{"id":3342,"date":"2021-08-12T16:53:22","date_gmt":"2021-08-12T23:53:22","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3342"},"modified":"2026-02-02T16:20:02","modified_gmt":"2026-02-02T21:20:02","slug":"partner-with-us","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/jv_id\/partner-with-us\/","title":{"rendered":"Partner karo Kita"},"content":{"rendered":"<p>Sambungan DEE-P digunakake kanggo nambah dhukungan kanggo kulawargane bocah-bocah kanthi Encephalopathies Perkembangan &amp; Epilepsi (DEE) sing abot.<\/p>\n<p><strong>Kita kerja kanggo:<\/strong><\/p>\n<ul>\n<li>Nawakake webinar berkala babagan masalah sing cocog karo DEE sing abot<\/li>\n<li>Nyedhiyani pusat sumber daya online gabungan kanggo nyakup webinar sing direkam lan bahan sing paling kasedhiya babagan masalah sing relevan karo DEE sing abot.<\/li>\n<\/ul>\n<h3><strong>Komitmen DEE-P kanggo Kemitraan Kolaboratif<\/strong><\/h3>\n<p>DEE-Project dirancang kanggo nyedhiyakake informasi lan sumber daya menyang komunitas kulawarga sing luwih akeh sing ngatasi DEE sing abot kanthi nggunakake lan nambah inisiatif organisasi epilepsi langka sing wis ana. Upaya kasebut bakal disusun, dikelola lan diatur kanggo nguatake lan ngluwihi dhukungan sing bisa ditindakake dening organisasi sing ana ing komunitas. Wolung klompok advokasi pasien minangka mitra pendiri, kerja bareng kanggo mbangun inisiatif iki, nuduhake sumber daya, keahlian lan pengalaman. Mangga gabung minangka Kolaborasi.<\/p>\n<h3><strong><\/strong><strong>Keuntungan kanggo Kelompok Penyakit Langka sing Ana<\/strong><\/h3>\n<figure><img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/08\/Jake1.jpg\" alt=\"\" width=\"250\" height=\"250\" \/><\/figure>\n<p>This approach seeks to reduce this populations&#8217; isolation by providing a comprehensive and accessible online resource for families across the rare epilepsies who experience many similar challenges. This resource should serve <em>loro-lorone <\/em>organisasi epilepsi langka sing wis nyediakake sawetara informasi banget migunani kanggo kulawargan\u00e9 nanging ing wangun luwih consolidated uga organisasi anyar karo kapasitas luwih winates kanggo nyedhiyani macem-macem sumber daya. Populasi entuk informasi luwih akeh lan luwih apik, sumber daya sing ana luwih akeh disebarake, lan kabutuhan kanggo gaweyan duplikat lan biaya sing padha suda.<\/p>\n<p>Sanajan dudu fokus awal saka upaya iki, upaya kolaborasi iki bisa uga janji kanggo efisiensi lan arah anyar ing riset. Riset cross-cutting babagan fenotipe abot ing kabeh etiologi bisa menehi dalan sing durung diteliti kanggo pangembangan potensial perawatan lan strategi kanggo ningkatake kualitas urip bocah sing paling kena pengaruh ing macem-macem epilepsi langka.<\/p>\n<h3><strong><\/strong><strong><\/strong><strong>Kepiye Organisasi Mitra bisa ndhukung inisiatif iki<\/strong><\/h3>\n<ul>\n<li>Ngumumke sumber DEE-P Connections menyang komunitas sampeyan lan nuduhake kabar babagan webinar sing bakal teka<\/li>\n<li>Share and help identify existing materials your organization has developed for inclusion in the resource center (they will be properly attributed to your organization and linked back to your website or wherever they &#8220;live&#8221;)<\/li>\n<li>Nuduhake wektu staf \/ ahli anggota kanggo ngrancang \/ mimpin webinar<\/li>\n<\/ul>\n<figure><img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/08\/DEE-Plaunchcropped.png\" alt=\"\" width=\"563\" height=\"422\" \/><\/figure>\n<h1><strong><\/strong><strong><\/strong><strong>Mitra Saiki<\/strong><\/h1>\n<p><strong><a href=\"https:\/\/deepconnections.net\/jv_id\/contact\/\" target=\"_blank\" rel=\"noreferrer noopener\">Yen sampeyan kasengsem dadi mitra DEE-P, hubungi!<\/a><\/strong><\/p>\n\t<h2><strong>Kita uga wis mbangun kemitraan strategis kanggo nyedhiyakake kulawarga DEE kanthi macem-macem sumber daya sing migunani!<\/strong><\/h2>","protected":false},"excerpt":{"rendered":"<p>DEE-P Connections is working to enhance support for families of children with severe Developmental &amp; Epileptic Encephalopathies (DEEs) We work to: Offer periodic webinars on issues specifically relevant to severe&hellip;<\/p>","protected":false},"author":4,"featured_media":2262,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-3342","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Partner With Us - DEE-P Information Resource Center<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/jv_id\/partner-with-us\/\" \/>\n<meta property=\"og:locale\" content=\"jv_ID\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Partner With Us\" \/>\n<meta property=\"og:description\" content=\"DEE-P Connections is working to enhance support for families of children with severe Developmental &amp; 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