{"id":3285,"date":"2021-07-26T15:43:13","date_gmt":"2021-07-26T22:43:13","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3285"},"modified":"2024-04-10T11:27:47","modified_gmt":"2024-04-10T18:27:47","slug":"request-form-for-parent-or-sibling-kits","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/es_do\/request-form-for-parent-or-sibling-kits\/","title":{"rendered":"Formulario de solicitud de kits para padres y hermanos"},"content":{"rendered":"<h1>\n\t\t\t\tM\u00e9dico\n\t\t\t<\/h1>\n\t<p>&nbsp;<\/p>\n<p>DEE-P Connections se complace en poder distribuir kits para padres y hermanos a familias con un ni\u00f1o con una epilepsia poco com\u00fan.\u00a0<\/p>\n<p>Families must be a member of the DEE-P Family Community &#8211; Sign up HERE [link to DEE-P Sign Up on Home Page or within in the form below. For updates on new programming, &#8220;Like&#8221; our <a href=\"https:\/\/www.facebook.com\/DEEPConnectionsEpilepsy\" target=\"_blank\" rel=\"noopener\">Conexiones p\u00fablicas DEE-P<\/a> p\u00e1gina.<\/p>\n<p>Se anima a las familias con Dravet, Dup15Q, Doose, CDKL5, LGS, PCDH19, SLC6A1 y TSC a presentar su solicitud a trav\u00e9s de esas organizaciones, que tambi\u00e9n son distribuidores autorizados. Los enlaces est\u00e1n disponibles <a href=\"https:\/\/vipsibling.com\/parents-caregivers\/support-kits\" target=\"_blank\" rel=\"noopener\">AQU\u00cd<\/a>.<\/p>\n<p>For now, kits are only available to families in the U.S. but many of the contents are available for download <a href=\"https:\/\/vipsibling.com\/parents-caregivers\/tools-resources\" target=\"_blank\" rel=\"noopener\">AQU\u00cd<\/a><\/p>\n<p>Requests are bundled for shipping twice a month &#8211; so we apologize that there may be a lag between entering your request and receiving your kits.<\/p>\n<p>&nbsp;<\/p>\n<p>Este programa est\u00e1 patrocinado por:<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/10\/image001-300x66.png\" alt=\"\" width=\"300\" height=\"66\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h2>\n\t\tM\u00e1s sobre el contenido del kit\n\t<\/h2>\n\t<h3>\n\t\t\t\t<a href=\"https:\/\/vipsibling.com\/parents-caregivers\/tools-resources\" title=\"Kit para padres y cuidadores\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\tParents &#038; Caregivers Kit\n\t\t\t\t<\/a>\n\t\t\t<\/h3>\n\t\t\t<p>The Parents &amp; Caregivers Kit was created based on research, guidance and inspiration from patient organizations in the rare epilepsy community, health care health providers and mental health experts specializing in rare seizure disorders. We hope these can offer support and resources for families who are impacted by rare epilepsies. Here&#8217;s a peek at what&#8217;s included in this kit-by-mail:<\/p><ul><li>Gu\u00eda para padres sobre c\u00f3mo apoyar a hermanos con epilepsia rara<\/li><li>Notas de amor para compartir con su(s) hijo(s)<\/li><li>Formulario Mi familia vive con una epilepsia poco com\u00fan (disponible para descargar solo en\u00a0<a href=\"https:\/\/test-vipsibling.pantheonsite.io\/parents-caregivers\/tools-resources\/\" target=\"_blank\" rel=\"noopener\">Herramientas y recursos<\/a>)<\/li><li>Formulario de plan de incautaci\u00f3n para hermanos VIP (disponible para descargar solo en\u00a0<a href=\"https:\/\/test-vipsibling.pantheonsite.io\/parents-caregivers\/tools-resources\/\" target=\"_blank\" rel=\"noopener\">Herramientas y recursos | Hermanos VIP de la UCB<\/a>)<\/li><\/ul>\t\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/07\/VIP_Sibling_Parent_Caregiver_kit-1024x682-1.jpg\" alt=\"VIP_Sibling_Parent_Caregiver_kit-1024x682\" itemprop=\"image\" height=\"682\" width=\"1024\" title=\"VIP_Sibling_Parent_Caregiver_kit-1024x682\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/07\/VIP_Sibling_Kit_Ages4-10_final-1024x682-1.jpg\" alt=\"VIP_Sibling_Kit_Ages4-10_final-1024x682\" itemprop=\"image\" title=\"VIP_Sibling_Kit_Ages4-10_final-1024x682\" onerror=\"this.style.display='none'\"  \/>\n\t<h3>\n\t\t\t\tKits para hermanos VIP, edades 4-10\n\t\t\t<\/h3>\n\t\t\t<p>Learning about a rare epilepsy isn&#8217;t easy for younger siblings. When their brother or sister has a seizure or other emergency, they may feel scared or worried. This special VIP Sibling Kit was created to assure them having a wide range of emotions is okay and helps celebrate how important and loved they are. Here&#8217;s a peek at what&#8217;s included in this kit-by-mail:<\/p><ul><li><em>Mi hermano es especial<\/em>\u00a0Libro<\/li><li>Diario para colorear<\/li><li>Pegatinas de humor<\/li><li>Rockin&#8217; it \/ Rough Day Wristband<\/li><li>Estrella de peluche<\/li><\/ul>\t\n\t<h3>\n\t\t\t\tKits para hermanos VIP, edades 11-18\n\t\t\t<\/h3>\n\t\t\t<p>Your older VIP siblings may feel like nobody else their age has to cope with the kinds of challenges they do having a brother or sister with a rare epilepsy. Designed to reassure your VIP sibling that their thoughts and feelings are valid, this special VIP Sibling Kit also provides encouragement and insight from other rare epilepsy siblings. Here&#8217;s a peek at what&#8217;s included in this kit-by-mail:<\/p><ul><li>Diario<\/li><li>Rockin&#8217; it \/ Rough Day Wristband<\/li><li>colgador de puerta<\/li><\/ul>\t\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/07\/VIP_Sibling_Kit_Ages11-18_final-1024x682-1.jpg\" alt=\"VIP_Sibling_Kit_Ages11-18_final-1024x682\" itemprop=\"image\" title=\"VIP_Sibling_Kit_Ages11-18_final-1024x682\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/09\/PXL_20210904_171220203.MP_-225x300.jpg\" alt=\"PXL_20210904_171220203.MP\" itemprop=\"image\" height=\"300\" width=\"225\" title=\"PXL_20210904_171220203.MP\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t<h3><em>&#8220;Wow, they send these out to siblings like me? I must be doing a really good job.&#8221;<\/em><br \/>&#8211; Zachary, VIP sib to Yanni<\/h3>\t\t\n\t<h3>\n\t\t\t\tWhat families are saying about the kits&#8230;\n\t\t\t<\/h3>\n\t\t\t<h3 dir=\"auto\">\u00a0<\/h3><h3 dir=\"auto\">\u00a0<\/h3><h3 dir=\"auto\">Christal, Zachary and Yanni&#8217;s mom, shares:<\/h3><h3 dir=\"auto\">\u00a0<\/h3><h3 dir=\"auto\">&#8220;Thank you for making Zachary feel special. He has already used his bracelet to let me know that he was feeling a little down and needed my attention. We read the story and he can relate so well to the sibling in the book. The coping strategies are also really helpful.\u00a0\u00a0<\/h3><p>\u00a0<\/p><h3 dir=\"auto\">I think his smile says it all :).&#8221;<\/h3>\t\n<h2>\n\t\t\u00a1Pide tus kits aqu\u00ed!\n\t<\/h2>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/09\/Kids.jpg\" alt=\"Kids\" itemprop=\"image\" title=\"Ni\u00f1os\" onerror=\"this.style.display='none'\"  \/>\n\t<h1>\n\t\t\t\tDeclaracion de privacidad\n\t\t\t<\/h1>\n\t\t\t<p>Reconocemos que su privacidad es importante. Nuestra declaraci\u00f3n de privacidad describe los tipos de informaci\u00f3n personal que recibimos y recopilamos cuando utiliza este sitio web, as\u00ed como algunas de las medidas que tomamos para proteger la informaci\u00f3n. <a href=\"https:\/\/deepconnections.net\/es_do\/privacy-policy\/\" target=\"_blank\" rel=\"noopener\">Por favor lea m\u00e1s aqu\u00ed.<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Medical &nbsp; DEE-P Connections is pleased to be able to distribute both parent and sibling kits to families with a child with a rare epilepsy.\u00a0 Families must be a member&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-3285","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Request Form for Parent &amp; 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