{"id":2859,"date":"2020-10-21T19:40:24","date_gmt":"2020-10-22T02:40:24","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?p=2859"},"modified":"2021-08-16T14:09:36","modified_gmt":"2021-08-16T21:09:36","slug":"the-abcs-of-clinical-trials-part-2-what-every-rare-disease-family-should-know","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/de_at\/2020\/10\/21\/the-abcs-of-clinical-trials-part-2-what-every-rare-disease-family-should-know\/","title":{"rendered":"Das ABC klinischer Studien Teil 2 \u2013 Was jede Familie mit seltenen Krankheiten wissen sollte"},"content":{"rendered":"<p class=\"wp-block-paragraph\">This is a recording of the webinar &#8220;The ABC\u2019s of Clinical Trials: Part 2 &#8211; What Every Rare Family Should Know,&#8221; which was held on October 21st, 2020.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Our Caregiver Voice was:<br>Mery Oman, mother to a child who has an SCN2A Disorder. She is also a Board member of the FamilieSCN2A Foundation.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Unsere Diskussionsteilnehmer waren:<br>Steven L. Roberds, PhD &#8211; Chief Scientific Officer at the TS Alliance. Steve has a PhD in Pharmacology and significant experience working on clinical trials from both the pharmaceutical and patient advocacy group perspective.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Carolyn McMicken, PhD &#8211; Director, Medical Science Liaisons at Neurocrine Biosciences. Carolyn is a neuropsychologist by training with extensive experience in clinical trials and rare epilepsy<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P - Clinical Trials Part 2 - What Every Rare Family Should Know\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/qkQxAjzSio8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>","protected":false},"excerpt":{"rendered":"<p>This is a recording of the webinar &#8220;The ABC\u2019s of Clinical Trials: Part 2 &#8211; What Every Rare Family Should Know,&#8221; which was held on October 21st, 2020. Our Caregiver&hellip;<\/p>","protected":false},"author":4,"featured_media":2863,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1066,1021,1024,1025],"tags":[1067,1068,1029,1026],"class_list":["post-2859","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-clinical-trials","category-research","category-video","category-webinar","tag-clinical-trials","tag-research","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>The ABCs of Clinical Trials Part 2 \u2013 What Every Rare Disease Family Should Know - DEE-P Information Resource Center<\/title>\n<meta name=\"description\" content=\"The ABCs of Clinical Trials Part 2 \u2013 What Every Rare Disease Family Should Know - DEE-P Information Resource Center\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/de_at\/2020\/10\/21\/the-abcs-of-clinical-trials-part-2-what-every-rare-disease-family-should-know\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The ABCs of Clinical Trials Part 2 \u2013 What Every Rare Disease Family Should Know\" \/>\n<meta property=\"og:description\" content=\"This is a recording of the webinar &quot;The ABC\u2019s of Clinical Trials: Part 2 - What Every Rare Family Should Know,&quot; which was held on October 21st, 2020. 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