{"id":2269,"date":"2020-09-07T08:05:45","date_gmt":"2020-09-07T15:05:45","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2269"},"modified":"2023-05-02T14:25:14","modified_gmt":"2023-05-02T21:25:14","slug":"research-participating-and-supporting","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/is_is\/research-participating-and-supporting\/","title":{"rendered":"Ranns\u00f3knir og m\u00e1lsv\u00f6rn"},"content":{"rendered":"<h1>\n\t\t\t\tL\u00e6knisfr\u00e6\u00f0ilegt\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DNA-Color.jpg\" alt=\"DNA Color - Strands\" itemprop=\"image\" title=\"DNA litur\" onerror=\"this.style.display='none'\"  \/>\n\t<p>Eins og DEE fj\u00f6lskyldur vita allt of vel, er me\u00f0fer\u00f0 \u00e1 flestum sjaldg\u00e6fum sj\u00fakd\u00f3mum okkar pl\u00e1ga af helstu svi\u00f0um l\u00e6knisfr\u00e6\u00f0ilegrar \u00f3vissu. Vi\u00f0urkenna a\u00f0 eina raunverulega vonin um verulegar umb\u00e6tur \u00e1 l\u00edfsg\u00e6\u00f0um barna okkar eru ranns\u00f3knir. Ranns\u00f3knarflokkurinn n\u00e6r yfir margv\u00edsleg efni, \u00fear \u00e1 me\u00f0al vi\u00f0leitni til a\u00f0 b\u00e6ta g\u00e6\u00f0i, kl\u00edn\u00edskar ranns\u00f3knir, forgangsverkefni \u00ed ranns\u00f3knum \u00e1 landsv\u00edsu og heila- og vefjabanka.<\/p>\n\t<h1>\n\t\t\t\tLeita\u00f0u \u00ed au\u00f0lindami\u00f0st\u00f6\u00f0inni\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\" method=\"get\" data-trp-original-action=\"https:\/\/deepconnections.net\">\n\t\t\t\t\t\t<input placeholder=\"Sl\u00e1\u00f0u inn leitaror\u00f0i\u00f0 sem \u00fe\u00fa hefur \u00e1huga \u00e1\" type=\"search\" name=\"s\" title=\"Leita\" value=\"\"\/>\n\t\t\t\t\t\t\t\t\t<button type=\"submit\">\n\t\t\t\t\tLeita\n\t\t\t\t\t\t\t\t\t\t\t\t<\/button>\n\t\t\t<input type=\"hidden\" name=\"trp-form-language\" value=\"is_is\"\/><\/form>\n\t<h1>\n\t\t\t\tRanns\u00f3knarflokkar\n\t\t\t<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Tissue.jpg\" alt=\"Brain Tissue Research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/research-participating-and-supporting\/brain-tissue-donation\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tHeilavefjagj\u00f6f\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Clinical-Research.jpg\" alt=\"clinical trial\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/research-participating-and-supporting\/clinical-trials\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tKl\u00edn\u00edskar ranns\u00f3knir\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/12\/CTE-2.png\" alt=\"CTE 2\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/research-participating-and-supporting\/curing-the-epilepsies\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tA\u00f0 l\u00e6kna flogaveiki\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Genetic-Markers.jpg\" alt=\"gentic modifiers\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/research-participating-and-supporting\/genetic-modifiers-and-biomarkers\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tGenetic Modifiers, Biomarkers &#8211; Coming Soon\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" alt=\"ruler\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/outcomes\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tInchstone verkefni\u00f0\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/05\/Data.jpg\" alt=\"Data\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/research-participating-and-supporting\/managing-your-data\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tUmsj\u00f3n me\u00f0 g\u00f6gnunum \u00fe\u00ednum\t\t<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Participating-Research.jpg\" alt=\"participating in research\"\/>\n\t\t\t<a href=\"https:\/\/deepconnections.net\/research-participating-and-supporting\/participating-in-research\/\" target=\"_blank\" rel=\"noopener\" role=\"button\" aria-label=\"Lestu meira\">\n\t\t\t\t\t\t\tLestu meira\n\t\t<\/a>\n\t\t\t\t\t\t<h3>\n\t\t\t\t\t\tA\u00f0 taka \u00fe\u00e1tt \u00ed ranns\u00f3knum\t\t<\/h3>\n\t<h1>\n\t\t\t\tN\u00fdjustu ranns\u00f3knarf\u00e6rslur\n\t\t\t<\/h1>\n\t\t<p>Sorry, we couldn&#8217;t find any posts. Please try a different search.<\/p>\n\t\t\t\t<form aria-label=\"Leita\" method=\"get\" role=\"search\" action=\"https:\/\/deepconnections.net\/\" title=\"Type and press Enter to search.\" data-trp-original-action=\"https:\/\/deepconnections.net\/\">\n\t<input aria-label=\"Leita\" type=\"search\" name=\"s\" placeholder=\"Leita\"  value=\"\" onfocus=\"if (this.value === 'Search') { this.value = ''; }\" onblur=\"if (this.value === '') this.value='Search';\" \/>\n<input type=\"hidden\" name=\"trp-form-language\" value=\"is_is\"\/><\/form>\n\t<h1>\n\t\t\t\tMost Recent Webinars &#038; Videos\n\t\t\t<\/h1>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/21\/outcomes-workshop-1-copy\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 2\" \/><meta itemprop=\"datePublished\" content=\"2021-11-21\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" 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itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRECORDING &#8211; Inchstone Outcomes Workshop 2\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/11\/05\/outcomes-workshop-1\/\" content=\"RECORDING &#8211; Inchstone Outcomes Workshop 1\" \/><meta itemprop=\"datePublished\" content=\"2021-11-05\" \/><meta itemprop=\"dateModified\" content=\"2022-01-27\" \/><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"\/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\" \/><meta itemprop=\"name\" content=\"G C\" \/><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/11\/ruler-e1637556308417.jpeg\" \/><meta itemprop=\"width\" content=\"750\" \/><meta itemprop=\"height\" content=\"563\" \/><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\" \/><meta 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Pers\u00f3nuverndaryfirl\u00fdsing okkar l\u00fdsir tegundum pers\u00f3nuuppl\u00fdsinga sem vi\u00f0 f\u00e1um og s\u00f6fnum \u00feegar \u00fe\u00fa notar \u00feessa vefs\u00ed\u00f0u, auk nokkurra a\u00f0ger\u00f0a sem vi\u00f0 t\u00f6kum til a\u00f0 vernda uppl\u00fdsingar. <a href=\"https:\/\/deepconnections.net\/privacy-policy\/\" target=\"_blank\" rel=\"noopener\">Vinsamlegast lestu meira h\u00e9r.<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. Recognizing that the only real hope for&hellip;<\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-2269","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.6) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Research &amp; Advocacy - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/is_is\/ru_ru\/research-participating-and-supporting\/\" \/>\n<meta property=\"og:locale\" content=\"is_IS\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Research &amp; Advocacy\" \/>\n<meta property=\"og:description\" content=\"Medical As DEE families know all too well, treatment of most of our rare diseases is plagued by major areas of medical uncertainties. 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