{"id":4730,"date":"2022-10-03T09:12:20","date_gmt":"2022-10-03T16:12:20","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=4730"},"modified":"2022-12-12T12:14:55","modified_gmt":"2022-12-12T20:14:55","slug":"inchstone-workshops","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ckb\/inchstone-project\/inchstone-workshops\/","title":{"rendered":"2021 Atolyey\u00ean Encam\u00ean"},"content":{"rendered":"<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/12\/Inchstone-Logo-300x217.png\" alt=\"Inchstone Logo\" itemprop=\"image\" height=\"217\" width=\"300\" title=\"Logoya Inchstone\" onerror=\"this.style.display='none'\"  \/>\n\t<h1>\n\t\t\t\t2021 Workshops On Outcome Measures for Those Severely Impacted by DEEs\n\t\t\t<\/h1>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/DEE-P-COMBINEDOutcomes-Workshop-Agenda-Days-1-2.pdf\" target=\"_self\" role=\"button\" rel=\"noopener\">\n\t\t\t\t\t\tNov 4 &#038; 11th Workshop Agendas\n\t\t\t\t\t<\/a>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Slides-Additional-Promising-Measures.pdf\" target=\"_self\" role=\"button\" rel=\"noopener\">\n\t\t\t\t\t\tAdditional Promising Measures\n\t\t\t\t\t<\/a>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/05\/outcomes-workshop-1\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 1\" \/><meta itemprop=\"datePublished\" content=\"2021-11-05\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" \/><meta itemprop=\"width\" content=\"750\" \/><meta itemprop=\"height\" content=\"563\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/2021\/11\/05\/outcomes-workshop-1\/\" title=\"RECORDING &#8211; Inchstone Outcomes Workshop 1\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" alt=\"ruler\" itemprop=\"image\" data-no-lazy=\"1\" height=\"563\" width=\"750\" title=\"h\u00fbk\u00fbmdar\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRECORDING &#8211; Inchstone Outcomes Workshop 1\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/21\/outcomes-workshop-1-copy\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\" \/><meta itemprop=\"datePublished\" content=\"2021-11-21\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler2.jpeg\" \/><meta itemprop=\"width\" content=\"1500\" \/><meta itemprop=\"height\" content=\"724\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ckb\/2021\/11\/21\/outcomes-workshop-1-copy\/\" title=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler2-1024x494.jpeg\" alt=\"ruler2\" itemprop=\"image\" data-no-lazy=\"1\" height=\"494\" width=\"1024\" title=\"serwer2\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRECORDING &#8211; Inchstone Outcomes Workshop 2\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t<!-- .pp-content-posts -->\n\t<p>These meetings were planned in coordination with COMBINEDBrain.<\/p>\n\t<h1>\n\t\t\t\tInitial Outcome Research Efforts\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Tools-2-300x200.png\" alt=\"online tools\" itemprop=\"image\" height=\"200\" width=\"300\" title=\"Am\u00fbr 2\" onerror=\"this.style.display='none'\"  \/>\n\t<p>The landscape phase of our collaborative efforts has identified multiple projects which are ready for adaptation, extended scaling, or testing\u00a0 for exploration by potential consortium partners include:<\/p>\n<ul>\n<li aria-level=\"1\"><b>Adapting the Vineland &#8211; <\/b>Evaluate opportunities to adapt features of the Vineland tool to the broader severe populations; PI: Dr. Anne Berg<\/li>\n<li aria-level=\"1\"><b>Health-Related Quality of Life Scale for DEEs &#8211; <\/b>extend Quality of Life Inventory of Disabilities to include refined tools that recognize diverse impacts of severe disabilities; PI: Dr. Jenny Downs in collaboration with Epilepsy Foundation Epilepsy Learning Healthcare System team<\/li>\n<li aria-level=\"1\"><b>Goal Attainment Scaling <\/b>&#8211; Validate Goal Attainment Scaling, a highly sensitive measure of change, in the severe DEE population; PI: Chere Chapman, Ardea Outcomes<\/li>\n<li