{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/fr\/dee-p-connections\/","title":{"rendered":"DEE-P Connections"},"content":{"rendered":"

\n\t\t\tEnsemble, nous pouvons y parvenir.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tVisitez le centre de ressources\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

DEE-P Connections est devenu une ressource de plus en plus compl\u00e8te pour les familles dont les enfants sont touch\u00e9s par des enc\u00e9phalopathies d\u00e9veloppementales et\/ou \u00e9pileptiques ou DEE. Il s'agit d'\u00e9pilepsies difficiles \u00e0 traiter qui s'accompagnent de retards de d\u00e9veloppement s\u00e9v\u00e8res et\/ou de r\u00e9gression. <\/p>\n

Nos 45+ les partenaires<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

Nos webinaires et en constante \u00e9volution Centre de ressources<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

Assurez-vous de nous suivre sur Facebook<\/a> et\/ou Instagram<\/a> pour rester au courant de tout ce que nous avons \u00e0 offrir.<\/p>\n

Si vous avez des id\u00e9es sur les ressources que nous devrions ajouter ou sur les webinaires que nous devrions organiser, veuillez nous contacter ici<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tS'il vous pla\u00eet rejoignez-nous\n\t\t<\/h2>\n\t\t\t

R\u00e9unir les familles et les partenaires de d\u00e9fense pour aider les enfants atteints de DEE \u00e0 vivre leur meilleure vie.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tWebinaires \u00e0 venir\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0Webinaire d'introduction<\/h2>\n\t\t\t\t