{"id":4705,"date":"2022-09-29T16:44:41","date_gmt":"2022-09-29T23:44:41","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=4705"},"modified":"2024-01-05T12:02:33","modified_gmt":"2024-01-05T20:02:33","slug":"inchstone-researcher-bios","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/de_at\/inchstone-project\/inchstone-researcher-bios\/","title":{"rendered":"Biografien der Inchstone-Forscher"},"content":{"rendered":"<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/12\/Inchstone-Horiz-FullColor.jpg\" alt=\"The Inchstone Project\" itemprop=\"image\" height=\"287\" width=\"1407\" title=\"Inchstone-Horiz-Vollfarbe\" onerror=\"this.style.display='none'\"  \/>\n<h1>\n\t\tForscherbiografien\n\t<\/h1>\n\t<h3><strong>Anne Berg, PhD<\/strong><\/h3>\n<h3><strong>Northwestern Feinberg School of Medicine, Neurologie<\/strong><\/h3>\n<p>The focus of Anne&#8217;s research for over 30 years has been the &#8220;natural&#8221; history of pediatric epilepsy with a specific emphasis on seizure outcomes, developmental and cognitive consequences the impact on quality of life, families and the implications for care and care models. In 2007, she played a key role in focusing NINDS research priorities on the cognitive, developmental, and behavioral co-morbidities of epilepsy and organized sessions at the AES meeting to investigate and identify research opportunities for improving patients&#8217; outcomes. In 2013, she Co-Chaired the NINDS-sponsored Curing Epilepsies conference &amp; organized and led the workshop, &#8220;Priorities in Pediatric Epilepsy Research: Improving Children&#8217;s Futures Today.&#8221; Anne was one of the initial founders of the Pediatric Epilepsy Research Consortium (PERC) which has grown to over 40 centers in the US.\u00a0\u00a0<\/p>\n<p>Derzeit konzentriert sie sich auf die Entwicklung von Ressourcen und Mitteln, um eine schnelle und wertvolle Informationssammlung \u00fcber die F\u00e4higkeiten und Beeintr\u00e4chtigungen in einer Vielzahl von Bereichen zu erm\u00f6glichen, die von Entwicklungsst\u00f6rungen des Gehirns und Epilepsien im fr\u00fchen Leben betroffen sind. Die Stimme der Eltern und Betreuer bei der Festlegung von Forschungspriorit\u00e4ten und der Leitung von Untersuchungen ist ein zentraler Bestandteil dieser Bem\u00fchungen. Eine treibende Kraft hinter meinen Forschungsbem\u00fchungen ist die Entwicklung und Nutzung von Beweisen, um Einstellungen und Ans\u00e4tze gegen\u00fcber Epilepsien im fr\u00fchen Leben von einer sinnlosen zu einer zu ver\u00e4ndern, in der eine pr\u00e4zise Diagnose zu pr\u00e4zisen Therapien und letztendlich zu verbesserten Ergebnissen f\u00fcr die betroffene Person, die Familie und die Gesellschaft als Ganzes f\u00fchren kann.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/Anne-Berg.jpg\" alt=\"Anne-Berg\" itemprop=\"image\" height=\"249\" width=\"202\" title=\"Anne-Berg\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/chere-chapman.jpeg\" alt=\"chere-chapman\" itemprop=\"image\" height=\"251\" width=\"201\" title=\"chere-chapman\" onerror=\"this.style.display='none'\"  \/>\n\t<h3><strong>Chere AT Chapman, MBA, MHSc<\/strong><\/h3>\n<h3><strong>CEO Ardea Ergebnisse<\/strong><\/h3>\n<p>With an Honours BSc in biology, Ch\u00e8re Chapman set out for a year in rural Japan as part of a global teaching and cross-cultural exchange program of the Japanese government. Following two years back in Canada for her Master&#8217;s of Health Science in Community Health and Epidemiology from University of Toronto, Ch\u00e8re returned in Asia as an HIV\/AIDS epidemiologist at the Communicable Disease Centre (CDC) in Singapore. Over the next decade, Ch\u00e8re did her MBA at London Business School before returning to Asia once again to establish a consultancy in Singapore and Vietnam developing multi-stakeholder partnerships with international NGOs and Fortune 100 companies. Ch\u00e8re has negotiated complex projects from Papua New Guinea to India to Bangladesh for organizations such as CARE International, Chevron, Visa, and The Clinton Foundation.