\/\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?\"><meta itemprop=\"datePublished\" content=\"2020-10-28\"><meta itemprop=\"dateModified\" content=\"2022-06-22\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\"><meta itemprop=\"name\" content=\"G C\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Encephalopathies.jpg\"><meta itemprop=\"width\" content=\"640\"><meta itemprop=\"height\" content=\"426\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/as\/2020\/10\/28\/sudep-part-2-what-can-we-do\/\" title=\"\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP) \u09a6\u09cd\u09ac\u09bf\u09a4\u09c0\u09af\u09bc \u0996\u09a3\u09cd\u09a1: \u0986\u09ae\u09bf \u0995\u09bf \u0995\u09f0\u09bf\u09ac \u09aa\u09be\u09f0\u09cb?\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Encephalopathies.jpg\" alt=\"Developmental And Epileptic Encephalopathies\" itemprop=\"image\" data-no-lazy=\"1\" height=\"426\" width=\"640\" title=\"\u098f\u09a8\u0995\u09c7\u09ab\u09c7\u09b2\u09cb\u09aa\u09c7\u09a5\u09c0\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP) \u09a6\u09cd\u09ac\u09bf\u09a4\u09c0\u09af\u09bc \u0996\u09a3\u09cd\u09a1: \u0986\u09ae\u09bf \u0995\u09bf \u0995\u09f0\u09bf\u09ac \u09aa\u09be\u09f0\u09cb?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2020\/10\/15\/sudep-part-1-what-do-we-know\/\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 1: What do we know?\"><meta itemprop=\"datePublished\" content=\"2020-10-15\"><meta itemprop=\"dateModified\" content=\"2022-06-22\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\"><meta itemprop=\"name\" content=\"G C\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/10\/csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8.png\"><meta itemprop=\"width\" content=\"1200\"><meta itemprop=\"height\" content=\"500\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/as\/2020\/10\/15\/sudep-part-1-what-do-we-know\/\" title=\"\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP) \u09aa\u09cd\u09f0\u09a5\u09ae \u0996\u09a3\u09cd\u09a1: \u0986\u09ae\u09bf \u0995\u09bf \u099c\u09be\u09a8\u09cb?\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/10\/csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8-1024x427.png\" alt=\"csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8\" itemprop=\"image\" data-no-lazy=\"1\" height=\"427\" width=\"1024\" title=\"csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP) \u09aa\u09cd\u09f0\u09a5\u09ae \u0996\u09a3\u09cd\u09a1: \u0986\u09ae\u09bf \u0995\u09bf \u099c\u09be\u09a8\u09cb?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t<!-- .pp-content-posts -->\n\t<h1>\n\t\t\t\t\u0989\u09aa\u09b8\u09cd\u09a5\u09be\u09aa\u09a8\u09b8\u09ae\u09c2\u09b9\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Presentations.png\" alt=\"Presentation Materials\" itemprop=\"image\" title=\"\u0989\u09aa\u09b8\u09cd\u09a5\u09be\u09aa\u09a8\u09b8\u09ae\u09c2\u09b9\" onerror=\"this.style.display='none'\">\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/02\/DEE-P-Lhatoo-SUDEP-Update.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/02\/Screen-Shot-2022-02-18-at-11.37.43-AM.png\" alt=\"Lhatoo - Update on SUDEP Research\" itemprop=\"image\" height=\"335\" width=\"548\" title=\"\u09b8\u09cd\u0995\u09cd\u09f0\u09c0\u09a3 \u09b6\u09cd\u09ac\u099f \u09e8\u09e6\u09e8\u09e8-\u09e6\u09e8-\u09e7\u09ee \u09a4\u09be\u09f0\u09bf\u0996\u09c7 \u09aa\u09c1\u09f1\u09be \u09e7\u09e7.