{"id":3735,"date":"2021-11-05T07:31:52","date_gmt":"2021-11-05T14:31:52","guid":{"rendered":"https:\/\/deepconnections.net\/?p=3735"},"modified":"2024-03-24T21:13:20","modified_gmt":"2024-03-25T04:13:20","slug":"outcomes-workshop-1","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/cs_cz\/2021\/11\/05\/outcomes-workshop-1\/","title":{"rendered":"Z\u00c1ZNAM \u2013 POSOUZEN\u00cd STAVU A P\u0158\u00cdLE\u017dITOST\u00cd"},"content":{"rendered":"<h2 class=\"wp-block-heading\">ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n\t<iframe title=\"DEE-P COMBINED 1 Assessing Opportunities to Develop Outcome Measures for the Most Severely Affected\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/wxg1NcuWw8M?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\"><\/iframe>\n\t<p>This is a recording of day one of the workshop, held November 4th 2021, and was focused on the topic &#8220;Assessing Status and Opportunities for Developing Outcome Measures for the Most Severely Affected Populations.&#8221;<\/p>\n<p>Major presenters included:<\/p>\n<p>An opening from Gabi Conecker, Co-Founder of the International SCN8A Alliance and DEE-P Connections<\/p>\n<p>Terry Jo Bichell, Founder and Director of COMBINEDBrain<\/p>\n<p>Ardea Goal Attainment Scaling presented by Chere Chapman<\/p>\n<p>Rehabilitation model for severe neurological impacts\/adaptation to severe DEEs presented by Kennedy Krieger<\/p>\n<p>Research on DEE Outcomes by Anne Berg<\/p>\n<p>Telethon Kids work on DEE Outcomes presented by Jenny Downs<\/p>","protected":false},"excerpt":{"rendered":"<p>HODNOCEN\u00cd STAVU A P\u0158\u00cdLE\u017dITOST\u00cd PRO VYPRACOV\u00c1N\u00cd V\u00ddSLEDKOV\u00ddCH OPAT\u0158EN\u00cd PRO NEJV\u00c1\u017dN\u011aJ\u0160\u00cd POPULACE Toto je z\u00e1znam prvn\u00edho dne workshopu, kter\u00fd se konal 4. listopadu 2021 a byl\u2026<\/p>","protected":false},"author":4,"featured_media":3742,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1114,1115,1117,1088,1021,1,1024,1025],"tags":[1122,1124,1125,1123,1126,1068,1121,1029,1026],"class_list":["post-3735","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-biomarkers","category-outcomes-endpoints","category-promoting-research","category-quality-improvement-epilepsy-care","category-research","category-uncategorized","category-video","category-webinar","tag-dee","tag-measures","tag-outcome-measures","tag-outcomes","tag-promising-research","tag-research","tag-severe-epilepsies","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - 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