{"id":4913,"date":"2023-01-03T11:27:24","date_gmt":"2023-01-03T19:27:24","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=4913"},"modified":"2023-01-28T14:37:37","modified_gmt":"2023-01-28T22:37:37","slug":"covid-19-dee-research","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/gl_es\/covid-19-dee-research\/","title":{"rendered":"COVID-19 DEE Research"},"content":{"rendered":"<h2>\n\t\tCOVID-19 DEE Research\n\t<\/h2>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/01\/DEE-P-COVID19-1-150x150.png\" alt=\"DEE-P COVID19 (1)\" itemprop=\"image\" height=\"150\" width=\"150\" title=\"DEE-P COVID19 (1)\" onerror=\"this.style.display='none'\"  \/>\n\t<p>While there has been a lot of research on COVID-19 in the general population, none of this work has been in the DEE space. Therefore, we created a survey to better understand how families who have loved ones with DEEs have navigated decisions about whether to vaccinate their child with a DEE against COVID-19, document any side effects and better understand the severity of any COVID-19 infections for those with rare epilepsies.<\/p>\n\t<p>Our team is made up of amazing DEE researchers and clinicians including:<\/p>\n<p>Daniel Freedman DO: Assistant Professor in the Department of Neurology at Dell Medical School and a board-certified pediatric neurologist in UT Health Austin Pediatric Neurosciences at Dell Children&#8217;s in Texas<\/p>\n<p>Tina Sosa MD, Msc: Assistant Professor in the Division of Pediatric Hospital Medicine and Associate Chief Quality Officer at Golisano Children&#8217;s Hospital in NY<\/p>\n<p>Anne Berg PhD:\u00a0Adjunct Professor of Neurology &#8211; Epilepsy\/Clinical Neurophysiology and COMBINEDBrain<\/p>\n<p>Richard M. Carpiano PhD, MPH: Professor of Public Policy &#8211; University of California Riverside<\/p>\n\t<p>This is a recording of the webinar, &#8220;What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?&#8221;, which was held on July 21st, 2022.<\/p>\n<p>Tes curiosidade pola seguridade das vacinas contra a COVID-19 para os menores de 5 anos con epilepsias raras?<\/p>\n<p>Non est\u00e1 seguro de se vacinar o seu fillo cunha epilepsia rara contra a COVID-19?<\/p>\n<p>Listen in to hear from an incredible panel of experts to get your questions answered about COVID-19 vaccines and infections.<\/p>\n\t<iframe title=\"DEE-P: What are we learning about COVID-19 and the DEEs?\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/Rv842nb2LB0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe>\n<h2>\n\t\tAES Conference 2022\n\t<\/h2>\n\t<p>Our late-breaking abstract on our COVID-19 work was accepted by the American Epilepsy Society to present at their 2022 conference! Click on the poster to make it bigger!<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/01\/PXL_20221205_192516831-scaled.jpg\" alt=\"PXL_20221205_192516831\" itemprop=\"image\" height=\"1440\" width=\"2560\" title=\"PXL_20221205_192516831\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/12\/final-DEE-P-COVID-2022-AES-Poster-1.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/01\/COVID-Poster.jpg\" alt=\"COVID Poster\" itemprop=\"image\" height=\"1665\" width=\"2225\" title=\"COVID Poster\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n<h2>\n\t\tMain Poster Insights\n\t<\/h2>\n\t<p>COVID-19 Illness:<\/p>\n<ul>\n<li>51% of respondents reported mild COVID cases, 37% moderate, and 12% severe<\/li>\n<li>80% of DEE children were unvaccinated when infected<\/li>\n<li>Fever, cough, and congestion were the most common symptoms<\/li>\n<li>13% required hospitalization, the majority of which were in the ICU, 1 death was reported<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>COVID-19 Vaccine:<\/p>\n<ul>\n<li>60% of respondents vaccinated or intended to vaccinate their DEE child<\/li>\n<li>71% had no side effects<\/li>\n<li>Reported side effects included fever, lethargy, soreness, and pain<\/li>\n<li>Increased seizures in 7 of 22 respondents<\/li>\n<li>Most side effects lasted 24-48 hours<\/li>\n<li>The majority of respondents got information about the vaccine from their healthcare provider. The second most popular source was medical journals, and the third was the CDC.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>Pandemic Stressors (Listed from Highest % of Families Affected to Lowest %):<\/p>\n<ul>\n<li>Stress<\/li>\n<li>Exhaustion<\/li>\n<li>Social Isolation<\/li>\n<li>Loss of Nursing<\/li>\n<li>Financial Strain<\/li>\n<li>Loss of Income<\/li>\n<li>Housing Insecurity<\/li>\n<\/ul>\n<h2>\n\t\tComing Soon: Recap of COVID-19 Research for Community\n\t<\/h2>","protected":false},"excerpt":{"rendered":"<p>COVID-19 DEE Research While there has been a lot of research on COVID-19 in the general population, none of this work has been in the DEE space. Therefore, we created&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-4913","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - 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