{"id":4705,"date":"2022-09-29T16:44:41","date_gmt":"2022-09-29T23:44:41","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=4705"},"modified":"2024-01-05T12:02:33","modified_gmt":"2024-01-05T20:02:33","slug":"inchstone-researcher-bios","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ckb\/inchstone-project\/inchstone-researcher-bios\/","title":{"rendered":"Inchstone L\u00eakol\u00eener Bios"},"content":{"rendered":"\"The\n

\n\t\tL\u00eakol\u00eener Bios\n\t<\/h1>\n\t

Anne Berg, PhD<\/strong><\/h3>\n

Dibistana Derman\u00ea ya Northwestern Feinberg, Neuroloj\u00ee<\/strong><\/h3>\n

The focus of Anne’s research for over 30 years has been the “natural” history of pediatric epilepsy with a specific emphasis on seizure outcomes, developmental and cognitive consequences the impact on quality of life, families and the implications for care and care models. In 2007, she played a key role in focusing NINDS research priorities on the cognitive, developmental, and behavioral co-morbidities of epilepsy and organized sessions at the AES meeting to investigate and identify research opportunities for improving patients’ outcomes. In 2013, she Co-Chaired the NINDS-sponsored Curing Epilepsies conference & organized and led the workshop, “Priorities in Pediatric Epilepsy Research: Improving Children’s Futures Today.” Anne was one of the initial founders of the Pediatric Epilepsy Research Consortium (PERC) which has grown to over 40 centers in the US.\u00a0\u00a0<\/p>\n

Ew niha bal\u00ea diki\u015f\u00eene ser p\u00ea\u015fkeftina \u00e7avkan\u00ee \u00fb r\u00eagez\u00ean ji bo h\u00easankirina bilez, berhevkirina agahdariya bilind-nirx di derheq\u00ea j\u00eahat\u00eeb\u00fbn \u00fb k\u00eamasiyan de di nav r\u00eazek mezin a dom\u00ean ku ji ber nexwe\u015fiy\u00ean m\u00eaj\u00ee y\u00ean p\u00ea\u015fkeftin\u00ea \u00fb serp\u00eahatiy\u00ean destp\u00eaka jiyan\u00ea bandor b\u00fbne. Deng\u00ea d\u00ea\u00fbbav-l\u00ean\u00ear\u00een\u00ea di naskirina p\u00ea\u015f\u00eeniy\u00ean l\u00eakol\u00een\u00ea \u00fb r\u00eavekirina vekol\u00eenan de h\u00eamanek bingeh\u00een a van hewldanan e. H\u00eazek ajotin\u00ea ya li pi\u015ft hewildan\u00ean min \u00ean l\u00eakol\u00een\u00ea ev e ku ez del\u00eelan p\u00ea\u015f bixim \u00fb bikar b\u00eenim da ku helw\u00east \u00fb n\u00eaz\u00eekatiy\u00ean li hember ep\u00eelepsiya destp\u00eak\u00ea ya jiyan\u00ea ji yek p\u00fb\u00e7b\u00fbn\u00ea berbi ya ku t\u00ea de te\u015fh\u00eeskirina rast dikare bibe sedema dermankirin\u00ean rast \u00fb di dawiy\u00ea de ji bo kes\u00ea bi bandor, malbat, encam\u00ean \u00e7\u00eatir biguher\u00eene. \u00fb civak\u00ea bi tevah\u00ee.<\/p>\n\t\t\t\t\"Anne-Berg\"\n\t\t\t\t\"chere-chapman\"\n\t

Chere AT Chapman, MBA, MHSc<\/strong><\/h3>\n

CEO Ardea Encam\u00ean<\/strong><\/h3>\n

With an Honours BSc in biology, Ch\u00e8re Chapman set out for a year in rural Japan as part of a global teaching and cross-cultural exchange program of the Japanese government. Following two years back in Canada for her Master’s of Health Science in Community Health and Epidemiology from University of Toronto, Ch\u00e8re returned in Asia as an HIV\/AIDS epidemiologist at the Communicable Disease Centre (CDC) in Singapore. Over the next decade, Ch\u00e8re did her MBA at London Business School before returning to Asia once again to establish a consultancy in Singapore and Vietnam developing multi-stakeholder partnerships with international NGOs and Fortune 100 companies. Ch\u00e8re has negotiated complex projects from Papua New Guinea to India to Bangladesh for organizations such as CARE International, Chevron, Visa, and The Clinton Foundation.\u00a0<\/p>\n

