{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/cs_cz\/dee-p-connections\/","title":{"rendered":"DEE-P Connections"},"content":{"rendered":"

\n\t\t\tSpole\u010dn\u011b to dok\u00e1\u017eeme.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tNav\u0161tivte Centrum zdroj\u016f\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

DEE-P Connections se rozrostla do st\u00e1le v\u00edce plnohodnotn\u00e9ho zdroje pro rodiny, jejich\u017e d\u011bti jsou posti\u017eeny v\u00fdvojov\u00fdmi a\/nebo epileptick\u00fdmi encefalopatiemi nebo DEE. Jedn\u00e1 se o obt\u00ed\u017en\u011b l\u00e9\u010diteln\u00e9 epilepsie, kter\u00e9 jsou doprov\u00e1zeny z\u00e1va\u017en\u00fdm v\u00fdvojov\u00fdm zpo\u017ed\u011bn\u00edm a\/nebo regres\u00ed. <\/p>\n

Na\u0161ich 45+ partnery<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

Na\u0161e webin\u00e1\u0159e a neust\u00e1le rostouc\u00ed Centrum zdroj\u016f<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

Ujist\u011bte se, \u017ee n\u00e1s sledujete Facebook<\/a> a\/nebo Instagram<\/a> abychom z\u016fstali na vrcholu v\u0161eho, co m\u016f\u017eeme nab\u00eddnout.<\/p>\n

Pokud m\u00e1te n\u00e1pady na zdroje, kter\u00e9 bychom m\u011bli p\u0159idat, nebo na webin\u00e1\u0159e, kter\u00e9 bychom m\u011bli po\u0159\u00e1dat, kontaktujte n\u00e1s tady<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tPros\u00edm P\u0159ipoj se k n\u00e1m\n\t\t<\/h2>\n\t\t\t

Sbli\u017eov\u00e1n\u00ed rodin a partner\u016f, kte\u0159\u00ed pom\u00e1haj\u00ed d\u011btem s DEE \u017e\u00edt jejich nejlep\u0161\u00ed \u017eivot.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tNadch\u00e1zej\u00edc\u00ed webin\u00e1\u0159e\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0\u00davodn\u00ed webin\u00e1\u0159<\/h2>\n\t\t\t\t