{"id":4526,"date":"2022-06-27T16:01:13","date_gmt":"2022-06-27T23:01:13","guid":{"rendered":"https:\/\/deepconnections.net\/?p=4526"},"modified":"2022-07-07T16:32:30","modified_gmt":"2022-07-07T23:32:30","slug":"why-brain-tissue-donation-matters","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/azb\/2022\/06\/27\/why-brain-tissue-donation-matters\/","title":{"rendered":"Beyin toxumas\u0131n\u0131n donorlu\u011fu niy\u0259 vacibdir?"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Bu, 24 iyun 2022-ci ild\u0259 qeyd\u0259 al\u0131nm\u0131\u015f \u201cBeyin toxumas\u0131n\u0131n donorlu\u011fu niy\u0259 vacibdir\u201d DEE-P vebinar\u0131n\u0131n qeydidir.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Nadir epilepsiya il\u0259 h\u0259r hans\u0131 bir sevil\u0259n birinin itkisi a\u011flas\u0131\u011fmazd\u0131r. Ham\u0131m\u0131z nadir epilepsiya diaqnozu il\u0259 g\u0259l\u0259n \u0259zablara son qoyma\u011fa k\u00f6m\u0259k etm\u0259k \u00fc\u00e7\u00fcn ed\u0259 bil\u0259c\u0259yimiz daha \u00e7ox \u015feyin olmas\u0131n\u0131 ist\u0259rdik. Bu vebinarda biz siz\u0259 ail\u0259l\u0259rin b\u00f6y\u00fck t\u0259sir g\u00f6st\u0259r\u0259 bil\u0259c\u0259yi bir inan\u0131lmaz vacib yoldan - beyin toxumas\u0131 donorlu\u011fundan b\u0259hs etm\u0259k ist\u0259yirik.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Biz bunu ya\u015fayan ail\u0259l\u0259rd\u0259n, bu qiym\u0259tli ian\u0259l\u0259rd\u0259n ir\u0259lil\u0259yi\u015fl\u0259r etm\u0259k \u00fc\u00e7\u00fcn istifad\u0259 ed\u0259n d\u00fcnya \u015f\u00f6hr\u0259tli t\u0259dqiqat\u00e7\u0131dan v\u0259&nbsp;<em>Harvard beyin toxumas\u0131<\/em>&nbsp;B\u00fct\u00fcn bunlar\u0131n nec\u0259 i\u015fl\u0259diyi bar\u0259d\u0259 Resurs M\u0259rk\u0259zi. Bu vebinar Hope4Harper-d\u0259ki t\u0259r\u0259fda\u015flar\u0131m\u0131zla birg\u0259 ke\u00e7irilir.<\/p>\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<figure class=\"wp-block-embed aligncenter is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-4-3 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P - Beyin toxumas\u0131n\u0131n donorlu\u011fu niy\u0259 vacibdir\" width=\"500\" height=\"375\" src=\"https:\/\/www.youtube.com\/embed\/E42FkgIzW9Y?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Qonaqlar\u0131m\u0131z:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/hope4harper.com\/board-members\/\" target=\"_blank\" rel=\"noreferrer noopener\">Penny Howard<\/a><\/strong>&nbsp;\u2013 CDKL5 \u00c7at\u0131\u015fmazl\u0131q Bozuklu\u011fu (CDD) olan v\u0259 ondan sonra g\u0259l\u0259n CDD olanlara nec\u0259 k\u00f6m\u0259k ed\u0259c\u0259yini \u00f6yr\u0259nm\u0259k \u00fc\u00e7\u00fcn beynini c\u0259sar\u0259tl\u0259 ver\u0259n Harperin anas\u0131. Penny h\u0259m d\u0259 CDD v\u0259 dig\u0259r \u0259laq\u0259li x\u0259st\u0259likl\u0259rl\u0259 ya\u015fayanlara \u00fcmid verm\u0259k \u00fc\u00e7\u00fcn \u00e7al\u0131\u015fan qeyri-kommersiya t\u0259\u015fkilat\u0131 olan Hope 4 Harperin t\u0259sis\u00e7isi v\u0259 direktorudur.