{"id":6901,"date":"2024-09-23T09:41:30","date_gmt":"2024-09-23T16:41:30","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=6901"},"modified":"2025-04-26T04:40:21","modified_gmt":"2025-04-26T08:40:21","slug":"cvi-vision-issues","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ka_ge\/medical-2\/cvi-vision-issues\/","title":{"rendered":"CVI\/\u10ee\u10d4\u10d3\u10d5\u10d8\u10e1 \u10e1\u10d0\u10d9\u10d8\u10d7\u10ee\u10d4\u10d1\u10d8"},"content":{"rendered":"<h1>\n\t\tCVI &#038; DEEs\n\t<\/h1>\n\t<p>Cortical Visual Impairment (CVI) is when the brain has trouble understanding what the eyes see. It&#8217;s not an issue with the eyes, but with how the brain processes visual information.<\/p>\n\t<p>DEE-P is partnering with <strong><a href=\"https:\/\/www.perkins.org\/resource\/understanding-cvi-in-kids-with-epilepsy-and-complex-needs\/\" target=\"_blank\" rel=\"noopener\">CVI Now<\/a>\/Perkins School for the Blind<\/strong>\u00a0to explores the link between Cerebral\/Cortical Visual Impairment (CVI) and developmental and epileptic encephalopathies (DEEs), discussing the visual challenges in complex children with neurological conditions and the critical need for early diagnosis and support.<\/p>\n\t\t<nav>\n\t\t\t<ul>\n\t\t\t\t\t\t\t\t<li data-index=\"0\" tabindex=\"0\">\n\t\t\t\t\t<h5>\n\t\t\t\t\t\t<a href=\"javascript:void(0);\" tabindex=\"-1\">Did you know?\n\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h5>\n\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li data-index=\"1\" tabindex=\"0\">\n\t\t\t\t\t<h5>\n\t\t\t\t\t\t<a href=\"javascript:void(0);\" tabindex=\"-1\">Videos\n\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h5>\n\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li data-index=\"2\" tabindex=\"0\">\n\t\t\t\t\t<h5>\n\t\t\t\t\t\t<a href=\"javascript:void(0);\" tabindex=\"-1\">Tools &#038; Resources\n\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h5>\n\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li data-index=\"3\" tabindex=\"0\">\n\t\t\t\t\t<h5>\n\t\t\t\t\t\t<a href=\"javascript:void(0);\" tabindex=\"-1\">\u10e1\u10e2\u10d0\u10e2\u10d8\u10d4\u10d1\u10d8\n\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h5>\n\t\t\t\t<\/li>\n\t\t\t\t\t\t\t<\/ul>\n\t\t<\/nav>\n\t\t\t\t\t<h4><img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/09\/Elliott-300x300-1.jpg\" alt=\"\" width=\"300\" height=\"300\" \/>CVI Information<\/h4>\n<p>Did you know the leading cause of childhood blindness and low vision (CVI) commonly occurs alongside epilepsy?<\/p>\n<p>If not, you&#8217;re not alone. An estimated 64% of kids with CVI also have epilepsy. While CVI is incredibly common, it&#8217;s also alarmingly underdiagnosed and misunderstood. In fact, most of the 65 million people who live with epilepsy worldwide haven&#8217;t even heard about CVI.<\/p>\n<p>That&#8217;s why our incredible collaborators at <a href=\"https:\/\/www.perkins.org\/cvi-now\/\">CVI Now<\/a> are helping us spread CVI awareness and reach communities where CVI commonly co-occurs. Together, we&#8217;re putting CVI on the map to increase early diagnoses and improve outcomes for every child with CVI.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<h4><img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/09\/cvi-300-300.jpg\" alt=\"\" width=\"300\" height=\"300\" \/>How Do CVI &amp; Epilepsy Interact?<\/h4>\n<p>CVI and epilepsy are both brain-based disorders. With CVI and epilepsy, we&#8217;re seeing overlapping causes and associated conditions. There is a wide range of genetic epilepsies, such as Angelman Syndrome, Rett Syndrome, cyclin-dependent kinase-like 5 deficiency disorder (CDKL5), and SCN8A as well as structural causes of epilepsy such as focal cortical dysplasia, traumatic brain injury (TBI), perinatal brain injury, and polymicrogyria. Additionally, conditions such as Lennox-Gastaut Syndrome (LGS), Dravet Syndrome, and Infantile Spasms are important when considering CVI.<\/p>\n<p>Scroll through our collaborative video series with CVI Now to learn more about CVI in kids with complex needs and the overlap between CVI and developmental epilepsies. Topics include an introduction to CVI, the CVI visual behaviors, compensatory skills, diagnosis, assessment and intervention, and advocacy. We will post new videos periodically, so check back often!