{"id":5263,"date":"2023-10-13T08:38:22","date_gmt":"2023-10-13T15:38:22","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5263"},"modified":"2024-05-03T15:01:26","modified_gmt":"2024-05-03T22:01:26","slug":"undiagnosed-discussion","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/gl_es\/2023\/10\/13\/undiagnosed-discussion\/","title":{"rendered":"Sen diagnosticar"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Esta discusi\u00f3n DEE-P gravouse o 13 de setembro de 2023.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Durante esta discusi\u00f3n DEE-P, exploramos a experiencia de ter un fillo cun trastorno de epilepsia rara non diagnosticado. Discutimos diferentes formas de navegar pola experiencia, os retos e os beneficios da conexi\u00f3n e a comunidade. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">O noso panel incl\u00fae nais de nenos con trastornos de epilepsia raras non diagnosticados Kelsey Mccoy, Jennifer Spina, Mariah Gillaspie e est\u00e1 moderado por Anne Thompson Heller, unha nai rara e membro do consello de DEE-P Connections.<\/p>\n\n\n\n<iframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/oCa7HwFmx7k?si=-aMHu0jRctBoBUfO\" title=\"reprodutor de v\u00eddeo de YouTube\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\n\n\n\n<p class=\"wp-block-paragraph\">Para atopar m\u00e1is recursos adaptados especialmente \u00e1s familias con epilepsia rara\/DEE, visite o noso&nbsp;<a href=\"https:\/\/deepconnections.net\/gl_es\/resource-center-main\/\">Centro de recursos<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Esta discusi\u00f3n DEE-P gravouse o 13 de setembro de 2023. Durante esta discusi\u00f3n DEE-P, exploramos a experiencia de ter un fillo cun trastorno de epilepsia rara non diagnosticado. Comentamos diferentes...<\/p>","protected":false},"author":4,"featured_media":5216,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1022,1035,1036,1023,1104,1116,1021,1,1024,1025],"tags":[1029,1026],"class_list":["post-5263","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-care","category-developmental-encephalopathies","category-epileptic-encephalopathies","category-family","category-family-planning","category-participating-research","category-research","category-uncategorized","category-video","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Programs to Help Care for Our Complex Kids<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center On this webinar, you will hear from a range of complex care providers and families who use them.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/gl_es\/2023\/10\/13\/undiagnosed-discussion\/\" \/>\n<meta property=\"og:locale\" content=\"gl_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Undiagnosed\" \/>\n<meta property=\"og:description\" content=\"This DEE-P Discussion was recorded on September 13, 2023. 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