{"id":2798,"date":"2020-07-30T16:31:07","date_gmt":"2020-07-30T23:31:07","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?p=2798"},"modified":"2023-04-07T20:01:01","modified_gmt":"2023-04-08T03:01:01","slug":"saving-our-telehealth","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/es_cr\/2020\/07\/30\/saving-our-telehealth\/","title":{"rendered":"Salvando nuestra telesalud para las familias DEE"},"content":{"rendered":"<p>Esta es una grabaci\u00f3n del seminario web &quot;Salvando nuestra telesalud&quot;, que se llev\u00f3 a cabo el 20 de julio de 2020.<\/p>\n<p>Para las familias que tienen problemas para salir de casa con sus hijos m\u00e9dicamente fr\u00e1giles, la telesalud se ha convertido en un recurso incre\u00edble frente al COVID-19. En esta sesi\u00f3n, escuchamos a un cuidador contar c\u00f3mo la telesalud ha sido un recurso incre\u00edble para ella y su hijo con DEE y toda su familia.<\/p>\n<p>Tambi\u00e9n escuchamos a tres expertos sobre c\u00f3mo la telesalud estuvo r\u00e1pidamente disponible al inicio de la COVID-19 y c\u00f3mo corre el riesgo de desaparecer si las familias no hablan. \u00a1Aprenda a actuar!<\/p>\n<h3>NUESTROS PANELISTAS FUERON:<\/h3>\n<p><strong>Susan Herman, MD<\/strong>, es director del Programa de Epilepsia y profesor del Departamento de Neurolog\u00eda de la <a href=\"https:\/\/www.barrowneuro.org\/get-to-know-barrow\/person\/susan-herman-md\/\">Instituto Neurol\u00f3gico Barrow<\/a> y es co-investigador principal del <a href=\"https:\/\/www.epilepsy.com\/make-difference\/epilepsy-learning-healthcare-system-elhs\">Sistema de atenci\u00f3n sanitaria para el aprendizaje de la epilepsia<\/a>, una red colaborativa de familias, miembros de la comunidad, m\u00e9dicos, investigadores y l\u00edderes de atenci\u00f3n m\u00e9dica.<\/p>\n<p><strong>Neil Busis, MD,<\/strong> es profesor cl\u00ednico en el Departamento de Neurolog\u00eda de la Facultad de Medicina Grossman de la Universidad de Nueva York. Tambi\u00e9n es presidente asociado de Tecnolog\u00eda e Innovaci\u00f3n en el Departamento de Neurolog\u00eda y director cl\u00ednico de Asuntos Cl\u00ednicos del Programa de Telesalud en <a href=\"https:\/\/nyulangone.org\/doctors\/1407852999\/neil-busis\">Salud Langone de la Universidad de Nueva York<\/a>.<\/p>\n<p><strong>Jessica Nickrand, PhD<\/strong>, es el Gerente de Programas en <a href=\"https:\/\/www.childneurologyfoundation.org\/getting-to-know-the-cnf-team-jessica-nickrand\/\">Fundaci\u00f3n de Neurolog\u00eda Infantil<\/a> y lidera la iniciativa de telesalud de CNF. Anteriormente trabaj\u00f3 en la Academia Estadounidense de Neurolog\u00eda trabajando con neur\u00f3logos de adultos.<\/p>\n<p><strong>Kacie Craig<\/strong> es madre de 4,5 a\u00f1os <a href=\"https:\/\/www.facebook.com\/groups\/318835731810357\/\">estela<\/a>, que tiene epilepsia relacionada con SCN8A y requiere atenci\u00f3n m\u00e9dica compleja.<\/p>\n<p><strong>JayEtta Hecker<\/strong>, Director Ejecutivo de <a href=\"https:\/\/www.wishesforelliott.com\/\">Deseos para Elliott<\/a> &amp; DEE-P Connections, moder\u00f3 esta sesi\u00f3n. Sali\u00f3 de su retiro para convertirse en una de las mayores defensoras y defensoras de Elliott (de Wishes for Elliott). Todo lo que aprendi\u00f3 durante sus 44 a\u00f1os de carrera como defensora de una variedad de pol\u00edticas p\u00fablicas s\u00f3lidas, eficientes y sostenibles se est\u00e1 aplicando ahora para impulsar el avance de las epilepsias pedi\u00e1tricas raras.<\/p>\n<p><iframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/tIY4cIxeI2E?start=22\" title=\"reproductor de v\u00eddeos de youtube\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>","protected":false},"excerpt":{"rendered":"<p>This is a recording of the webinar &#8220;Saving Our Telehealth,&#8221; which was held on July 20th, 2020. For families who have trouble leaving the house with their medically fragile children,&hellip;<\/p>","protected":false},"author":4,"featured_media":2699,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1022,1023,1061,1024,1025],"tags":[1058,1063,1062,1029,1026],"class_list":["post-2798","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-care","category-family","category-telemedicine","category-video","category-webinar","tag-family","tag-telehealth","tag-telemedicine","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Saving Our Telehealth for DEE Families<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center - In this webinar, we hear about how telehealth has been a great resource for DEE families.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/es_cr\/2020\/07\/30\/saving-our-telehealth\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Saving Our Telehealth for DEE Families\" \/>\n<meta property=\"og:description\" content=\"This is a recording of the webinar &quot;Saving Our Telehealth,&quot; which was held on July 20th, 2020. 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