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Angie Weaver<\/strong>&nbsp;- Angie \u015eimali Minnesotadak\u0131 qeyri-kommersiya t\u0259\u015fkilat\u0131n\u0131n direktoru, ehtirasl\u0131 v\u0259kil v\u0259 Ameliya d\u00f6y\u00fc\u015f\u00e7\u00fc anas\u0131d\u0131r.&nbsp;<a href=\"http:\/\/scn2a.org\/\">SCN2A<\/a>&nbsp;v\u0259 12 ya\u015f\u0131nda v\u0259fat etdi. Angie v\u0259 ail\u0259si Amelian\u0131n orqanlar\u0131n\u0131 v\u0259 toxumalar\u0131n\u0131 ba\u011f\u0131\u015flamaq \u00fc\u00e7\u00fcn c\u0259sar\u0259tli q\u0259rar verdil\u0259r, buna g\u00f6r\u0259 d\u0259 indi d\u0259 Amelia m\u00fcalic\u0259 \u00fc\u00e7\u00fcn m\u00fcbariz\u0259 apar\u0131r.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/www.med.upenn.edu\/jensenlab\/\" target=\"_blank\" rel=\"noreferrer noopener\">Frances Elizabeth Jensen, MD, FACP<\/a><\/strong>&nbsp;- bir \u00e7ox ba\u015fqa \u015feyl\u0259r aras\u0131nda, Pensilvaniya Universitetinin Perelman Tibb M\u0259kt\u0259binin Nevrologiya \u015f\u00f6b\u0259sinin s\u0259dri v\u0259 Penn Medicine Translational Neuroscience Center-in h\u0259m-direktorudur. Doktor Jensen beyni geni\u015f \u015f\u0259kild\u0259 t\u0259dqiq etdi v\u0259 x\u0259st\u0259lik v\u0259 daha yax\u015f\u0131 m\u00fcalic\u0259y\u0259 aparan potensial yollar haqq\u0131nda anlay\u0131\u015f\u0131m\u0131zda ir\u0259lil\u0259yi\u015fl\u0259r etm\u0259k \u00fc\u00e7\u00fcn ba\u011f\u0131\u015flanan beyin toxumas\u0131ndan istifad\u0259 edir.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/brain.harvard.edu\/?people=sabina-berretta\" target=\"_blank\" rel=\"noreferrer noopener\">Sabina Berretta, MD<\/a>.<\/strong>&nbsp;\u2013&nbsp;<em>Harvard Tibb M\u0259kt\u0259binin Psixiatriya kafedras\u0131n\u0131n dosenti<\/em>&nbsp;v\u0259 Harvard Beyin Doku Resurs M\u0259rk\u0259zinin\/NIH NeuroBioBank-\u0131n direktoru, o, t\u0259kc\u0259 NIH beyin donorlu\u011fu m\u0259rk\u0259zini idar\u0259 etmir, h\u0259m d\u0259 uzun ill\u0259r beyni donor toxuma il\u0259 \u00f6yr\u0259nm\u0259y\u0259 s\u0259rf etmi\u015fdir.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Daha \u00e7ox DEE resurslar\u0131 \u00fc\u00e7\u00fcn biziml\u0259 tan\u0131\u015f olun&nbsp;<a href=\"https:\/\/deepconnections.net\/azb\/resource-center-main\/\">resurs m\u0259rk\u0259zi<\/a><\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"962\" height=\"284\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner.png\" alt=\"\" class=\"wp-image-4531\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner.png 962w, https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner-600x177.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner-300x89.png 300w\" sizes=\"(max-width: 962px) 100vw, 962px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>This is the recording of the &#8220;Why Brain Tissue Donation Matters&#8221; DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy&hellip;<\/p>","protected":false},"author":4,"featured_media":3834,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1112,1016,1025],"tags":[1029,1026],"class_list":["post-4526","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-brain-tissue-donation","category-medical","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- 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