\u00a0<\/p>\n<p>Ch\u00e8re&#8217;s East Coast Canadian roots eventually pulled her back to Nova Scotia where she is now CEO of Ardea Outcomes, a specialist contract research organization focused on patient-centered outcomes. Ch\u00e8re is a past board member for the University of King&#8217;s College and Touch Sala Bai, a charity fighting human trafficking in Cambodia. Chere is\u00a0currently an associate at Creative Destruction Lab Atlantic, a founder of Sandpiper Ventures, and the chair of ONSIDE, a multi-stakeholder organization driving inclusive innovation-driven entrepreneurship in Eastern Canada.\u00a0\u00a0<\/p>\n<p>Ch\u00e8re lebt mit ihrem Mann Gord, ihren vier verr\u00fcckten Kindern und einem s\u00fc\u00dfen Pandemie-Welpen in Halifax.<\/p>\n\t<h3><strong>Gabi Conecker, MPH<\/strong><\/h3>\n<h3><strong>Pr\u00e4sident und Mitbegr\u00fcnder von Wishes for Elliott, International SCN8A Alliance und DEE-P Connections<\/strong><\/h3>\n<p>Gabi is mom to Elliott, now 10 years old, who struggles with one of the most severe SCN8A mutations. At diagnosis, the family received the one published article on SCN8A in children offering little to no guidance on care, treatment, or prognosis. Gabi founded Wishes for Elliott to fight for better treatment and research for SCN8A families. Even though she was still working full time building maternal\/child health programs in sub-Saharan Africa and caring for a severely medically fragile child, she was inspired to bring the passion and urgency of SCN8A families to the nascent but growing community of SCN8A researchers and clinicians &#8211; and do everything possible to improve understanding for better treatment and outcomes for all SCN8A children.<\/p>\n<p>Sie war 2019 Mitbegr\u00fcnderin von DEE-P Connections, weil sie sich verzweifelt bessere Werkzeuge, Ressourcen und Forschungsergebnisse f\u00fcr die am st\u00e4rksten betroffenen Familien, wie ihre eigene, w\u00fcnschte.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/10\/PXL_20220915_131804965.PORTRAIT-1-169x300.jpg\" alt=\"Gabi Conecker Portrait NEW\" itemprop=\"image\" height=\"300\" width=\"169\" title=\"Gabi Conecker Portrait NEU\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/10\/jayettav2-768x1024-1-225x300.jpeg\" alt=\"jayettav2-768x1024\" itemprop=\"image\" height=\"300\" width=\"225\" title=\"jayettav2-768x1024\" onerror=\"this.style.display='none'\"  \/>\n\t<h3><strong>JayEtta Hecker, MS<\/strong><\/h3>\n<h3><strong>Gesch\u00e4ftsf\u00fchrer und Mitbegr\u00fcnder von Wishes for Elliott, International SCN8A Alliance und DEE-P Connections<\/strong><\/h3>\n<p>JayEtta ist eine \u00d6konomin, die sich w\u00e4hrend ihrer 44-j\u00e4hrigen Karriere bei der Bundesregierung auf unabh\u00e4ngige Analysen der \u00f6ffentlichen Ordnung spezialisiert hat. Sie war in mehreren Bundesbeh\u00f6rden t\u00e4tig, im Wei\u00dfen Haus unter Carter und als leitende Mitarbeiterin in der Forschungsabteilung des Government Accountability Office des Kongresses. Sie trat h\u00e4ufig vor Aussch\u00fcssen des Senats und des Repr\u00e4sentantenhauses auf und legte Beweise f\u00fcr von ihr geleitete Evaluierungen wichtiger Fragen der \u00f6ffentlichen Ordnung vor.