\u09e9\u09ed.\u09ea\u09e9 \u09ac\u099c\u09be\u09a4\" onerror=\"this.style.display='none'\">\n\t\t\t\t<\/a>\n\t\tLhatoo &#8211; Update on SUDEP Research\n\t\t\t\t<a href=\"\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DEE-PSUDEPSeriesPart1slides.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/05\/SUDEP-pt-1.jpg\" alt=\"SUDEP pt 1\" itemprop=\"image\" height=\"438\" width=\"779\" title=\"SUDEP pt \u09e7\" onerror=\"this.style.display='none'\">\n\t\t\t\t<\/a>\n\t<h1>\n\t\t\t\t\u09b8\u0981\u099c\u09c1\u09b2\u09bf \u0986\u09f0\u09c1 \u09b8\u09ae\u09cd\u09aa\u09a6\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Tools-2.png\" alt=\"online tools\" itemprop=\"image\" title=\"\u09b8\u0981\u099c\u09c1\u09b2\u09bf\u09b8\u09ae\u09c2\u09b9 2\" onerror=\"this.style.display='none'\">\n\t<p><a href=\"https:\/\/www.childneurologyfoundation.org\/programs\/sudep\/\" target=\"_blank\" rel=\"noopener\">\u099a\u09be\u0987\u09b2\u09cd\u09a1 \u09a8\u09bf\u0989\u09f0\u2019\u09b2\u099c\u09c0 \u09ab\u09be\u0989\u09a3\u09cd\u09a1\u09c7\u09b6\u09cd\u09af\u09a8<\/a><\/p>\n<p><a href=\"https:\/\/www.cureepilepsy.org\/signature_programs\/sudden-unexpected-death-in-epilepsy-sudep\/\" target=\"_blank\" rel=\"noopener\">Cure Epilepsy &#8211; Resources and Facts<\/a><\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/about-us\/our-programs\/about-sudep-institute\" target=\"_blank\" rel=\"noopener\">Epilepsy Foundation&#8217;s SUDEP Institute<\/a> &#8211; to prevent SUDEP and support people bereaved by SUDEP and other epilepsy-related deaths<\/p>\n<p><a href=\"https:\/\/www.dannydid.org\/\" target=\"_blank\" rel=\"noopener\">\u09a1\u09c7\u09a8\u09bf \u09a1\u09bf\u09a1 \u09ab\u09be\u0989\u09a3\u09cd\u09a1\u09c7\u09b6\u09cd\u09af\u09a8<\/a> &#8211; resources on devices, prevention of SUDEP and advocacy<\/p>\n<p><a href=\"http:\/\/knowsudepnow.org\/\" target=\"_blank\" rel=\"noopener\">KNOW SUDEP NOW \u0985\u09ad\u09bf\u09af\u09be\u09a8<\/a><\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/learn\/early-death-and-sudep\/sudep\/sudep-research-efforts\" target=\"_blank\" rel=\"noopener\">\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997 \u09ab\u09be\u0989\u09a3\u09cd\u09a1\u09c7\u099a\u09a8<\/a> &#8211; Information about SUDEP Research<\/p>\n<p><a href=\"http:\/\/sudepregistry.org\/\" target=\"_blank\" rel=\"noopener\">\u0989\u09a4\u09cd\u09a4\u09f0 \u0986\u09ae\u09c7\u09f0\u09bf\u0995\u09be\u09f0 SUDEP \u09f0\u09c7\u099c\u09bf\u09b7\u09cd\u099f\u09cd\u09f0\u09c0 (NASR)<\/a> &#8211; NASR collects DNA, brain, and other tissues for scientific studies about the causes of SUDEP<\/p>\n<p><a href=\"https:\/\/www.pameonline.org\/\" target=\"_blank\" rel=\"noopener\">\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1\u09f0 \u09ac\u09bf\u09f0\u09c1\u09a6\u09cd\u09a7\u09c7 \u0985\u0982\u09b6\u09c0\u09a6\u09be\u09f0 (PAME)<\/a> &#8211; Improving Understanding of and Working to Prevent Epilepsy-related Mortality<\/p>\n<p><a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/02\/Preventing_Epilepsy_Deaths_Informational_Handout.pdf\">\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09f0 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 \u09aa\u09cd\u09f0\u09a4\u09bf\u09f0\u09cb\u09a7\u09f0 \u09b8\u0981\u099c\u09c1\u09b2\u09bf<\/a> &#8211; Child Neurology Foundation<\/p>\n<p><a