Ch\u00e8re’s East Coast Canadian roots eventually pulled her back to Nova Scotia where she is now CEO of Ardea Outcomes, a specialist contract research organization focused on patient-centered outcomes. Ch\u00e8re is a past board member for the University of King’s College and Touch Sala Bai, a charity fighting human trafficking in Cambodia. Chere is\u00a0currently an associate at Creative Destruction Lab Atlantic, a founder of Sandpiper Ventures, and the chair of ONSIDE, a multi-stakeholder organization driving inclusive innovation-driven entrepreneurship in Eastern Canada.\u00a0\u00a0<\/p>\n

Ch\u00e8re bi m\u00ear\u00ea xwe Gord, \u00e7ar zarok\u00ean wan \u00ean d\u00een \u00fb k\u00fb\u00e7ik\u00ea pandem\u00eek \u00ean delal re li Halifax dij\u00ee.<\/p>\n\t

Gabi Conecker, MPH<\/strong><\/h3>\n

Serok \u00fb Hev-damezr\u00eaner\u00ea Wishes for Elliott, Hevbendiya Navnetewey\u00ee ya SCN8A, \u00fb T\u00eakiliy\u00ean DEE-P<\/strong><\/h3>\n

Gabi is mom to Elliott, now 10 years old, who struggles with one of the most severe SCN8A mutations. At diagnosis, the family received the one published article on SCN8A in children offering little to no guidance on care, treatment, or prognosis. Gabi founded Wishes for Elliott to fight for better treatment and research for SCN8A families. Even though she was still working full time building maternal\/child health programs in sub-Saharan Africa and caring for a severely medically fragile child, she was inspired to bring the passion and urgency of SCN8A families to the nascent but growing community of SCN8A researchers and clinicians – and do everything possible to improve understanding for better treatment and outcomes for all SCN8A children.<\/p>\n

W\u00ea di sala 2019-an de DEE-P Connections damezrand, ji b\u00eah\u00eav\u00eetiya ku ji bo malbat\u00ean ku her\u00ee z\u00eade bandor b\u00fbne, m\u00eena ya xwe, am\u00fbr, \u00e7avkan\u00ee \u00fb l\u00eakol\u00een \u00e7\u00eatir bib\u00eene.<\/p>\n\t\t\t\t\"Gabi\n\t\t\t\t\"jayettav2-768x1024\"\n\t

JayEtta Hecker, MS<\/strong><\/h3>\n

R\u00eavebir \u00fb Hev- Damezr\u00eener\u00ea Wishes for Elliott, Hevbendiya Navnetewey\u00ee ya SCN8A, \u00fb T\u00eakiliy\u00ean DEE-P<\/strong><\/h3>\n

JayEtta abor\u00eenasek e ku di anal\u00eez\u00ean siyaseta gi\u015ft\u00ee ya serbixwe de li ser kariyera 44 sal\u00ee ya bi huk\u00fbmeta federal re pispor e. W\u00ea di gelek ajans\u00ean federal de, Qesra Sp\u00ee Carter, \u00fb wek\u00ee r\u00eaveberek payebilind di nav be\u015fa l\u00eakol\u00eena Kongrey\u00ea ya Of\u00eesa Berpirsiyariya Hik\u00fbmet\u00ea de xizmet kir. Ew li ber kom\u00eetey\u00ean Senato \u00fb Mecl\u00ees\u00ea \u015fahidek pir caran b\u00fb ku del\u00eel\u00ean ji nirxandin\u00ean ku w\u00ea li ser mijar\u00ean sereke y\u00ean siyaseta gi\u015ft\u00ee r\u00eave kir peyda kir.<\/p>\n