<\/p>\n<p>Elliott was her first grandchild and she was an active caregiver and partner in his diagnostic odyssey. She partnered with Gabi, her daughter and Elliott&#8217;s mother, to form Wishes for Elliott to advance SCN8A research and create a lasting legacy for Elliott, who continues to serve as an inspiration for all who know him. She is Co-founder and Executive Director of the International SCN8A Alliance and DEE-P Connections, helping build innovative collaborations to accelerate research and to improve the outcomes of all those struggling with DEEs. <\/p>\n\t<h3><strong>Jenny Downs, BApplSci, MSc, PhD<\/strong><\/h3>\n<h3><strong>Telethon Kids Institute<\/strong><\/h3>\n<p>Dr. Jenny Downs ist Leiterin des Behindertenforschungsprogramms und Co-Leiterin des Kinderbehindertenteams am Telethon Kids Institute in Perth. Ihre aktuellen Programme umfassen die Erforschung seltener Erkrankungen wie das Rett-Syndrom, die CDKL5-Mangelst\u00f6rung, das MECP2-Duplikationssyndrom und das Prader-Willi-Syndrom sowie das Down-Syndrom, Autismus und Zerebralparese, die h\u00e4ufiger auftreten.<\/p>\n<p>Dr Downs led the development of gross motor and hand function measures for Rett syndrome, and a quality of life measure for children with intellectual disability, the Quality of Life Inventory &#8211; Disability. (QI-Disability). She is lead PI for the Australian site of an NIH funded US-Australian study developing and validating outcome measures for the CDKL5 Deficiency Disorder.\u00a0<\/p>\n<p>Ihre Vision ist, dass alle Kinder mit Entwicklungsst\u00f6rungen oder Behinderungen mit geringeren Beeintr\u00e4chtigungen und optimaler Lebensqualit\u00e4t leben und dass Forschungsergebnisse gerecht in der Gesellschaft verteilt werden.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/Jenny-Downs.jpeg\" alt=\"Jenny-Downs\" itemprop=\"image\" height=\"278\" width=\"181\" title=\"Jenny Downs\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/10\/Wojnaroski-professional-headshot-214x300.jpg\" alt=\"Wojnaroski professional headshot\" itemprop=\"image\" height=\"300\" width=\"214\" title=\"Professionelles Portr\u00e4tfoto von Wojnaroski\" onerror=\"this.style.display='none'\"  \/>\n\t<h3><strong>Mary Wojnaroski, PhD<\/strong><\/h3>\n<h3><strong>Nationwide Children&#8217;s Hospital<\/strong><\/h3>\n<p>Mary Wojnaroski, PhD is a licensed clinical psychologist at Nationwide Children&#8217;s Hospital in Columbus, Ohio and an Assistant Professor of Pediatrics at The Ohio State University.\u00a0 She provides assessment and treatment of children and young adults with neurodevelopmental disabilities, including autism, ADHD, and cognitive delay.\u00a0 She has further specialization in assessment and treatment of children with neurodevelopmental conditions and medical conditions, especially epilepsy.\u00a0\u00a0<\/p>\n<p>Dr. Wojnaroski&#8217;s research and clinical interests have focused on early assessment and diagnosis of autism and other neurodevelopmental disabilities in children with epilepsy, developmental and behavioral assessment for children with severe to profound developmental disabilities, and psychological and behavioral consultation for children with developmental disabilities during hospital admission. \u00a0 Her career has been dedicated to improving developmental and behavioral care for individuals with neurodevelopmental disabilities and medical conditions, including creating an inpatient consultation\/liaison service designed to direct treatment after discharge, increase access to developmental evaluation for families with psychosocial barriers, and increase children&#8217;s participation in required medical procedures.<\/p>\n\t<h3><strong>Natasha Ludwig, PhD<\/strong><\/h3>\n<h3><strong>Neuropsychologe<\/strong><\/h3>\n<p>Dr. Natasha Ludwig received her bachelor&#8217;s degree in Neuroscience from Union College and her master&#8217;s and doctoral degree in Clinical Psychology with emphasis on neuropsychology and cognitive neuroscience from Georgia State University. Dr. Ludwig completed an APA-accredited internship in neuropsychology rehabilitation\/pediatric psychology and a postdoctoral fellowship in pediatric neuropsychology at Kennedy Krieger Institute\/Johns Hopkins School of Medicine.