{"id":4705,"date":"2022-09-29T16:44:41","date_gmt":"2022-09-29T23:44:41","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=4705"},"modified":"2024-01-05T12:02:33","modified_gmt":"2024-01-05T20:02:33","slug":"inchstone-researcher-bios","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/es_mx\/inchstone-project\/inchstone-researcher-bios\/","title":{"rendered":"Biograf\u00edas del investigador de Inchstone"},"content":{"rendered":"<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/12\/Inchstone-Horiz-FullColor.jpg\" alt=\"The Inchstone Project\" itemprop=\"image\" height=\"287\" width=\"1407\" title=\"Inchstone-Horiz-FullColor\" onerror=\"this.style.display='none'\"  \/>\n<h1>\n\t\tBiograf\u00edas del investigador\n\t<\/h1>\n\t<h3><strong>Ana Berg, doctora<\/strong><\/h3>\n<h3><strong>Facultad de Medicina de Northwestern Feinberg, Neurolog\u00eda<\/strong><\/h3>\n<p>The focus of Anne&#8217;s research for over 30 years has been the &#8220;natural&#8221; history of pediatric epilepsy with a specific emphasis on seizure outcomes, developmental and cognitive consequences the impact on quality of life, families and the implications for care and care models. In 2007, she played a key role in focusing NINDS research priorities on the cognitive, developmental, and behavioral co-morbidities of epilepsy and organized sessions at the AES meeting to investigate and identify research opportunities for improving patients&#8217; outcomes. In 2013, she Co-Chaired the NINDS-sponsored Curing Epilepsies conference &amp; organized and led the workshop, &#8220;Priorities in Pediatric Epilepsy Research: Improving Children&#8217;s Futures Today.&#8221; Anne was one of the initial founders of the Pediatric Epilepsy Research Consortium (PERC) which has grown to over 40 centers in the US.\u00a0\u00a0<\/p>\n<p>Actualmente se centra en el desarrollo de recursos y medios para facilitar la recopilaci\u00f3n r\u00e1pida de informaci\u00f3n de alto valor sobre las capacidades y deficiencias en una amplia gama de dominios afectados por trastornos del desarrollo cerebral y epilepsias en las primeras etapas de la vida. La voz de los padres y cuidadores a la hora de identificar las prioridades de investigaci\u00f3n y dirigir las investigaciones es un componente central de estos esfuerzos. Una fuerza impulsora detr\u00e1s de mis esfuerzos de investigaci\u00f3n es desarrollar y utilizar evidencia para transformar las actitudes y enfoques hacia la epilepsia en las primeras etapas de la vida de uno in\u00fatil a uno en el que el diagn\u00f3stico de precisi\u00f3n puede conducir a terapias de precisi\u00f3n y, en \u00faltima instancia, a mejores resultados para el individuo afectado, la familia. y la sociedad en su conjunto.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/Anne-Berg.jpg\" alt=\"Anne-Berg\" itemprop=\"image\" height=\"249\" width=\"202\" title=\"Anne Berg\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/chere-chapman.jpeg\" alt=\"chere-chapman\" itemprop=\"image\" height=\"251\" width=\"201\" title=\"chere-chapman\" onerror=\"this.style.display='none'\"  \/>\n\t<h3><strong>Chere AT Chapman, MBA, MHSc<\/strong><\/h3>\n<h3><strong>Resultados del CEO Ardea<\/strong><\/h3>\n<p>With an Honours BSc in biology, Ch\u00e8re Chapman set out for a year in rural Japan as part of a global teaching and cross-cultural exchange program of the Japanese government. Following two years back in Canada for her Master&#8217;s of Health Science in Community Health and Epidemiology from University of Toronto, Ch\u00e8re returned in Asia as an HIV\/AIDS epidemiologist at the Communicable Disease Centre (CDC) in Singapore. Over the next decade, Ch\u00e8re did her MBA at London Business School before returning to Asia once again to establish a consultancy in Singapore and Vietnam developing multi-stakeholder partnerships with international NGOs and Fortune 100 companies. Ch\u00e8re has negotiated complex projects from Papua New Guinea to India to Bangladesh for organizations such as CARE International, Chevron, Visa, and The Clinton Foundation.