{"id":2269,"date":"2020-09-07T08:05:45","date_gmt":"2020-09-07T15:05:45","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2269"},"modified":"2023-05-02T14:25:14","modified_gmt":"2023-05-02T21:25:14","slug":"research-participating-and-supporting","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/","title":{"rendered":"Investigaci\u00f3n y promoci\u00f3n"},"content":{"rendered":"<h1>\n\t\t\t\tM\u00e9dico\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DNA-Color.jpg\" alt=\"DNA Color - Strands\" itemprop=\"image\" title=\"Color del ADN\" onerror=\"this.style.display='none'\"  \/>\n\t<p>Como saben muy bien las familias de DEE, el tratamiento de la mayor\u00eda de nuestras enfermedades raras est\u00e1 plagado de importantes \u00e1reas de incertidumbre m\u00e9dica. Reconociendo que la \u00fanica esperanza real para lograr mejoras sustanciales en la calidad de vida de nuestros ni\u00f1os es la investigaci\u00f3n. La categor\u00eda de investigaci\u00f3n cubre una variedad de temas que incluyen esfuerzos de mejora de la calidad, ensayos cl\u00ednicos, prioridades de investigaci\u00f3n nacionales y bancos de cerebros y tejidos.<\/p>\n\t<h1>\n\t\t\t\tBuscar en el centro de recursos\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\/es_cl\/\" method=\"get\" data-trp-original-action=\"https:\/\/deepconnections.net\">\n\t\t\t\t\t\t<input placeholder=\"Escriba el t\u00e9rmino de b\u00fasqueda que le interese\" type=\"search\" name=\"s\" title=\"Buscar\" value=\"\"\/>\n\t\t\t\t\t\t\t\t\t<button type=\"submit\">\n\t\t\t\t\tBuscar\n\t\t\t\t\t\t\t\t\t\t\t\t<\/button>\n\t\t\t<input type=\"hidden\" name=\"trp-form-language\" value=\"es_cl\"\/><\/form>\n\t<h1>\n\t\t\t\tCategor\u00edas de investigaci\u00f3n\n\t\t\t<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Tissue.jpg\" alt=\"Brain Tissue Research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/brain-tissue-donation\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tDonaci\u00f3n de tejido cerebral\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Clinical-Research.jpg\" alt=\"clinical trial\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/clinical-trials\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tEnsayos cl\u00ednicos\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" alt=\"CTE 2\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/curing-the-epilepsies\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tCurar las epilepsias\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Genetic-Markers.jpg\" alt=\"gentic modifiers\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/genetic-modifiers-and-biomarkers\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tGenetic Modifiers, Biomarkers &#8211; Coming Soon\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" alt=\"ruler\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/outcomes\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tEl proyecto Inchstone\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/Data.jpg\" alt=\"Data\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/managing-your-data\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tAdministrar sus datos\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/research-participating-and-supporting\/participating-in-research\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Leer m\u00e1s\">\n\t\t\t\t\t\t\tLeer m\u00e1s\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tParticipando en la investigaci\u00f3n\t\t<\/h3>\n\t<h1>\n\t\t\t\tEntradas de investigaci\u00f3n m\u00e1s recientes\n\t\t\t<\/h1>\n\t\t<p>Sorry, we couldn&#8217;t find any posts. Please try a different search.<\/p>\n\t\t\t\t<form aria-label=\"Buscar\" method=\"get\" role=\"search\" action=\"https:\/\/deepconnections.net\/es_cl\/\" title=\"Type and press Enter to search.\" data-trp-original-action=\"https:\/\/deepconnections.net\/\">\n\t<input aria-label=\"Buscar\" type=\"search\" name=\"s\" placeholder=\"Buscar\"  value=\"\" onfocus=\"if (this.value === 'Search') { this.value = ''; }\" onblur=\"if (this.value === '') this.value='Search';\" \/>\n<input type=\"hidden\" name=\"trp-form-language\" value=\"es_cl\"\/><\/form>\n\t<h1>\n\t\t\t\tMost Recent Webinars &#038; Videos\n\t\t\t<\/h1>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/21\/outcomes-workshop-1-copy\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\" \/><meta itemprop=\"datePublished\" content=\"2021-11-21\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler2.jpeg\" \/><meta itemprop=\"width\" content=\"1500\" \/><meta itemprop=\"height\" content=\"724\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/2021\/11\/21\/outcomes-workshop-1-copy\/\" title=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler2-1024x494.jpeg\" alt=\"ruler2\" itemprop=\"image\" data-no-lazy=\"1\" height=\"494\" width=\"1024\" title=\"gobernante2\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRECORDING &#8211; Inchstone Outcomes Workshop 2\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/05\/outcomes-workshop-1\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 1\" \/><meta itemprop=\"datePublished\" content=\"2021-11-05\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" \/><meta itemprop=\"width\" content=\"750\" \/><meta itemprop=\"height\" content=\"563\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta 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\/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u00bfQu\u00e9 puedes hacer T\u00da para ayudar a curar las epilepsias?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/06\/29\/how-effective-is-your-epilepsy-care\/\" content=\"How Effective is Your Epilepsy Care?\" \/><meta itemprop=\"datePublished\" content=\"2021-06-29\" \/><meta itemprop=\"dateModified\" content=\"2021-08-16\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/1\/\" \/><meta itemprop=\"name\" content=\"Matt\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" \/><meta itemprop=\"width\" content=\"640\" \/><meta itemprop=\"height\" content=\"426\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta itemprop=\"userInteractionCount\" content=\"0\" \/>\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/es_cl\/2021\/06\/29\/how-effective-is-your-epilepsy-care\/\" title=\"\u00bfQu\u00e9 tan eficaz es su atenci\u00f3n para la epilepsia?\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\" itemprop=\"image\" data-no-lazy=\"1\" height=\"426\" width=\"640\" title=\"Investigaci\u00f3n participante\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u00bfQu\u00e9 tan eficaz es su atenci\u00f3n para la epilepsia?\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t\t\t<ul class='page-numbers'>\n\t<li>1<\/li>\n\t<li><a href=\"https:\/\/deepconnections.net\/es_cl\/paged-2\/2\/?page_id=2269&#038;fl_builder\">2<\/a><\/li>\n\t<li><a 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Recognizing that the only real hope for&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-2269","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Research &amp; Advocacy - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/es_cl\/ru_ru\/research-participating-and-supporting\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Research &amp; Advocacy\" \/>\n<meta property=\"og:description\" content=\"Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. 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