Elliott was her first grandchild and she was an active caregiver and partner in his diagnostic odyssey. She partnered with Gabi, her daughter and Elliott’s mother, to form Wishes for Elliott to advance SCN8A research and create a lasting legacy for Elliott, who continues to serve as an inspiration for all who know him. She is Co-founder and Executive Director of the International SCN8A Alliance and DEE-P Connections, helping build innovative collaborations to accelerate research and to improve the outcomes of all those struggling with DEEs. <\/p>\n\t

Jenny Downs, BApplSci, MSc, PhD<\/strong><\/h3>\n

Enst\u00eetuya Zarokan a Telethon<\/strong><\/h3>\n

Dr. Bernamey\u00ean w\u00ea y\u00ean hey\u00ee l\u00eakol\u00eena li ser nexwe\u015fiy\u00ean k\u00eam di nav wan de sendroma Rett, Nexwe\u015fiya K\u00eamasiya CDKL5, sendroma Dubendiy\u00ea ya MECP2 \u00fb sendroma Prader-Willi, \u00fb hem j\u00ee sendroma Down, aut\u00eezm \u00fb felc\u00ee mej\u00ee ku pir caran diqewimin hene.<\/p>\n

Dr Downs led the development of gross motor and hand function measures for Rett syndrome, and a quality of life measure for children with intellectual disability, the Quality of Life Inventory – Disability. (QI-Disability). She is lead PI for the Australian site of an NIH funded US-Australian study developing and validating outcome measures for the CDKL5 Deficiency Disorder.\u00a0<\/p>\n

V\u00eezyona w\u00ea ev e ku hem\u00ee zarok\u00ean bi qels\u00ee an k\u00eamendamiya p\u00ea\u015fkeftin\u00ea re d\u00ea bi k\u00eamasiy\u00ean k\u00eamb\u00fby\u00ee \u00fb kal\u00eeteya jiyan\u00ea ya \u00e7\u00eatir\u00een bij\u00een, \u00fb ku encam\u00ean l\u00eakol\u00een\u00ea d\u00ea bi wekhev\u00ee li nav civak\u00ea b\u00eane belav kirin.<\/p>\n\t\t\t\t\"Jenny-Downs\"\n\t\t\t\t\"Wojnaroski\n\t

Mary Wojnaroski, PhD<\/strong><\/h3>\n

Nationwide Children’s Hospital<\/strong><\/h3>\n

Mary Wojnaroski, PhD is a licensed clinical psychologist at Nationwide Children’s Hospital in Columbus, Ohio and an Assistant Professor of Pediatrics at The Ohio State University.\u00a0 She provides assessment and treatment of children and young adults with neurodevelopmental disabilities, including autism, ADHD, and cognitive delay.\u00a0 She has further specialization in assessment and treatment of children with neurodevelopmental conditions and medical conditions, especially epilepsy.\u00a0\u00a0<\/p>\n

Dr. Wojnaroski’s research and clinical interests have focused on early assessment and diagnosis of autism and other neurodevelopmental disabilities in children with epilepsy, developmental and behavioral assessment for children with severe to profound developmental disabilities, and psychological and behavioral consultation for children with developmental disabilities during hospital admission. \u00a0 Her career has been dedicated to improving developmental and behavioral care for individuals with neurodevelopmental disabilities and medical conditions, including creating an inpatient consultation\/liaison service designed to direct treatment after discharge, increase access to developmental evaluation for families with psychosocial barriers, and increase children’s participation in required medical procedures.<\/p>\n\t

Natasha Ludwig, PhD<\/strong><\/h3>\n

Neurops\u00eekolog<\/strong><\/h3>\n

Dr. Natasha Ludwig received her bachelor’s degree in Neuroscience from Union College and her master’s and doctoral degree in Clinical Psychology with emphasis on neuropsychology and cognitive neuroscience from Georgia State University. Dr. Ludwig completed an APA-accredited internship in neuropsychology rehabilitation\/pediatric psychology and a postdoctoral fellowship in pediatric neuropsychology at Kennedy Krieger Institute\/Johns Hopkins School of Medicine.<\/p>\n

