{"id":2269,"date":"2020-09-07T08:05:45","date_gmt":"2020-09-07T15:05:45","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2269"},"modified":"2023-05-02T14:25:14","modified_gmt":"2023-05-02T21:25:14","slug":"research-participating-and-supporting","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/","title":{"rendered":"L\u00eakol\u00een &amp; Par\u00eazer\u00ee"},"content":{"rendered":"<h1>\n\t\t\t\tPizi\u015fk\u00ee\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DNA-Color.jpg\" alt=\"DNA Color - Strands\" itemprop=\"image\" title=\"DNA Color\" onerror=\"this.style.display='none'\"  \/>\n\t<p>As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. Recognizing that the only real hope for substantial improvements in the quality\u00a0of life of our children is research. The research category covers a range of topics including quality improvement efforts, clinical trials, national research priorities, and brain and tissue banks.<\/p>\n\t<h1>\n\t\t\t\tLi Navenda \u00c7avkaniy\u00ea bigerin\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\/ckb\/\" method=\"get\" data-trp-original-action=\"https:\/\/deepconnections.net\">\n\t\t\t\t\t\t<input placeholder=\"Peyva L\u00eager\u00een\u00ea ya Ku H\u00fbn Bi Balk\u00ea\u015f in Biniv\u00eesin\" type=\"search\" name=\"s\" title=\"Gerr\" value=\"\"\/>\n\t\t\t\t\t\t\t\t\t<button type=\"submit\">\n\t\t\t\t\tGerr\n\t\t\t\t\t\t\t\t\t\t\t\t<\/button>\n\t\t\t<input type=\"hidden\" name=\"trp-form-language\" value=\"ckb\"\/><\/form>\n\t<h1>\n\t\t\t\tResearch Categories\n\t\t\t<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Tissue.jpg\" alt=\"Brain Tissue Research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/brain-tissue-donation\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tBex\u015f\u00eena T\u00eesa Mej\u00ee\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Clinical-Research.jpg\" alt=\"clinical trial\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/clinical-trials\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tCeribandin\u00ean Kl\u00een\u00eek\u00ee\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" alt=\"CTE 2\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/curing-the-epilepsies\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tCuring The Epilepsies\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Genetic-Markers.jpg\" alt=\"gentic modifiers\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/genetic-modifiers-and-biomarkers\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tGenetic Modifiers, Biomarkers &#8211; Coming Soon\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" alt=\"ruler\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/outcomes\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tProjeya Inchstone\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/Data.jpg\" alt=\"Data\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/managing-your-data\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tBir\u00eavebirina Daney\u00ean xwe\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/research-participating-and-supporting\/participating-in-research\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Read More\">\n\t\t\t\t\t\t\tRead More\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tBe\u015fdar\u00ee L\u00eakol\u00een\u00ea\t\t<\/h3>\n\t<h1>\n\t\t\t\tMost Recent Research Entries\n\t\t\t<\/h1>\n\t\t<p>Sorry, we couldn&#8217;t find any posts. Please try a different search.<\/p>\n\t\t\t\t<form aria-label=\"Gerr\" method=\"get\" role=\"search\" action=\"https:\/\/deepconnections.net\/ckb\/\" title=\"Type and press Enter to search.\" data-trp-original-action=\"https:\/\/deepconnections.net\/\">\n\t<input aria-label=\"Gerr\" type=\"search\" name=\"s\" placeholder=\"Gerr\"  value=\"\" onfocus=\"if (this.value === 'Search') { this.value = ''; }\" onblur=\"if (this.value === '') this.value='Search';\" \/>\n<input type=\"hidden\" name=\"trp-form-language\" value=\"ckb\"\/><\/form>\n\t<h1>\n\t\t\t\tMost Recent Webinars &#038; Videos\n\t\t\t<\/h1>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/21\/outcomes-workshop-1-copy\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\" \/><meta itemprop=\"datePublished\" content=\"2021-11-21\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler2.jpeg\" \/><meta itemprop=\"width\" content=\"1500\" \/><meta itemprop=\"height\" content=\"724\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/2021\/11\/21\/outcomes-workshop-1-copy\/\" title=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler2-1024x494.jpeg\" alt=\"ruler2\" itemprop=\"image\" data-no-lazy=\"1\" height=\"494\" width=\"1024\" title=\"serwer2\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRECORDING &#8211; Inchstone Outcomes Workshop 2\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/05\/outcomes-workshop-1\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 1\" \/><meta itemprop=\"datePublished\" content=\"2021-11-05\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" \/><meta itemprop=\"width\" content=\"750\" \/><meta itemprop=\"height\" content=\"563\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta 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content=\"2022-11-03\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" \/><meta itemprop=\"width\" content=\"640\" \/><meta itemprop=\"height\" content=\"426\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/2021\/11\/02\/how-can-you-curing-the-epilepsies\/\" title=\"H\u00dbN Dikarin \u00e7i bikin ji bo saxkirina ep\u00eelepsiy\u00ea?\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" alt=\"CTE 2\" itemprop=\"image\" data-no-lazy=\"1\" height=\"426\" width=\"640\" title=\"CTE 2\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tH\u00dbN Dikarin \u00e7i bikin ji bo saxkirina ep\u00eelepsiy\u00ea?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/06\/29\/how-effective-is-your-epilepsy-care\/\" content=\"How Effective is Your Epilepsy Care?\" \/><meta itemprop=\"datePublished\" content=\"2021-06-29\" \/><meta itemprop=\"dateModified\" content=\"2021-08-16\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/1\/\" \/><meta itemprop=\"name\" content=\"Matt\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" \/><meta itemprop=\"width\" content=\"640\" \/><meta itemprop=\"height\" content=\"426\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/2021\/06\/29\/how-effective-is-your-epilepsy-care\/\" title=\"How Effective is Your Epilepsy Care?\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\" itemprop=\"image\" data-no-lazy=\"1\" height=\"426\" width=\"640\" title=\"Be\u015fdar\u00ee L\u00eakol\u00een\u00ea\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tHow Effective is Your Epilepsy Care?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t\t\t<ul class='page-numbers'>\n\t<li>1<\/li>\n\t<li><a href=\"https:\/\/deepconnections.net\/ckb\/paged-2\/2\/?page_id=2269&#038;fl_builder\">2<\/a><\/li>\n\t<li><a 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Daxuyaniya nepen\u00eetiy\u00ea ya me celeb\u00ean agahdariya kesane ku em dist\u00eenin \u00fb berhev dikin dema ku h\u00fbn v\u00ea malper\u00ea bikar t\u00eenin, \u00fb her weha hin gav\u00ean ku em ji bo parastina agahdariyan digirin destn\u00ee\u015fan dike. <a href=\"https:\/\/deepconnections.net\/ckb\/privacy-policy\/\" target=\"_blank\" rel=\"noopener\">Ji kerema xwe li vir b\u00eatir bixw\u00eenin.<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. Recognizing that the only real hope for&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-2269","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Research &amp; Advocacy - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/ckb\/ru_ru\/research-participating-and-supporting\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Research &amp; Advocacy\" \/>\n<meta property=\"og:description\" content=\"Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. 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