<\/p>\n<hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\">\n<h4><img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/12\/anne-why-i-love-deep-cover.jpg\" alt=\"\" width=\"300\" height=\"300\" \/>Jordan&#8217;s Journey With CVI<\/h4>\n<p>A heartfelt look at one mother&#8217;s journey understanding and supporting her daughter&#8217;s life with CVI. <a href=\"https:\/\/deepconnections.net\/ka_ge\/2024\/09\/25\/our-cvi-journey\/\">\u1cac\u10d0\u10d8\u10d9\u10d8\u10d7\u10ee\u10d4 \u10db\u10d4\u10e2\u10d8<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"> <\/a><\/p>\n\t\t\t\t\t<p><iframe title=\"What is CVI? (from CVI Now x DEE-P)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/ty4WmUR8Ew8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Developed and presented by Lacey Smith, TVI, and CVI and epilepsy parent<\/p>\n<p>This video explains Cerebral\/Cortical Visual Impairment (CVI), the leading cause of childhood visual impairment. Unlike typical vision issues, CVI is caused by damage to the brain&#8217;s visual pathways, making it difficult for individuals to process what they see, even with healthy eyes. Children with CVI may struggle with recognizing people, objects, or their surroundings, and may develop non-visual strategies for learning. The video highlights the importance of early identification and intervention, emphasizing that many children with CVI remain undiagnosed.<\/p>\n<p>Learn more about\u00a0<a href=\"https:\/\/www.perkins.org\/epilepsy-and-cvi-explained\/\">CVI and epilepsy<\/a>.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<p><iframe title=\"When to suspect CVI in kids with epilepsy and complex needs (from CVI Now x DEE-P)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/QnMZWNwzAIg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Developed and presented by Lacey Smith, TVI, and CVI and epilepsy parent<\/p>\n<p>In this video we discuss the common signs of CVI include inconsistent vision, difficulty recognizing objects, and struggles in busy environments. We also discuss how a medical evaluation can confirm a CVI diagnosis.<\/p>\n<p>Learn more about\u00a0<a href=\"https:\/\/www.perkins.org\/when-to-suspect-cvi\/\">when to suspect CVI<\/a>\u00a0and explore our growing\u00a0<a href=\"https:\/\/www.perkins.org\/how-to-find-a-doctor-who-is-able-to-evaluate-for-and-diagnose-cvi\/\">Perkins CVI Doctor Directory<\/a>.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<p><iframe title=\"CVI visual behaviors in kids with epilepsy and complex needs (from CVI Now x DEE-P)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/qUD7m0IcZ_k?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Developed and presented by Lacey Smith, TVI, and CVI and epilepsy parent<\/p>\n<p>This video explores the unique visual behaviors associated with CVI and how it affects children. It explains how vision is processed in the brain and how damage to visual pathways impacts perception. Key topics include visual attention, recognition, the effects of color, light, motion, clutter, and the importance of compensatory strategies for better understanding and interaction with the environment.<\/p>\n<p>Learn more about the\u00a0<a href=\"https:\/\/www.perkins.org\/understanding-cvi-visual-behaviors\/\">CVI visual behaviors<\/a>\u00a0\u10d3\u10d0\u00a0<a href=\"https:\/\/www.perkins.org\/our-work\/cvi\/the-perkins-cvi-protocol\/\">The Perkins CVI Protocol<\/a>.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<p><iframe title=\"Compensatory Skills and CVI (from CVI Now x DEE-P)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/uj9bnNRFFOY?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Developed and presented by Lacey Smith, TVI, and CVI and epilepsy parent<\/p>\n<p>This video dives into the importance of compensatory skills for children with Cerebral\/Cortical Visual Impairment (CVI). These strategies-such as auditory cues, tactile exploration, memory, and predictability-help children navigate and understand their surroundings. The video shares real-life examples, including how Savannah, a child with CVI, uses her auditory and tactile senses in daily routines like mealtime and play. It emphasizes how compensatory skills can strengthen learning without diminishing visual development, fostering a multisensory approach to understanding the world.