{"id":5013,"date":"2023-05-02T14:20:16","date_gmt":"2023-05-02T21:20:16","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=5013"},"modified":"2023-05-02T15:11:07","modified_gmt":"2023-05-02T22:11:07","slug":"managing-your-data","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/es_ar\/research-participating-and-supporting\/managing-your-data\/","title":{"rendered":"Administrar sus datos"},"content":{"rendered":"<h1>\n\t\t\t\tRescue Medication\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/Data.jpg\" alt=\"Data\" itemprop=\"image\" height=\"516\" width=\"841\" title=\"Datos\" onerror=\"this.style.display='none'\"  \/>\n\t<h1>\n\t\t\t\tSeminarios web\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Webinars.jpg\" alt=\"Webinars\" itemprop=\"image\" title=\"Seminarios web\" onerror=\"this.style.display='none'\"  \/>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2023\/05\/02\/learn-how-to-maximize-your-data-with-the-crid\/\" content=\"Learn How To Maximize Your Data with The CRID\" \/><meta itemprop=\"datePublished\" content=\"2023-05-02\" \/><meta itemprop=\"dateModified\" content=\"2023-05-02\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/04\/crid.png\" \/><meta itemprop=\"width\" content=\"1013\" \/><meta itemprop=\"height\" content=\"293\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/es_ar\/2023\/05\/02\/learn-how-to-maximize-your-data-with-the-crid\/\" title=\"Aprenda c\u00f3mo maximizar sus datos con el CRID\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/04\/crid.png\" alt=\"crid\" itemprop=\"image\" data-no-lazy=\"1\" height=\"293\" width=\"1013\" title=\"crid\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tAprenda c\u00f3mo maximizar sus datos con el CRID\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t<!-- .pp-content-posts -->\n\t<h1>\n\t\t\t\tPresentaciones\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Presentations.png\" alt=\"Presentation Materials\" itemprop=\"image\" title=\"Presentaciones\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/DEEP-CRID-Webinar-Slides.pptx\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/CRID-Cover.jpg\" alt=\"CRID Cover\" itemprop=\"image\" height=\"857\" width=\"1561\" title=\"Cubierta CRID\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n\t<h1>\n\t\t\t\tHerramientas y recursos\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Tools-2.png\" alt=\"online tools\" itemprop=\"image\" title=\"Herramientas 2\" onerror=\"this.style.display='none'\"  \/>\n\t<p><a href=\"https:\/\/thecrid.org\/\">El sitio web del CRID<\/a><\/p>\n\t<h1>\n\t\t\t\tArt\u00edculos\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Articles.png\" alt=\"Articles\" itemprop=\"image\" title=\"Art\u00edculos\" onerror=\"this.style.display='none'\"  \/>\n\t<p><a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S2352914822001186?via%3Dihub\">CRID &#8211; A Unique, Universal, Patient-Generated Identifier to Facilitate Collaborative Rare Disease Clinical Research;<\/a> Gerry Nesbitt y Patricia Murphy<\/p>\n<p><a href=\"https:\/\/ojrd.biomedcentral.com\/articles\/10.1186\/s13023-021-01806-4\">Los silos de datos est\u00e1n socavando el desarrollo de f\u00e1rmacos y fallando a los pacientes con enfermedades raras;<\/a> Nathan Denton y otros; Revista Orphanet de Enfermedades Raras<\/p>\n<p>Si tienes un art\u00edculo sugerido, <a href=\"https:\/\/deepconnections.net\/es_ar\/contact\/\" target=\"_blank\" rel=\"noopener\">por favor cont\u00e1ctenos<\/a>.<\/p>\n\t<h1>\n\t\t\t\tGracias a nuestros patrocinadores y contribuyentes\n\t\t\t<\/h1>\n\t<h1>\n\t\t\t\tBuscar en el centro de recursos\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\/es_ar\/\" 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Collaborative&hellip;<\/p>","protected":false},"author":4,"featured_media":5014,"parent":2269,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-5013","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- 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