{"id":2269,"date":"2020-09-07T08:05:45","date_gmt":"2020-09-07T15:05:45","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2269"},"modified":"2023-05-02T14:25:14","modified_gmt":"2023-05-02T21:25:14","slug":"research-participating-and-supporting","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/","title":{"rendered":"V\u00fdzkum a advokacie"},"content":{"rendered":"<h1>\n\t\t\t\tL\u00e9ka\u0159sk\u00fd\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DNA-Color.jpg\" alt=\"DNA Color - Strands\" itemprop=\"image\" title=\"Barva DNA\" onerror=\"this.style.display='none'\"  \/>\n\t<p>Rodiny DEE velmi dob\u0159e v\u011bd\u00ed, \u017ee l\u00e9\u010dbu v\u011bt\u0161iny na\u0161ich vz\u00e1cn\u00fdch onemocn\u011bn\u00ed su\u017euj\u00ed hlavn\u00ed oblasti zdravotn\u00ed nejistoty. Uv\u011bdomujeme si, \u017ee jedinou skute\u010dnou nad\u011bj\u00ed na podstatn\u00e9 zlep\u0161en\u00ed kvality \u017eivota na\u0161ich d\u011bt\u00ed je v\u00fdzkum. Kategorie v\u00fdzkumu pokr\u00fdv\u00e1 \u0159adu t\u00e9mat, v\u010detn\u011b \u00fasil\u00ed o zlep\u0161en\u00ed kvality, klinick\u00fdch studi\u00ed, n\u00e1rodn\u00edch priorit v\u00fdzkumu a mozkov\u00fdch a tk\u00e1\u0148ov\u00fdch bank.<\/p>\n\t<h1>\n\t\t\t\tProhledejte Centrum zdroj\u016f\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\/cs_cz\/\" method=\"get\" data-trp-original-action=\"https:\/\/deepconnections.net\">\n\t\t\t\t\t\t<input placeholder=\"Zadejte hledan\u00fd v\u00fdraz, kter\u00fd v\u00e1s zaj\u00edm\u00e1\" type=\"search\" name=\"s\" title=\"Vyhled\u00e1v\u00e1n\u00ed\" value=\"\"\/>\n\t\t\t\t\t\t\t\t\t<button type=\"submit\">\n\t\t\t\t\tVyhled\u00e1v\u00e1n\u00ed\n\t\t\t\t\t\t\t\t\t\t\t\t<\/button>\n\t\t\t<input type=\"hidden\" name=\"trp-form-language\" value=\"cs_cz\"\/><\/form>\n\t<h1>\n\t\t\t\tV\u00fdzkumn\u00e9 kategorie\n\t\t\t<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Tissue.jpg\" alt=\"Brain Tissue Research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/brain-tissue-donation\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tDarov\u00e1n\u00ed mozkov\u00e9 tk\u00e1n\u011b\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Clinical-Research.jpg\" alt=\"clinical trial\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/clinical-trials\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tKlinick\u00e9 testy\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" alt=\"CTE 2\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/curing-the-epilepsies\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tL\u00e9\u010dba epilepsie\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Genetic-Markers.jpg\" alt=\"gentic modifiers\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/genetic-modifiers-and-biomarkers\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tGenetic Modifiers, Biomarkers &#8211; Coming Soon\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" alt=\"ruler\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/outcomes\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tProjekt Inchstone\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/Data.jpg\" alt=\"Data\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/managing-your-data\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tSpr\u00e1va va\u0161ich dat\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/cs_cz\/research-participating-and-supporting\/participating-in-research\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"P\u0159e\u010dt\u011bte si v\u00edce\">\n\t\t\t\t\t\t\tP\u0159e\u010dt\u011bte si v\u00edce\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\t\u00da\u010dast na v\u00fdzkumu\t\t<\/h3>\n\t<h1>\n\t\t\t\tNejnov\u011bj\u0161\u00ed v\u00fdzkumn\u00e9 z\u00e1znamy\n\t\t\t<\/h1>\n\t\t<p>Sorry, we couldn&#8217;t find any posts. Please try a different search.<\/p>\n\t\t\t\t<form aria-label=\"Vyhled\u00e1v\u00e1n\u00ed\" method=\"get\" role=\"search\" action=\"https:\/\/deepconnections.net\/cs_cz\/\" title=\"Type and press Enter to search.\" data-trp-original-action=\"https:\/\/deepconnections.net\/\">\n\t<input aria-label=\"Vyhled\u00e1v\u00e1n\u00ed\" type=\"search\" name=\"s\" placeholder=\"Vyhled\u00e1v\u00e1n\u00ed\"  value=\"\" onfocus=\"if (this.value === 'Search') { this.value = ''; }\" onblur=\"if (this.value === '') this.value='Search';\" \/>\n<input type=\"hidden\" name=\"trp-form-language\" value=\"cs_cz\"\/><\/form>\n\t<h1>\n\t\t\t\tMost Recent Webinars &#038; Videos\n\t\t\t<\/h1>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/21\/outcomes-workshop-1-copy\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\" \/><meta itemprop=\"datePublished\" content=\"2021-11-21\" \/><meta 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Na\u0161e prohl\u00e1\u0161en\u00ed o ochran\u011b osobn\u00edch \u00fadaj\u016f popisuje typy osobn\u00edch \u00fadaj\u016f, kter\u00e9 p\u0159ij\u00edm\u00e1me a shroma\u017e\u010fujeme, kdy\u017e pou\u017e\u00edv\u00e1te tuto webovou str\u00e1nku, a tak\u00e9 n\u011bkter\u00e9 kroky, kter\u00e9 podnik\u00e1me k ochran\u011b informac\u00ed. <a href=\"https:\/\/deepconnections.net\/cs_cz\/privacy-policy\/\" target=\"_blank\" rel=\"noopener\">P\u0159e\u010dt\u011bte si pros\u00edm v\u00edce zde.<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. Recognizing that the only real hope for&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-2269","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Research &amp; Advocacy - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/cs_cz\/ru_ru\/research-participating-and-supporting\/\" \/>\n<meta property=\"og:locale\" content=\"cs_CZ\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Research &amp; Advocacy\" \/>\n<meta property=\"og:description\" content=\"Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. 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