{"id":3735,"date":"2021-11-05T07:31:52","date_gmt":"2021-11-05T14:31:52","guid":{"rendered":"https:\/\/deepconnections.net\/?p=3735"},"modified":"2024-03-24T21:13:20","modified_gmt":"2024-03-25T04:13:20","slug":"outcomes-workshop-1","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/is_is\/2021\/11\/05\/outcomes-workshop-1\/","title":{"rendered":"UPPTAKA \u2013 MAT ST\u00d6\u00d0U OG T\u00c6KIF\u00c6RI"},"content":{"rendered":"<h2 class=\"wp-block-heading\">ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n\t<iframe title=\"DEE-P COMBINED 1 Assessing Opportunities to Develop Outcome Measures for the Most Severely Affected\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/wxg1NcuWw8M?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\"><\/iframe>\n\t<p>This is a recording of day one of the workshop, held November 4th 2021, and was focused on the topic &#8220;Assessing Status and Opportunities for Developing Outcome Measures for the Most Severely Affected Populations.&#8221;<\/p>\n<p>Major presenters included:<\/p>\n<p>An opening from Gabi Conecker, Co-Founder of the International SCN8A Alliance and DEE-P Connections<\/p>\n<p>Terry Jo Bichell, Founder and Director of COMBINEDBrain<\/p>\n<p>Ardea Goal Attainment Scaling presented by Chere Chapman<\/p>\n<p>Rehabilitation model for severe neurological impacts\/adaptation to severe DEEs presented by Kennedy Krieger<\/p>\n<p>Research on DEE Outcomes by Anne Berg<\/p>\n<p>Telethon Kids work on DEE Outcomes presented by Jenny Downs<\/p>","protected":false},"excerpt":{"rendered":"<p>MAT \u00c1 ST\u00d6\u00d0U OG T\u00c6KIF\u00c6RI TIL A\u00d0 \u00deR\u00d3A \u00daRKOMNAR\u00c1\u00d0STAFANIR FYRIR \u00deA\u00d0 \u00cdB\u00daA SEM \u00deA\u00d0 hefur or\u00f0i\u00f0 fyrir \u00e1hrifum \u00deetta er upptaka af fyrsta degi vinnustofunnar, haldinn 4. n\u00f3vember 2021, og var...<\/p>","protected":false},"author":4,"featured_media":3742,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1114,1115,1117,1088,1021,1,1024,1025],"tags":[1122,1124,1125,1123,1126,1068,1121,1029,1026],"class_list":["post-3735","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-biomarkers","category-outcomes-endpoints","category-promoting-research","category-quality-improvement-epilepsy-care","category-research","category-uncategorized","category-video","category-webinar","tag-dee","tag-measures","tag-outcome-measures","tag-outcomes","tag-promising-research","tag-research","tag-severe-epilepsies","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.3) - 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