{"id":2269,"date":"2020-09-07T08:05:45","date_gmt":"2020-09-07T15:05:45","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2269"},"modified":"2023-05-02T14:25:14","modified_gmt":"2023-05-02T21:25:14","slug":"research-participating-and-supporting","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/","title":{"rendered":"Forschung &amp; Interessenvertretung"},"content":{"rendered":"<h1>\n\t\t\t\tMedizinisch\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DNA-Color.jpg\" alt=\"DNA Color - Strands\" itemprop=\"image\" title=\"DNA-Farbe\" onerror=\"this.style.display='none'\"  \/>\n\t<p>Wie DEE-Familien nur zu gut wissen, ist die Behandlung der meisten unserer seltenen Krankheiten mit erheblichen medizinischen Unsicherheiten behaftet. Wir erkennen, dass die einzige wirkliche Hoffnung auf eine wesentliche Verbesserung der Lebensqualit\u00e4t unserer Kinder die Forschung ist. Die Kategorie Forschung umfasst eine Reihe von Themen, darunter Qualit\u00e4tsverbesserungsbem\u00fchungen, klinische Studien, nationale Forschungspriorit\u00e4ten sowie Gehirn- und Gewebebanken.<\/p>\n\t<h1>\n\t\t\t\tDurchsuchen Sie das Ressourcenzentrum\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\/de_at\/\" method=\"get\" data-trp-original-action=\"https:\/\/deepconnections.net\">\n\t\t\t\t\t\t<input placeholder=\"Geben Sie den Suchbegriff ein, der Sie interessiert\" type=\"search\" name=\"s\" title=\"Suchen\" value=\"\"\/>\n\t\t\t\t\t\t\t\t\t<button type=\"submit\">\n\t\t\t\t\tSuchen\n\t\t\t\t\t\t\t\t\t\t\t\t<\/button>\n\t\t\t<input type=\"hidden\" name=\"trp-form-language\" value=\"de_at\"\/><\/form>\n\t<h1>\n\t\t\t\tForschungskategorien\n\t\t\t<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Tissue.jpg\" alt=\"Brain Tissue Research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/brain-tissue-donation\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tHirngewebespende\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Clinical-Research.jpg\" alt=\"clinical trial\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/clinical-trials\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tKlinische Versuche\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" alt=\"CTE 2\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/curing-the-epilepsies\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tHeilung der Epilepsien\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Genetic-Markers.jpg\" alt=\"gentic modifiers\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/genetic-modifiers-and-biomarkers\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tGenetic Modifiers, Biomarkers &#8211; Coming Soon\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" alt=\"ruler\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/outcomes\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tDas Inchstone-Projekt\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/Data.jpg\" alt=\"Data\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/managing-your-data\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tVerwalten Ihrer Daten\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/research-participating-and-supporting\/participating-in-research\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Mehr lesen\">\n\t\t\t\t\t\t\tMehr lesen\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tTeilnahme an der Forschung\t\t<\/h3>\n\t<h1>\n\t\t\t\tNeueste Forschungseintr\u00e4ge\n\t\t\t<\/h1>\n\t\t<p>Sorry, we couldn&#8217;t find any posts. Please try a different search.<\/p>\n\t\t\t\t<form aria-label=\"Suchen\" method=\"get\" role=\"search\" action=\"https:\/\/deepconnections.net\/de_at\/\" title=\"Type and press Enter to search.\" data-trp-original-action=\"https:\/\/deepconnections.net\/\">\n\t<input aria-label=\"Suchen\" type=\"search\" name=\"s\" placeholder=\"Suchen\"  value=\"\" onfocus=\"if (this.value === 'Search') { this.value = ''; }\" onblur=\"if (this.value === '') this.value='Search';\" \/>\n<input type=\"hidden\" name=\"trp-form-language\" value=\"de_at\"\/><\/form>\n\t<h1>\n\t\t\t\tMost Recent Webinars &#038; Videos\n\t\t\t<\/h1>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/21\/outcomes-workshop-1-copy\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\" \/><meta itemprop=\"datePublished\" content=\"2021-11-21\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" 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itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRECORDING &#8211; Inchstone Outcomes Workshop 2\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/05\/outcomes-workshop-1\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 1\" \/><meta itemprop=\"datePublished\" content=\"2021-11-05\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" \/><meta itemprop=\"width\" content=\"750\" \/><meta itemprop=\"height\" content=\"563\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta 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\/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tWas k\u00f6nnen SIE tun, um zur Heilung der Epilepsie beizutragen?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/06\/29\/how-effective-is-your-epilepsy-care\/\" content=\"How Effective is Your Epilepsy Care?\" \/><meta itemprop=\"datePublished\" content=\"2021-06-29\" \/><meta itemprop=\"dateModified\" content=\"2021-08-16\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/1\/\" \/><meta itemprop=\"name\" content=\"Matt\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" \/><meta itemprop=\"width\" content=\"640\" \/><meta itemprop=\"height\" content=\"426\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/de_at\/2021\/06\/29\/how-effective-is-your-epilepsy-care\/\" title=\"How Effective is Your Epilepsy Care?\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\" itemprop=\"image\" data-no-lazy=\"1\" height=\"426\" width=\"640\" title=\"Teilnehmende Forschung\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tHow Effective is Your Epilepsy Care?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t\t\t<ul class='page-numbers'>\n\t<li>1<\/li>\n\t<li><a href=\"https:\/\/deepconnections.net\/de_at\/paged-2\/2\/?page_id=2269&#038;fl_builder\">2<\/a><\/li>\n\t<li><a href=\"https:\/\/deepconnections.net\/de_at\/paged-2\/2\/?page_id=2269&#038;fl_builder\">Next 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Recognizing that the only real hope for&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-2269","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Research &amp; Advocacy - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/de_at\/ru_ru\/research-participating-and-supporting\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Research &amp; Advocacy\" \/>\n<meta property=\"og:description\" content=\"Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. 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