\u00a0<\/p>\n<p>Ch\u00e8re&#8217;s East Coast Canadian roots eventually pulled her back to Nova Scotia where she is now CEO of Ardea Outcomes, a specialist contract research organization focused on patient-centered outcomes. Ch\u00e8re is a past board member for the University of King&#8217;s College and Touch Sala Bai, a charity fighting human trafficking in Cambodia. Chere is\u00a0currently an associate at Creative Destruction Lab Atlantic, a founder of Sandpiper Ventures, and the chair of ONSIDE, a multi-stakeholder organization driving inclusive innovation-driven entrepreneurship in Eastern Canada.\u00a0\u00a0<\/p>\n<p>Ch\u00e8re vive en Halifax con su esposo Gord, sus cuatro hijos locos y un adorable cachorro pand\u00e9mico.<\/p>\n\t<h3><strong>Gabi Conecker<\/strong><\/h3>\n<h3><strong>Presidente y cofundador de Wishes for Elliott, International SCN8A Alliance y DEE-P Connections<\/strong><\/h3>\n<p>Gabi is mom to Elliott, now 10 years old, who struggles with one of the most severe SCN8A mutations. At diagnosis, the family received the one published article on SCN8A in children offering little to no guidance on care, treatment, or prognosis. Gabi founded Wishes for Elliott to fight for better treatment and research for SCN8A families. Even though she was still working full time building maternal\/child health programs in sub-Saharan Africa and caring for a severely medically fragile child, she was inspired to bring the passion and urgency of SCN8A families to the nascent but growing community of SCN8A researchers and clinicians &#8211; and do everything possible to improve understanding for better treatment and outcomes for all SCN8A children.<\/p>\n<p>Cofund\u00f3 DEE-P Connections en 2019, desesperada por encontrar mejores herramientas, recursos e investigaciones para las familias m\u00e1s afectadas, como la suya.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/10\/PXL_20220915_131804965.PORTRAIT-1-169x300.jpg\" alt=\"Gabi Conecker Portrait NEW\" itemprop=\"image\" height=\"300\" width=\"169\" title=\"Retrato de Gabi Conecker NUEVO\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/10\/jayettav2-768x1024-1-225x300.jpeg\" alt=\"jayettav2-768x1024\" itemprop=\"image\" height=\"300\" width=\"225\" title=\"jayettav2-768x1024\" onerror=\"this.style.display='none'\"  \/>\n\t<h3><strong>JayEtta Hecker, MS<\/strong><\/h3>\n<h3><strong>Director ejecutivo y cofundador de Wishes for Elliott, International SCN8A Alliance y DEE-P Connections<\/strong><\/h3>\n<p>JayEtta es un economista que se especializ\u00f3 en an\u00e1lisis independientes de pol\u00edticas p\u00fablicas durante una carrera de 44 a\u00f1os en el gobierno federal. Trabaj\u00f3 en m\u00faltiples agencias federales, en la Casa Blanca de Carter y como alta ejecutiva dentro del brazo de investigaci\u00f3n del Congreso de la Oficina de Responsabilidad Gubernamental. Fue testigo frecuente ante los comit\u00e9s del Senado y la C\u00e1mara de Representantes proporcionando evidencia de las evaluaciones que dirigi\u00f3 sobre importantes cuestiones de pol\u00edtica p\u00fablica.<\/p>\n<p>Elliott was her first grandchild and she was an active caregiver and partner in his diagnostic odyssey. She partnered with Gabi, her daughter and Elliott&#8217;s mother, to form Wishes for Elliott to advance SCN8A research and create a lasting legacy for Elliott, who continues to serve as an inspiration for all who know him. She is Co-founder and Executive Director of the International SCN8A Alliance and DEE-P Connections, helping build innovative collaborations to accelerate research and to improve the outcomes of all those struggling with DEEs. <\/p>\n\t<h3><strong>Jenny