<\/p>\n<p>Learn more about\u00a0<a href=\"https:\/\/www.perkins.org\/cvi-and-the-ecc-focus-on-compensatory-access\">compensatory access to learning<\/a>\u00a0for students with CVI.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<p><iframe title=\"Diagnosing CVI (from CVI Now x DEE-P)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/Ox35PvPeqd8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Developed and presented by Lacey Smith, TVI, and CVI and epilepsy parent<\/p>\n<p>This video outlines the process of diagnosing Cerebral\/Cortical Visual Impairment (CVI) and highlights key considerations for families and providers. Dr. Jem Martin, an optometrist at the NEO Center for Eye Care, explains how CVI is a brain-based visual impairment and describes the comprehensive eye assessments, functional vision evaluations, and diagnostic tools used to distinguish CVI from other visual conditions. The video also explores critical areas of visual processing, such as visual attention, memory, and guided movement, while emphasizing the importance of collaboration with specialists like neurologists, geneticists, and educators to support children with CVI.<\/p>\n<p>Learn more about\u00a0<a href=\"https:\/\/www.perkins.org\/how-is-cvi-diagnosed\/\">how CVI is diagnosed<\/a>\u00a0\u10d3\u10d0\u00a0<a href=\"https:\/\/www.perkins.org\/how-to-find-a-doctor-who-is-able-to-evaluate-for-and-diagnose-cvi\/\">find a doctor<\/a>\u00a0who can evaluate for CVI.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<p><iframe title=\"Next steps after a CVI diagnosis (CVI Now x DEE-P)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/pz534NxM0sc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Developed and presented by Lacey Smith, TVI, and CVI and epilepsy parent<\/p>\n<p>This video provides guidance on the next steps after receiving a Cerebral\/Cortical Visual Impairment (CVI) diagnosis. It emphasizes the importance of advocating for a diagnosis to open doors to necessary resources and support, including state blindness services and vision programs. The video highlights the critical role of Teachers of Students with Visual Impairments (TVIs) in creating individualized education plans, adapting materials, and supporting multisensory learning. Parents and caregivers are encouraged to seek early intervention, request CVI assessments, and build educational plans tailored to their child&#8217;s unique needs. The video also offers tips on collaborating with medical providers and accessing community support.<\/p>\n<p>Learn more what to do\u00a0<a href=\"https:\/\/www.perkins.org\/6-steps-to-take-after-a-cvi-diagnosis\/\">after a CVI diagnosis<\/a>\u00a0and learn about\u00a0<a href=\"https:\/\/www.perkins.org\/getting-started-with-cvi-assessments\/\">CVI assessments<\/a>.<br \/><hr style=\"border: none; border-top: 1px solid #cccccc; margin: 1em 0;\"><\/p>\n<h5>More Videos on CVI<\/h5>\n<p><blockquote class=\"wp-embedded-content\" data-secret=\"cm7R66njLZ\"><a href=\"https:\/\/deepconnections.net\/ka_ge\/2023\/11\/16\/cortical-visual-impairment\/\">Cortical Visual Impairment (CVI) and the Developmental and Epileptic Encephalopathies (DEEs)<\/a><\/blockquote><iframe class=\"wp-embedded-content\" sandbox=\"allow-scripts\" security=\"restricted\" style=\"position: absolute; visibility: hidden;\" title=\"&#8220;Cortical Visual Impairment (CVI) and the Developmental and Epileptic Encephalopathies (DEEs)&#8221; &#8212; DEE-P Information Resource Center\" src=\"https:\/\/deepconnections.net\/2023\/11\/16\/cortical-visual-impairment\/embed\/#?secret=UHR9XYUNfU#?secret=cm7R66njLZ\" data-secret=\"cm7R66njLZ\" width=\"500\" height=\"282\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\"><\/iframe><\/p>\n\t\t\t\t\t<p><a href=\"https:\/\/www.buzzsprout.com\/354881\/8115894\">Babies with CVI<\/a>, Change Makers: A Podcast from APH, American Printing House<\/p>\n<p><a href=\"http:\/\/marylanddb.org\/\">Connections Beyond Sight and Sound<\/a>, Maryland &amp; DC Deaf-Blind Project<\/p>\n<p><a