{"id":2779,"date":"2020-05-15T15:54:35","date_gmt":"2020-05-15T22:54:35","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?p=2779"},"modified":"2023-07-19T10:36:37","modified_gmt":"2023-07-19T17:36:37","slug":"strategies-for-fun-and-learning-at-home-for-kids-with-dees-and-the-whole-family","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/ckb\/2020\/05\/15\/strategies-for-fun-and-learning-at-home-for-kids-with-dees-and-the-whole-family\/","title":{"rendered":"Strategies for Learning at Home with your DEE Child and Engaging the Whole Family"},"content":{"rendered":"

This is a recording of the DEE-P Connections webinar from May 13, 2020 “Strategies for Fun and Learning at Home for Kids with DEEs and the Whole Family” <\/em>which explored strategies to integrate therapy into your everyday family lives, managing expectations, regression and having fun with your kids during the COVID-19 pandemic. The webinar was planned in coordination with all panelists.<\/p>\n\n\n\n

The webinar was moderated by Gabrielle Conecker – mother to Elliott, who has SCN8A-related epilepsy and President and Co-Founder of Wishes for Elliott and DEE-P Connections.<\/p>\n\n\n\n

Our panelists included:<\/p>\n\n\n\n

Jenny Downs<\/strong>, Head, Child Disability Health and Wellbeing at Telethon Kids Institute at Perth Children’s Hospital<\/a> who has a passion for research and works tirelessly to improve the lives of children with disabilities and their families<\/p>\n\n\n\n

Pamela Diener<\/a><\/strong>, Professor Georgetown University School of Medicine, Developmental Neuroscientist, Pediatric Occupational Therapist focused on children who are medically complex and Sister to Jolie, who lives with Rett Syndrome<\/p>\n\n\n\n

Amanda Jaksha<\/strong>, mom to Ava who has CDKL5 Deficiency Disorder and Treasurer at International Foundation for CDKL5 Research & Colorado Rare<\/p>\n\n\n\n

Luke Rosen<\/strong>, founded KIF1A.ORG<\/a> in 2016 with his wife, Sally following their daughter Susannah\u2019s KIF1A diagnosis to aggressively accelerate discovery of treatment for Susannah and children like her<\/p>\n\n\n\n

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