Downs, Licenciatura en Ciencias Aplicadas, Maestr\u00eda en Ciencias, PhD<\/strong><\/h3>\n<h3><strong>Instituto Telet\u00f3n Infantil<\/strong><\/h3>\n<p>La Dra. Jenny Downs es jefa del programa de investigaci\u00f3n sobre discapacidad y codirectora del equipo de discapacidad infantil en el Telethon Kids Institute de Perth. Sus programas actuales incluyen investigaci\u00f3n sobre trastornos raros, incluido el s\u00edndrome de Rett, el trastorno por deficiencia de CDKL5, el s\u00edndrome de duplicaci\u00f3n de MECP2 y el s\u00edndrome de Prader-Willi, as\u00ed como el s\u00edndrome de Down, el autismo y la par\u00e1lisis cerebral, que ocurren con mayor frecuencia.<\/p>\n<p>Dr Downs led the development of gross motor and hand function measures for Rett syndrome, and a quality of life measure for children with intellectual disability, the Quality of Life Inventory &#8211; Disability. (QI-Disability). She is lead PI for the Australian site of an NIH funded US-Australian study developing and validating outcome measures for the CDKL5 Deficiency Disorder.\u00a0<\/p>\n<p>Su visi\u00f3n es que todos los ni\u00f1os con vulnerabilidad o discapacidad del desarrollo vivan con discapacidades reducidas y una calidad de vida \u00f3ptima, y que los resultados de las investigaciones se distribuyan equitativamente en toda la comunidad.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/Jenny-Downs.jpeg\" alt=\"Jenny-Downs\" itemprop=\"image\" height=\"278\" width=\"181\" title=\"Jenny Downs\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/10\/Wojnaroski-professional-headshot-214x300.jpg\" alt=\"Wojnaroski professional headshot\" itemprop=\"image\" height=\"300\" width=\"214\" title=\"Foto de cabeza profesional de Wojnaroski\" onerror=\"this.style.display='none'\"  \/>\n\t<h3><strong>Mar\u00eda Wojnaroski, PhD<\/strong><\/h3>\n<h3><strong>Nationwide Children&#8217;s Hospital<\/strong><\/h3>\n<p>Mary Wojnaroski, PhD is a licensed clinical psychologist at Nationwide Children&#8217;s Hospital in Columbus, Ohio and an Assistant Professor of Pediatrics at The Ohio State University.\u00a0 She provides assessment and treatment of children and young adults with neurodevelopmental disabilities, including autism, ADHD, and cognitive delay.\u00a0 She has further specialization in assessment and treatment of children with neurodevelopmental conditions and medical conditions, especially epilepsy.\u00a0\u00a0<\/p>\n<p>Dr. Wojnaroski&#8217;s research and clinical interests have focused on early assessment and diagnosis of autism and other neurodevelopmental disabilities in children with epilepsy, developmental and behavioral assessment for children with severe to profound developmental disabilities, and psychological and behavioral consultation for children with developmental disabilities during hospital admission. \u00a0 Her career has been dedicated to improving developmental and behavioral care for individuals with neurodevelopmental disabilities and medical conditions, including creating an inpatient consultation\/liaison service designed to direct treatment after discharge, increase access to developmental evaluation for families with psychosocial barriers, and increase children&#8217;s participation in required medical procedures.<\/p>\n\t<h3><strong>Natasha Ludwig, PhD<\/strong><\/h3>\n<h3><strong>Neuropsic\u00f3logo<\/strong><\/h3>\n<p>Dr. Natasha Ludwig received her bachelor&#8217;s degree in Neuroscience from Union College and her master&#8217;s and doctoral degree in Clinical Psychology with emphasis on neuropsychology and cognitive neuroscience from Georgia State University. Dr. Ludwig completed an APA-accredited internship in neuropsychology rehabilitation\/pediatric psychology and a postdoctoral fellowship in pediatric neuropsychology at Kennedy Krieger Institute\/Johns Hopkins School of Medicine.