{"id":5126,"date":"2023-07-09T12:24:42","date_gmt":"2023-07-09T19:24:42","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5126"},"modified":"2025-01-15T18:21:16","modified_gmt":"2025-01-15T23:21:16","slug":"challenges-with-selfcare","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/jv_id\/2023\/07\/09\/challenges-with-selfcare\/","title":{"rendered":"Perawatan Langka &amp; Tantangan karo Self-Care - Diskusi DEE-P"},"content":{"rendered":"<p class=\"wp-block-paragraph\">This webinar was recorded on June 30th, 2023.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br>Join us for this discussion with rare caregivers about the challenges of self-care. People are fond of telling us we need to care for ourselves but that can often seem like a luxury when you are caring for a medically complex child. We will talk about ways that we both struggle with and have learned to care for ourselves and look forward to you sharing your thoughts, challenges and questions as well.<\/p>\n\n\n\n<iframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/fXrhdRLBFx4\" title=\"Pamuter video YouTube\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-2 is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"1024\" data-id=\"5131\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6-1024x1024.png\" alt=\"\" class=\"wp-image-5131\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6-1024x1024.png 1024w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6-300x300.png 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6-100x100.png 100w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6-600x600.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6-150x150.png 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/6.png 1080w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1080\" height=\"1080\" data-id=\"5132\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/5.png\" alt=\"\" class=\"wp-image-5132\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/5.png 1080w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/5-300x300.png 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/5-100x100.png 100w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/5-600x600.png 600w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1080\" height=\"1080\" data-id=\"5133\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4-1024x1024.png\" alt=\"\" class=\"wp-image-5133\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4-1024x1024.png 1024w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4-300x300.png 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4-100x100.png 100w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4-600x600.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4-150x150.png 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/4.png 1080w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"1024\" data-id=\"5134\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3-1024x1024.png\" alt=\"\" class=\"wp-image-5134\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3-1024x1024.png 1024w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3-300x300.png 300w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3-100x100.png 100w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3-600x600.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3-150x150.png 150w, https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/3.png 1080w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Kanggo nemokake sumber daya liyane sing cocog utamane kanggo kulawarga epilepsi \/ DEE sing langka, bukak <a href=\"https:\/\/deepconnections.net\/jv_id\/resource-center-main\/\">Pusat Sumber Daya<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Webinar iki direkam tanggal 30 Juni 2023. Gabung karo diskusi iki karo pengasuh langka babagan tantangan perawatan diri. Wong seneng ngandhani yen kita kudu\u2026<\/p>","protected":false},"author":4,"featured_media":5127,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1100,1023,1,1024,1025],"tags":[1192,1029,1026],"class_list":["post-5126","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-caregiver-self-care","category-family","category-uncategorized","category-video","category-webinar","tag-top-viewed","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Rare Caregiving &amp; Challenges with Self-Care<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center Hear from other DEE rare caregivers who understand how hard self-care can be\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/jv_id\/2023\/07\/09\/challenges-with-selfcare\/\" \/>\n<meta property=\"og:locale\" content=\"jv_ID\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare Caregiving &amp; Challenges with Self-Care - A DEE-P Discussion\" \/>\n<meta property=\"og:description\" content=\"This webinar was recorded on June 30th, 2023. 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