{"id":5263,"date":"2023-10-13T08:38:22","date_gmt":"2023-10-13T15:38:22","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5263"},"modified":"2024-05-03T15:01:26","modified_gmt":"2024-05-03T22:01:26","slug":"undiagnosed-discussion","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/de_at\/2023\/10\/13\/undiagnosed-discussion\/","title":{"rendered":"Nicht diagnostiziert"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Diese DEE-P-Diskussion wurde am 13. September 2023 aufgezeichnet.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">W\u00e4hrend dieser DEE-P-Diskussion untersuchen wir die Erfahrung, ein Kind mit einer nicht diagnostizierten seltenen Epilepsieerkrankung zu haben. Wir diskutieren verschiedene M\u00f6glichkeiten, mit dieser Erfahrung umzugehen, die Herausforderungen und die Vorteile von Verbindung und Gemeinschaft. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Zu unserem Panel geh\u00f6ren M\u00fctter von Kindern mit nicht diagnostizierten seltenen Epilepsieerkrankungen (Kelsey Mccoy, Jennifer Spina und Mariah Gillaspie) und es wird von Anne Thompson Heller moderiert \u2013 einer Rare Mom und Vorstandsmitglied von DEE-P Connections.<\/p>\n\n\n\n<iframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/oCa7HwFmx7k?si=-aMHu0jRctBoBUfO\" title=\"YouTube-Videoplayer\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\n\n\n\n<p class=\"wp-block-paragraph\">Weitere Ressourcen, die speziell auf Familien mit seltener Epilepsie\/DEE zugeschnitten sind, finden Sie auf unserer&nbsp;<a href=\"https:\/\/deepconnections.net\/resource-center-main\/\">Ressourcen-Center<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Diese DEE-P-Diskussion wurde am 13. September 2023 aufgezeichnet. W\u00e4hrend dieser DEE-P-Diskussion untersuchen wir die Erfahrung, ein Kind mit einer nicht diagnostizierten seltenen Epilepsieerkrankung zu haben. Wir diskutieren verschiedene\u2026<\/p>","protected":false},"author":4,"featured_media":5216,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1022,1035,1036,1023,1104,1116,1021,1,1024,1025],"tags":[1029,1026],"class_list":["post-5263","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-care","category-developmental-encephalopathies","category-epileptic-encephalopathies","category-family","category-family-planning","category-participating-research","category-research","category-uncategorized","category-video","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.4) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Programs to Help Care for Our Complex Kids<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center On this webinar, you will hear from a range of complex care providers and families who use them.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/de_at\/2023\/10\/13\/undiagnosed-discussion\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Undiagnosed\" \/>\n<meta property=\"og:description\" content=\"This DEE-P Discussion was recorded on September 13, 2023. 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