{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/azb\/dee-p-connections\/","title":{"rendered":"DEE-P Connections"},"content":{"rendered":"

\n\t\t\tBirlikd\u0259, Biz Bunu ed\u0259 bil\u0259rik.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tResurs M\u0259rk\u0259zin\u0259 ba\u015f \u00e7\u0259kin\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

DEE-P \u018flaq\u0259l\u0259ri u\u015faqlar\u0131 inki\u015faf v\u0259\/yaxud epileptik ensefalopatiyalar v\u0259 ya DEE-l\u0259rd\u0259n t\u0259sirl\u0259n\u0259n ail\u0259l\u0259r \u00fc\u00e7\u00fcn getdikc\u0259 tam xidm\u0259t m\u0259nb\u0259yin\u0259 \u00e7evrildi. Bunlar a\u011f\u0131r inki\u015faf gecikm\u0259l\u0259ri v\u0259\/yaxud reqressiya il\u0259 m\u00fc\u015fayi\u0259t olunan epilepsiyalar\u0131 m\u00fcalic\u0259 etm\u0259k \u00e7\u0259tindir. <\/p>\n

Bizim 45+ t\u0259r\u0259fda\u015flar<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

Vebinarlar\u0131m\u0131z v\u0259 getdikc\u0259 b\u00f6y\u00fcy\u00fcr Resurs M\u0259rk\u0259zi<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

Bizi izl\u0259diyiniz\u0259 \u0259min olun Facebook<\/a> v\u0259\/v\u0259 ya Instagram<\/a> t\u0259klif etdiyimiz h\u0259r \u015feyin \u00fcst\u00fcnd\u0259 qalmaq.<\/p>\n

\u018flav\u0259 etm\u0259li oldu\u011fumuz resurslar v\u0259 ya ke\u00e7irm\u0259li oldu\u011fumuz vebinarlar haqq\u0131nda fikirl\u0259riniz varsa, biziml\u0259 \u0259laq\u0259 saxlay\u0131n burada<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tZ\u0259hm\u0259t olmasa Biz\u0259 Qo\u015fulun\n\t\t<\/h2>\n\t\t\t

DEE-l\u0259ri olan u\u015faqlara \u0259n yax\u015f\u0131 h\u0259yatlar\u0131n\u0131 ya\u015fama\u011fa k\u00f6m\u0259k etm\u0259k \u00fc\u00e7\u00fcn ail\u0259l\u0259ri v\u0259 v\u0259killik t\u0259r\u0259fda\u015flar\u0131n\u0131 bir araya g\u0259tirm\u0259k.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tQar\u015f\u0131dan g\u0259l\u0259n Vebinarlar\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0Giri\u015f Vebinar\u0131<\/h2>\n\t\t\t\t