href=\"https:\/\/www.aesnet.org\/clinical_resources\/sudep\" target=\"_blank\" rel=\"noopener\">SUDEP \u09a4 AES \u09b8\u09ae\u09cd\u09aa\u09a6\u09f0 \u0995\u09c7\u099f\u09c7\u09b2\u0997<\/a><\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/living-epilepsy\/our-programs\/about-sudep-institute\" target=\"_blank\" rel=\"noopener\">\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997 \u09ab\u09be\u0989\u09a3\u09cd\u09a1\u09c7\u09b6\u09cd\u09af\u09a8\u09f0 \u09ad\u09bf\u09a4\u09f0\u09a4 SUDEP \u0987\u09a8\u09b7\u09cd\u099f\u09bf\u099f\u09bf\u0989\u099f<\/a><\/p>\n<p><a href=\"https:\/\/www.youtube.com\/watch?v=fmghr97Ymrc&amp;feature=youtu.be\" target=\"_blank\" rel=\"noopener\">Let&#8217;s Talk About Sudden Infant Death in Epilepsy<\/a> &#8211; Online Discussion From Child Neurology Foundation<\/p>\n\t<h1>\n\t\t\t\t\u09aa\u09cd\u09f0\u09ac\u09a8\u09cd\u09a7\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Articles.png\" alt=\"Articles\" itemprop=\"image\" title=\"\u09aa\u09cd\u09f0\u09ac\u09a8\u09cd\u09a7\" onerror=\"this.style.display='none'\">\n\t<p><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/35093831\/\">Counseling About Sudden Unexpected Death in Epilepsy (SUDEP): A Global Survey of Neurologists&#8217; Opinions; Epilepsy &amp; Behavior Journal<\/a><\/p>\n<p><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/31462384\/\">\u099b\u09c1\u09a1\u09c7\u09aa: \u098f \u0997\u09cd\u09b2\u2019\u09ac\u09c7\u09b2 \u09aa\u09be\u09f0\u09cd\u099a\u09aa\u09c7\u0995\u09cd\u099f\u09bf\u09ad; \u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997 \u0986\u09f0\u09c1 \u0986\u099a\u09f0\u09a3 \u099c\u09be\u09f0\u09cd\u09a8\u09c7\u09b2<\/a><\/p>\n<p><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/34421404\/\">\u09ae\u09c3\u0997\u09c0\u09f0\u09cb\u0997\u09a4 \u09b9\u09a0\u09be\u09ce \u0985\u09aa\u09cd\u09f0\u09a4\u09cd\u09af\u09be\u09b6\u09bf\u09a4 \u09ae\u09c3\u09a4\u09cd\u09af\u09c1 (SUDEP): \u09b6\u09bf\u09b6\u09c1\u09f0 \u09ac\u09bf\u09aa\u09a6\u099c\u09a8\u0995 \u0995\u09be\u09f0\u0995 \u0986\u09f0\u09c1 \u09b8\u09ae\u09cd\u09ad\u09be\u09f1\u09cd\u09af \u09b9\u09b8\u09cd\u09a4\u0995\u09cd\u09b7\u09c7\u09aa\u09f0 \u09aa\u09f0\u09cd\u09af\u09be\u09b2\u09cb\u099a\u09a8\u09be; \u099c\u09be\u09f0\u09cd\u09a8\u09c7\u09b2 \u0985\u09f1 \u09aa\u09c7\u09a1\u09bf\u09af\u09bc\u09be\u099f\u09cd\u09f0\u09bf\u0995 \u09ab\u09be\u09f0\u09cd\u09ae\u09be\u0995\u2019\u09b2\u099c\u09bf \u098f\u09a3\u09cd\u09a1 \u09a5\u09c7\u09f0\u09be\u09aa\u09bf\u0989\u099f\u09bf\u0995\u09cd\u09b8<\/a><\/p>\n<p>\u09af\u09a6\u09bf \u0986\u09aa\u09cb\u09a8\u09be\u09f0 \u0995\u09cb\u09a8\u09cb \u09aa\u09f0\u09be\u09ae\u09f0\u09cd\u09b6 \u09a6\u09bf\u09af\u09bc\u09be \u09b2\u09c7\u0996\u09be \u0986\u099b\u09c7, <a href=\"https:\/\/deepconnections.net\/as\/contact\/\" target=\"_blank\" rel=\"noopener\">\u0986\u09ae\u09be\u09f0 \u09b2\u0997\u09a4 \u09af\u09cb\u0997\u09be\u09af\u09cb\u0997 \u0995\u09f0\u0995<\/a>.<\/p>\n\t<h1>\n\t\t\t\t\u0986\u09ae\u09be\u09f0 \u09aa\u09c3\u09b7\u09cd\u09a0\u09aa\u09cb\u09b7\u0995 \u0986\u09f0\u09c1 \u0985\u09f1\u09a6\u09be\u09a8\u0995\u09be\u09f0\u09c0\u09b8\u0995\u09b2\u0995 \u09a7\u09a8\u09cd\u09af\u09ac\u09be\u09a6\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/neurocrine2.png\" alt=\"Neurocrine Biosciences Logo\" itemprop=\"image\" 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