{"id":4370,"date":"2022-05-25T20:29:20","date_gmt":"2022-05-26T03:29:20","guid":{"rendered":"https:\/\/deepconnections.net\/?post_type=tribe_events&#038;p=4370"},"modified":"2022-06-13T14:31:00","modified_gmt":"2022-06-13T21:31:00","slug":"sudep-research","status":"publish","type":"tribe_events","link":"https:\/\/deepconnections.net\/de_at\/event\/sudep-research\/","title":{"rendered":"CURE-Epilepsie-Webinar \u2013 Vortrag \u00fcber SUDEP: Die Gemeinschaft f\u00fcr seltene Epilepsie mit den neuesten Forschungsergebnissen ausstatten"},"content":{"rendered":"<p class=\"wp-block-paragraph\">In Partnerschaft mit DEE-P Connections und Partners Against Mortality in Epilepsy (PAME)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n<div  class=\"tribe-events-schedule tribe-clearfix\" >\n\t<p class=\"tribe-events-schedule__datetime\">\n\t\t<span class=\"tribe-events-schedule__date tribe-events-schedule__date--start\">\n\t\t\t14. Juni 2022\t\t<\/span>\n\n\t\t\t\t\t<span class=\"tribe-events-schedule__separator tribe-events-schedule__separator--date\">\n\t\t\t\t @ \t\t\t<\/span>\n\t\t\t<span class=\"tribe-events-schedule__time tribe-events-schedule__time--start\">\n\t\t\t\t4:00 a.m.\t\t\t<\/span>\n\t\t\n\t\t\t\t\t\t\t\t\t<span class=\"tribe-events-schedule__separator tribe-events-schedule__separator--time\">\n\t\t\t\t\t &#8211; \t\t\t\t<\/span>\n\t\t\t\n\t\t\t\t\t\t\t<span class=\"tribe-events-schedule__time tribe-events-schedule__time--end\">\n\t\t\t\t\t5:00 p.m.\t\t\t\t<\/span>\n\t\t\t\n\t\t\t\t\t\t<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-fe48e5de wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-vivid-purple-background-color has-text-color has-background\" href=\"https:\/\/us02web.zoom.us\/webinar\/register\/4416523705717\/WN_r85qGxb9RDOr4ma-LHWmwg\" target=\"_blank\" rel=\"noreferrer noopener\">REGISTRIEREN<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Der pl\u00f6tzliche unerwartete Tod bei Epilepsie (SUDEP) betrifft etwa 1 von 1.000 Menschen mit Epilepsie, unabh\u00e4ngig vom Alter.&nbsp;<small><em><sup>1,2<\/sup><\/em><\/small>. W\u00e4hrend mangelnde Anfallskontrolle und Anfallsschwere die h\u00e4ufigsten Gr\u00fcnde f\u00fcr ein erh\u00f6htes SUDEP-Risiko sind, gibt es auch Bedenken, dass bestimmte genetische Mutationen das SUDEP-Risiko erh\u00f6hen k\u00f6nnen.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-full\"><img decoding=\"async\" width=\"500\" height=\"261\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/05\/CURE-rare-sudep.jpeg\" alt=\"\" class=\"wp-image-4371\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/05\/CURE-rare-sudep.jpeg 500w, https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/05\/CURE-rare-sudep-300x157.jpeg 300w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/><\/figure><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">In diesem Webinar wird unser Wissen \u00fcber SUDEP, insbesondere in der seltenen Epilepsie-Community, sowie dar\u00fcber diskutiert, was Eltern und Betreuer von Kindern mit seltenen Epilepsien \u00fcber die Pr\u00e4vention von SUDEP und M\u00f6glichkeiten zur Risikominderung wissen sollten. Die Referenten werden Ideen dazu austauschen, wie man mit \u00c4rzten \u00fcber SUDEP sprechen kann, sowohl aus der Perspektive eines Arztes als auch eines Elternteils eines Kindes, bei dem eine seltene genetische Epilepsie diagnostiziert wurde, das sich \u00fcber SUDEP informiert und Schritte unternommen hat, um das SUDEP-Risiko f\u00fcr sein Kind zu verringern. Die Teilnehmer haben die M\u00f6glichkeit, allen Referenten Fragen zu stellen. Das Webinar wird auch eine Diskussion \u00fcber die neuesten Fortschritte in der grundlegenden und klinischen Epilepsieforschung mit Schwerpunkt auf dem SUDEP-Risiko und der Pr\u00e4vention beinhalten.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Am Ende der Pr\u00e4sentation gibt es eine Live-Fragerunde. Sie k\u00f6nnen Fragen im Voraus einreichen&nbsp;<a href=\"mailto:%20research@cureepilepsy.org\">Hier<\/a>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Der professionelle Sprecher dieses Webinars ist Dr. Sam Lhatoo \u2013 ein Neurologe und Neurophysiologe mit Erfahrung in der medizinischen und chirurgischen Behandlung hartn\u00e4ckiger Epilepsie. Er ist seit 2006 Direktor erstklassiger Epilepsiezentren in Gro\u00dfbritannien und den USA und seit seiner Einf\u00fchrung im Jahr 2010 Dozent f\u00fcr den International Stereo EEG-Kurs. Dr. Lhatoo ist Leiter der Task Force f\u00fcr Big Data bei Epilepsie der International League Against Epilepsy. Er interessiert sich besonders f\u00fcr die Epidemiologie, Ph\u00e4nomenologie und Pathogenese von SUDEP und hat in seinen ver\u00f6ffentlichten Arbeiten potenzielle Biomarker von SUDEP beschrieben.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aligncenter\"><a class=\"wp-block-button__link has-white-color has-vivid-purple-background-color has-text-color has-background\" href=\"https:\/\/us02web.zoom.us\/webinar\/register\/4416523705717\/WN_r85qGxb9RDOr4ma-LHWmwg\" target=\"_blank\" rel=\"noreferrer noopener\">REGISTRIEREN<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><small><em><sup>1<\/sup>&nbsp;Sveinsson O, Andersson T, Carlsson S, Tomson T. Die H\u00e4ufigkeit von SUDEP: Eine landesweite bev\u00f6lkerungsbasierte Kohortenstudie. Neurology. 2017 Jul11;89(2):170-177.<\/em><\/small><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><small><em><sup>2<\/sup>&nbsp;Keller AE, Whitney R, Li SA, Pollanen MS, Donner EJ. Die H\u00e4ufigkeit pl\u00f6tzlicher unerwarteter Todesf\u00e4lle bei Epilepsie ist bei Kindern \u00e4hnlich wie bei Erwachsenen. 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