href=\"https:\/\/www.nei.nih.gov\/learn-about-eye-health\/eye-conditions-and-diseases\/cerebral-visual-impairment-cvi\" target=\"_blank\" rel=\"noopener\">Cortical Visual Impairment<\/a>, NIH, National Eye Institute<\/p>\n<p><a href=\"https:\/\/aapos.org\/glossary\/cortical-visual-impairment\" target=\"_blank\" rel=\"noopener\">Cortical Visual Impairment<\/a>, American Association for Pediatric Ophthalmology and Strabismus<\/p>\n<p><a href=\"https:\/\/www.nationaldb.org\/state-deaf-blind-projects\/\" target=\"_blank\" rel=\"noopener\">State Deaf-Blind Projects<\/a>, National Center on Deaf-Blindness<\/p>\n<p><a href=\"https:\/\/www.perkins.org\/understanding-cvi-what-is-is-why-it-s-an-enormous-crisis\/\">Understanding CVI: What it is &amp; Why it&#8217;s an Enormous Crisis<\/a>, Perkins School for the Blind<\/p>\n<p><a href=\"https:\/\/littlebearsees.org\/what-is-cvi\/\" target=\"_blank\" rel=\"noopener\">What is Cortical Visual Impairment (CVI)<\/a>, Little Bear Sees<\/p>\n<p>\u10d7\u10e3 \u10d7\u10e5\u10d5\u10d4\u10dc \u10d2\u10d0\u10e5\u10d5\u10d7 \u10e8\u10d4\u10db\u10dd\u10d7\u10d0\u10d5\u10d0\u10d6\u10d4\u10d1\u10e3\u10da\u10d8 \u10d8\u10dc\u10e1\u10e2\u10e0\u10e3\u10db\u10d4\u10dc\u10e2\u10d8 \u10d0\u10dc \u10e0\u10d4\u10e1\u10e3\u10e0\u10e1\u10d8,\u00a0<a href=\"https:\/\/deepconnections.net\/ka_ge\/contact\/\" target=\"_blank\" rel=\"noopener\">\u10d2\u10d7\u10ee\u10dd\u10d5\u10d7, \u10d3\u10d0\u10d2\u10d5\u10d8\u10d9\u10d0\u10d5\u10e8\u10d8\u10e0\u10d3\u10d8\u10d7<\/a>.<\/p>\n\t\t\t\t\t<p><a href=\"https:\/\/books.google.com\/books?hl=en&amp;lr=&amp;id=gzq15QF5h90C&amp;oi=fnd&amp;pg=PR1&amp;dq=cortical+visual+impairment&amp;ots=L_ZYbWvuNj&amp;sig=QebYO8mUye7zrzMIRfCithzIqgw#v=onepage&amp;q=cortical%20visual%20impairment&amp;f=false\" target=\"_blank\" rel=\"noopener\">Cortical visual impairment: An approach to assessment<\/a>\u00a0&#8211; \u200eChristine Roman-Lantzy,<\/p>\n<p><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC5659284\/\">Disentangling How the Brain is &#8220;Wired&#8221; in Cortical\/Cerebral Visual Impairment (CVI)<\/a>\u00a0&#8211; Lotfi B. Merabet et al (Harvard Medical School)<\/p>\n<p><a href=\"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpsyg.2016.01471\/full\">Impact of Cerebral Visual Impairments on Motor Skills: Implications for Developmental Coordination Disorders<\/a>\u00a0&#8211; Sylvie Chokron and Gordon N. Dutton (University of Paris-Descartes and Glasgow Caledonian University)<\/p>\n<p>\u10d7\u10e3 \u10d7\u10e5\u10d5\u10d4\u10dc \u10d2\u10d0\u10e5\u10d5\u10d7 \u10e8\u10d4\u10db\u10dd\u10d7\u10d0\u10d5\u10d0\u10d6\u10d4\u10d1\u10e3\u10da\u10d8 \u10e1\u10e2\u10d0\u10e2\u10d8\u10d0,\u00a0<a href=\"https:\/\/deepconnections.net\/ka_ge\/contact\/\" target=\"_blank\" rel=\"noopener\">\u10d2\u10d7\u10ee\u10dd\u10d5\u10d7, \u10d3\u10d0\u10d2\u10d5\u10d8\u10d9\u10d0\u10d5\u10e8\u10d8\u10e0\u10d3\u10d8\u10d7<\/a>.<\/p>\n\t\t\t\t\t<!-- \/content -->\n\t<!-- \/tabs -->\n\t<p><strong>Didn&#8217;t find what you&#8217;re looking for? Try the search box-there&#8217;s so much more to explore!<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>CVI &#038; DEEs Cortical Visual Impairment (CVI) is when the brain has trouble understanding what the eyes see. It&#8217;s not an issue with the eyes, but with how the brain&hellip;<\/p>","protected":false},"author":9,"featured_media":3877,"parent":2265,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"class_list":["post-6901","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.1) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>CVI\/Vision Issues - DEE-P Information Resource Center<\/title>\n<meta name=\"description\" content=\"CVI\/Vision Issues DEE-P Information Resource Center - CVI and vision issue resources for families with pediatric epilepsy\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/ka_ge\/medical-2\/cvi-vision-issues\/\" \/>\n<meta property=\"og:locale\" content=\"ka_GE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"CVI\/Vision Issues\" \/>\n<meta property=\"og:description\" content=\"CVI &amp; DEEs Cortical Visual Impairment (CVI) is when the brain has trouble understanding what the eyes see. 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