{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/es_ve\/dee-p-connections\/","title":{"rendered":"DEE-P Connections"},"content":{"rendered":"

\n\t\t\tJuntos podemos hacer esto.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tVisite el centro de recursos\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

DEE-P Connections se ha convertido en un recurso cada vez m\u00e1s completo para familias cuyos ni\u00f1os se ven afectados por encefalopat\u00edas del desarrollo y\/o epil\u00e9pticas o DEE. Estas son epilepsias dif\u00edciles de tratar que se acompa\u00f1an de retrasos graves en el desarrollo y\/o regresi\u00f3n. <\/p>\n

Nuestros 45+ socios<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

Nuestros seminarios web y cada vez mayor Centro de Recursos<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

Por favor aseg\u00farese de seguirnos en Facebook<\/a> y\/o Instagram<\/a> para estar al tanto de todo lo que tenemos para ofrecer.<\/p>\n

Si tiene ideas sobre recursos que deber\u00edamos agregar o seminarios web que deber\u00edamos realizar, comun\u00edquese con nosotros. aqu\u00ed<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tPor favor \u00fanete a nosotros\n\t\t<\/h2>\n\t\t\t

Reunir a familias y socios defensores para ayudar a los ni\u00f1os con EED a vivir una vida mejor.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tPr\u00f3ximos seminarios web\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0Seminario web introductorio<\/h2>\n\t\t\t\t