<\/p>\n<p>El Dr. Ludwig se uni\u00f3 al Departamento de Neuropsicolog\u00eda del Instituto Kennedy Krieger en 2019 y es profesor asistente de Psiquiatr\u00eda y Ciencias del Comportamiento en la Facultad de Medicina de la Universidad Johns Hopkins. Cl\u00ednicamente, el Dr. Ludwig brinda evaluaciones neuropsicol\u00f3gicas para ni\u00f1os con una amplia variedad de condiciones m\u00e9dicas y de desarrollo neurol\u00f3gico desde el nacimiento hasta la edad adulta, principalmente dentro de la Cl\u00ednica de Condiciones Cong\u00e9nitas\/Gen\u00e9ticas y la Cl\u00ednica de Rehabilitaci\u00f3n de Epilepsia y Lesiones Cerebrales.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/09\/Natasha-Ludwig.jpeg\" alt=\"Natasha-Ludwig\" itemprop=\"image\" height=\"225\" width=\"225\" title=\"Natasha-Ludwig\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/01\/Gunes-230x300.jpg\" alt=\"Gunes\" itemprop=\"image\" height=\"300\" width=\"230\" title=\"armas\" onerror=\"this.style.display='none'\"  \/>\n\t<h3>Gunes Sevinc, PHD<br \/>\nGerente de investigaci\u00f3n, Ardea Outcomes<\/h3>\n<p>Gunes Sevinc has a multidisciplinary background with training and research experience in basic and clinical sciences. After obtaining her BSc degree in Psychology and her MSc degree in Mental Health Sciences, she pursued a career in clinical research as a psychologist, conducting in-person and remote assessments. She then earned her PhD degree in Neuroscience from Istanbul University and continued her career with a postdoctoral research fellowship at the Massachusetts General Hospital &amp; Harvard Medical School Department of Psychiatry. Upon the completion of this fellowship, she joined Ardea Outcomes as a Research Manager, where she is leading the clinical research operations team, and advancing the science of goal attainment scaling through steering the company&#8217;s internal research program and strategy.<\/p>\n\t<h3>Rebecca Hommer, doctora en educaci\u00f3n<\/h3>\n<h3>University of Maryland &#8211; Connections Beyond Sight &amp;amp; Sound<br \/>\nEl Proyecto Sordociego de Maryland y DC<\/h3>\n<p>La Dra. Rebecca Hommer es maestra de estudiantes con discapacidad visual, especialista en movilidad de orientaci\u00f3n y maestra de estudiantes con sordoceguera. Obtuvo su Doctorado en Educaci\u00f3n de la North Central University y su Maestr\u00eda en Educaci\u00f3n de la Universidad de Pittsburgh, la Universidad de Maryland y la Universidad de Utah. Ha recibido certificaciones relacionadas con la visi\u00f3n de la Universidad de Salus y la Universidad de Utah.<\/p>\nDr. Hommer joined the University of Maryland&#8217;s DeafBlind Project, Connections Beyond Sight &amp;amp; Sound in 2018 as an Education Specialist. Through her role as Education Specialist, Dr. Hommer provides assessments, evidence-based interventions, and academic support for students with dual sensory loss. In addition to providing support to students with deafblindness, she assesses students with cortical\/cerebral visual impairment and assists teams with developing interventions that support the student&#8217;s visual access to their educational materials as well as their academic, community, and<br \/>\nambientes hogare\u00f1os.\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/01\/rebecca-217x300.jpg\" alt=\"rebecca\" itemprop=\"image\" height=\"300\" width=\"217\" title=\"rebeca\" onerror=\"this.style.display='none'\"  \/>","protected":false},"excerpt":{"rendered":"<p>Researcher Bios Anne Berg, PhD Northwestern Feinberg School of Medicine, Neurology The focus of Anne&#8217;s research for over 30 years has been the &#8220;natural&#8221; history of pediatric epilepsy with a&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":2827,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-4705","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - 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