aria-level=\"1\"><b>Rehabilitation Scales <\/b>&#8211; adaptation of broad measures and tools developed for rehabilitation of individuals with profound trauma for broad DEE populations; PI: Dr. Natasha Ludwig, Kennedy-Krieger Institute<\/li>\n<li aria-level=\"1\"><b>Final Disease Concept Map<\/b> of select severe DEEs to provide reliable baseline of performance challenges and measurement requirements in severe DEEs; PI: Dr. Terry Jo Bichell<\/li>\n<li aria-level=\"1\"><b>Ongoing Scouting and Documentation <\/b>&#8211; ongoing collaborative effort to evaluate additional emerging opportunities on critical issues such as CVI, sleep, etc.; PI: Gabi Conecker<\/li>\n<\/ul>\n\t<h1>\n\t\t\t\tSlide Presentations\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Presentations.png\" alt=\"Presentation Materials\" itemprop=\"image\" title=\"P\u00ea\u015fk\u00ea\u015fiy\u00ean\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/MEASURINGBETTER_BERG-DEE-P-COMBINED-Outcomes-Workshop-1.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Screen-Shot-2021-11-06-at-5.25.39-PM-300x168.png\" alt=\"Screen Shot 2021-11-06 at 5.25.39 PM\" itemprop=\"image\" height=\"168\" width=\"300\" title=\"Screen Shot 2021-11-06 at 5.25.39 PM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/GAS_CHAPMAN-DEE-P-COMBINED-Outcomes-Workshop1.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Screen-Shot-2021-11-06-at-5.23.51-PM-300x168.png\" alt=\"Screen Shot 2021-11-06 at 5.23.51 PM\" itemprop=\"image\" height=\"168\" width=\"300\" title=\"Screen Shot 2021-11-06 at 5.23.51 PM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Opening-Lit-Review-and-Draft-Disease-Concept-Outcomes-Workshop-1.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Screen-Shot-2021-11-06-at-6.44.39-PM-300x168.png\" alt=\"Screen Shot 2021-11-06 at 6.44.39 PM\" itemprop=\"image\" height=\"168\" width=\"300\" title=\"Screen Shot 2021-11-06 at 6.44.39 PM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/HRQOL_DOWNS-DEE-P-COMBINED-Outcomes-Workshop1.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Screen-Shot-2021-11-06-at-5.24.46-PM-300x169.png\" alt=\"Screen Shot 2021-11-06 at 5.24.46 PM\" itemprop=\"image\" height=\"169\" width=\"300\" title=\"Screen Shot 2021-11-06 at 5.24.46 PM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/REHAB_LUDWIG-DEE-P-COMBINED-Outcomes-Workshop1.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/Screen-Shot-2021-11-06-at-5.26.31-PM-300x226.png\" alt=\"Screen Shot 2021-11-06 at 5.26.31 PM\" itemprop=\"image\" height=\"226\" width=\"300\" title=\"Screen Shot 2021-11-06 at 5.26.31 PM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/01\/11-11-21-Slides-Partnering-to-Accelerate-Progress.pdf\" target=\"_self\" itemprop=\"url\" rel=\"noopener\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/01\/Screen-Shot-2022-01-26-at-2.54.42-PM-300x168.png\" alt=\"Screen Shot 2022-01-26 at 2.54.42 PM\" itemprop=\"image\" height=\"168\" width=\"300\" title=\"Screen Shot 2022-01-26 at 2.54.42 PM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n<h1>\n\t\tReach out to us with thoughts, comments or to partner: info@deepconnections.site\n\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/12\/Copy-of-Inchstone-Industry-17-\u00d7-11-in-1024x663.png\" alt=\"Copy of Inchstone Industry (17 \u00d7 11 in)\" itemprop=\"image\" height=\"663\" width=\"1024\" title=\"Copy of Inchstone Industry (17 \u00d7 11 in)\" onerror=\"this.style.display='none'\"  \/>","protected":false},"excerpt":{"rendered":"<p>2021 Workshops On Outcome Measures for Those Severely Impacted by DEEs Nov 4 &#038; 11th Workshop Agendas Additional Promising Measures RECORDING &#8211; Inchstone Outcomes Workshop 1 RECORDING &#8211; Inchstone Outcomes&hellip;<\/p>","protected":false},"author":4,"featured_media":3742,"parent":2827,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-4730","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- 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