<\/p>\n<p>Dr. Ludwig kam 2019 zur Abteilung f\u00fcr Neuropsychologie am Kennedy Krieger Institute und ist Assistenzprofessor f\u00fcr Psychiatrie und Verhaltenswissenschaften an der medizinischen Fakult\u00e4t der Johns Hopkins University. Klinisch f\u00fchrt Dr. Ludwig neuropsychologische Untersuchungen f\u00fcr Kinder mit einer Vielzahl von medizinischen und neurologischen Entwicklungsst\u00f6rungen von der Geburt bis zum Erwachsenenalter durch, haupts\u00e4chlich in der Klinik f\u00fcr angeborene\/genetische Erkrankungen und der Rehabilitationsklinik f\u00fcr Epilepsie und Hirnverletzungen.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/Natasha-Ludwig.jpeg\" alt=\"Natasha-Ludwig\" itemprop=\"image\" height=\"225\" width=\"225\" title=\"Natasha-Ludwig\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/01\/Gunes-230x300.jpg\" alt=\"Gunes\" itemprop=\"image\" height=\"300\" width=\"230\" title=\"G\u00fcnes\" onerror=\"this.style.display='none'\"  \/>\n\t<h3>Gunes Sevinc, PHD<br \/>\nForschungsleiter, Ardea Outcomes<\/h3>\n<p>Gunes Sevinc has a multidisciplinary background with training and research experience in basic and clinical sciences. After obtaining her BSc degree in Psychology and her MSc degree in Mental Health Sciences, she pursued a career in clinical research as a psychologist, conducting in-person and remote assessments. She then earned her PhD degree in Neuroscience from Istanbul University and continued her career with a postdoctoral research fellowship at the Massachusetts General Hospital &amp; Harvard Medical School Department of Psychiatry. Upon the completion of this fellowship, she joined Ardea Outcomes as a Research Manager, where she is leading the clinical research operations team, and advancing the science of goal attainment scaling through steering the company&#8217;s internal research program and strategy.<\/p>\n\t<h3>Rebecca Hommer, EdD<\/h3>\n<h3>University of Maryland &#8211; Connections Beyond Sight &amp;amp; Sound<br \/>\nDas DeafBlind-Projekt von Maryland und DC<\/h3>\n<p>Dr. Rebecca Hommer unterrichtet sehbehinderte Sch\u00fcler, ist Orientierungsmobilit\u00e4tsspezialistin und unterrichtet taubblinde Sch\u00fcler. Sie erwarb ihren Doktortitel in P\u00e4dagogik an der North Central University und ihren Master of Education an der University of Pittsburgh, der University of Maryland und der University of Utah. Sie hat sehbezogene Zertifikate von der Salus University und der University of Utah erhalten.<\/p>\nDr. Hommer joined the University of Maryland&#8217;s DeafBlind Project, Connections Beyond Sight &amp;amp; Sound in 2018 as an Education Specialist. Through her role as Education Specialist, Dr. Hommer provides assessments, evidence-based interventions, and academic support for students with dual sensory loss. In addition to providing support to students with deafblindness, she assesses students with cortical\/cerebral visual impairment and assists teams with developing interventions that support the student&#8217;s visual access to their educational materials as well as their academic, community, and<br \/>\nh\u00e4usliche Umgebungen.\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/01\/rebecca-217x300.jpg\" alt=\"rebecca\" itemprop=\"image\" height=\"300\" width=\"217\" title=\"rebecca\" onerror=\"this.style.display='none'\"  \/>","protected":false},"excerpt":{"rendered":"<p>Researcher Bios Anne Berg, PhD Northwestern Feinberg School of Medicine, Neurology The focus of Anne&#8217;s research for over 30 years has been the &#8220;natural&#8221; history of pediatric epilepsy with a&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":2827,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-4705","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.5) - 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