Dr. Ludwig di sala 2019-an de be\u015fdar\u00ee Be\u015fa Neurops\u00eekolojiy\u00ea li Enst\u00eetuya Kennedy Krieger b\u00fb \u00fb Al\u00eekar\u00ea Profesor\u00ea Ps\u00eekiyatr\u00ee \u00fb Zanist\u00ean Behavior\u00ea ye li Dibistana Bij\u00eejk\u00ee ya Zan\u00eengeha Johns Hopkins. Ji h\u00eala kl\u00een\u00eek\u00ee ve, Dr. Ludwig ji bo zarok\u00ean bi c\u00fbrbec\u00fbr \u015fert \u00fb merc\u00ean bij\u00eejk\u00ee \u00fb p\u00ea\u015fkeftina neuroze ji zay\u00een\u00ea heya mezinb\u00fbn\u00ea, di ser\u00ee de di nav kl\u00een\u00eeka Merc\u00ean Jidayikb\u00fbn\u00ea\/Genet\u00eek\u00ee \u00fb Kl\u00een\u00eek\u00ea Rehab\u00eel\u00eetasyona Bir\u00eendariya Ep\u00eeleps\u00ee \u00fb Mej\u00ee de, nirxandin\u00ean neurops\u00eekoloj\u00eek peyda dike.<\/p>\n\t\t\t\t\"Natasha-Ludwig\"\n\t\t\t\t\"Gunes\"\n\t

PHD Gune\u015f Sev\u00een\u00e7
\nR\u00eavebir\u00ea L\u00eakol\u00een\u00ea, Encam\u00ean Ardea<\/h3>\n

Gunes Sevinc has a multidisciplinary background with training and research experience in basic and clinical sciences. After obtaining her BSc degree in Psychology and her MSc degree in Mental Health Sciences, she pursued a career in clinical research as a psychologist, conducting in-person and remote assessments. She then earned her PhD degree in Neuroscience from Istanbul University and continued her career with a postdoctoral research fellowship at the Massachusetts General Hospital & Harvard Medical School Department of Psychiatry. Upon the completion of this fellowship, she joined Ardea Outcomes as a Research Manager, where she is leading the clinical research operations team, and advancing the science of goal attainment scaling through steering the company’s internal research program and strategy.<\/p>\n\t

Rebecca Hommer, EdD<\/h3>\n

University of Maryland – Connections Beyond Sight &amp; Sound
\nProjeya DeafBlind ya Maryland \u00fb DC<\/h3>\n

Dr. W\u00ea ji Zan\u00eengeha Navend\u00ee ya Bakur Doktora Perwerdehiy\u00ea, ji Zan\u00eengeha Pittsburgh, Zan\u00eengeha Maryland, \u00fb Zan\u00eengeha Utah bawernamey\u00ean xwe y\u00ean Mastera Perwerdehiy\u00ea wergirt. W\u00ea ji Zan\u00eengeha Salus \u00fb Zan\u00eengeha Utah sert\u00eef\u00eekay\u00ean t\u00eakildar\u00ee d\u00eetin\u00ea wergirtiye.<\/p>\nDr. Hommer joined the University of Maryland’s DeafBlind Project, Connections Beyond Sight &amp; Sound in 2018 as an Education Specialist. Through her role as Education Specialist, Dr. Hommer provides assessments, evidence-based interventions, and academic support for students with dual sensory loss. In addition to providing support to students with deafblindness, she assesses students with cortical\/cerebral visual impairment and assists teams with developing interventions that support the student’s visual access to their educational materials as well as their academic, community, and
\nderdor\u00ean mal\u00ea.\n\t\t\t\t\"rebecca\"","protected":false},"excerpt":{"rendered":"

Researcher Bios Anne Berg, PhD Northwestern Feinberg School of Medicine, Neurology The focus of Anne’s research for over 30 years has been the “natural” history of pediatric epilepsy with a…<\/p>","protected":false},"author":4,"featured_media":0,"parent":2827,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-4705","page","type-page","status-publish","hentry"],"yoast_head":"\nInchstone Researcher Bios - 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