{"id":2663,"date":"2020-11-19T10:11:33","date_gmt":"2020-11-19T18:11:33","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2663"},"modified":"2025-04-26T05:30:50","modified_gmt":"2025-04-26T09:30:50","slug":"caregiver-support-old","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/kir\/care-and-family\/caregiver-support-old\/","title":{"rendered":"Caring for the Caregiver OLD"},"content":{"rendered":"<h1>\n\t\t\t\tRescue Medication\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Caregiver-Self-Care.jpg\" alt=\"Parent and Baby image\" itemprop=\"image\" title=\"Caregiver Self Care\" onerror=\"this.style.display='none'\">\n\t<h1>\n\t\t\t\t\u0412\u0435\u0431\u0438\u043d\u0430\u0440\u043b\u0430\u0440 \u0436\u0430\u043d\u0430 \u0432\u0438\u0434\u0435\u043e\u043b\u043e\u0440\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Webinars.jpg\" alt=\"Webinars\" itemprop=\"image\" title=\"\u0412\u0435\u0431\u0438\u043d\u0430\u0440\u043b\u0430\u0440\" onerror=\"this.style.display='none'\">\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2023\/07\/09\/challenges-with-selfcare\/\" content=\"Rare Caregiving &amp; Challenges with Self-Care \u2013 A DEE-P Discussion\"><meta itemprop=\"datePublished\" content=\"2023-07-09\"><meta itemprop=\"dateModified\" content=\"2023-07-09\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\"><meta itemprop=\"name\" content=\"G C\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/Caregiver-DEE-P-Discussion-Help-1.png\"><meta itemprop=\"width\" content=\"1920\"><meta itemprop=\"height\" content=\"1080\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/kir\/2023\/07\/09\/challenges-with-selfcare\/\" title=\"\u0421\u0435\u0439\u0440\u0435\u043a \u043a\u0435\u0437\u0434\u0435\u0448\u04af\u04af\u0447\u04af \u043a\u0430\u043c \u043a\u04e9\u0440\u04af\u04af \u0436\u0430\u043d\u0430 \u04e9\u0437\u04af\u043d-\u04e9\u0437\u04af \u0431\u0430\u0433\u0443\u0443\u0434\u0430\u0433\u044b \u043a\u044b\u0439\u044b\u043d\u0447\u044b\u043b\u044b\u043a\u0442\u0430\u0440 \u2013 DEE-P \u0442\u0430\u043b\u043a\u0443\u0443\u0441\u0443\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/07\/Caregiver-DEE-P-Discussion-Help-1-1024x576.png\" alt=\"Caregiver DEE-P Discussion - Help (1)\" itemprop=\"image\" data-no-lazy=\"1\" height=\"576\" width=\"1024\" title=\"Caregiver DEE-P \u0442\u0430\u043b\u043a\u0443\u0443\u0441\u0443 - \u0416\u0430\u0440\u0434\u0430\u043c (1)\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tRare Caregiving &amp; Challenges with Self-Care \u2013 A DEE-P Discussion\t\t\t\t\t\t\t\t\t\t\t<\/h3>\nBy <a href=\"https:\/\/deepconnections.net\/kir\/author\/she55utwe3\/\">GC<\/a>\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t  |  \n\t\t\tJuly 9, 2023\t\t\t\t\t\t\n\t\t<!-- .pp-content-posts -->\n\t<iframe title=\"Caregiver Connect 1-1: \u0421\u0438\u0437\u0434\u0438\u043d \u043a\u043e\u043b\u0434\u043e\u043e \u0442\u0443\u0442\u0443\u043c\u0443\u04a3\u0443\u0437\u0434\u0443 \u0442\u0430\u0431\u0443\u0443\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/hir2N5ni208?list=PLlRZVceO-qm3MIZpEA-5azm8_iKI5Rxf9\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen=\"\"><\/iframe>\n\t<iframe title=\"Caregiver Connect 1-2: \u04e8\u0437\u04af\u043d \u04e9\u0437\u04af \u043a\u0430\u043c \u043a\u04e9\u0440\u04af\u04af\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/sjJV0w4oIRM?list=PLlRZVceO-qm3MIZpEA-5azm8_iKI5Rxf9\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen=\"\"><\/iframe>\n\t<iframe title=\"Caregiver Connect 1-3: \u041a\u04e9\u04a3\u04af\u043b\u04af\u04a3\u04af\u0437\u0434\u04af \u043a\u04e9\u0437\u04e9\u043c\u04e9\u043b\u0434\u04e9\u04e9\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/cZ2_C9YJABs?list=PLlRZVceO-qm3MIZpEA-5azm8_iKI5Rxf9\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen=\"\"><\/iframe>\n\t<h1>\n\t\t\t\t\u041f\u0440\u0435\u0437\u0435\u043d\u0442\u0430\u0446\u0438\u044f\u043b\u0430\u0440\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Presentations.png\" alt=\"Presentation Materials\" itemprop=\"image\" title=\"\u041f\u0440\u0435\u0437\u0435\u043d\u0442\u0430\u0446\u0438\u044f\u043b\u0430\u0440\" onerror=\"this.style.display='none'\">\n\t<p>\u041c\u04af\u043c\u043a\u04af\u043d \u0431\u043e\u043b\u0443\u0448\u0443\u043d\u0447\u0430 \u0442\u0438\u0435\u0448\u0435\u043b\u04af\u04af \u043c\u0430\u0442\u0435\u0440\u0438\u0430\u043b\u0434\u0430\u0440\u0434\u044b \u043a\u043e\u0448\u043e\u0442.<\/p>\n<p>\u0421\u0443\u043d\u0443\u0448\u0442\u0430\u043b\u0433\u0430\u043d \u043f\u0440\u0435\u0437\u0435\u043d\u0442\u0430\u0446\u0438\u044f\u04a3\u044b\u0437 \u0431\u043e\u043b\u0441\u043e, <a href=\"https:\/\/deepconnections.net\/kir\/contact\/\" target=\"_blank\" rel=\"noopener\">\u0431\u0438\u0437 \u043c\u0435\u043d\u0435\u043d \u0431\u0430\u0439\u043b\u0430\u043d\u044b\u0448\u044b\u04a3\u044b\u0437<\/a>.<\/p>\n\t<h1>\n\t\t\t\t\u041a\u0443\u0440\u0430\u043b\u0434\u0430\u0440 \u0436\u0430\u043d\u0430 \u0440\u0435\u0441\u0443\u0440\u0441\u0442\u0430\u0440\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Tools-2.png\" alt=\"online tools\" itemprop=\"image\" title=\"\u041a\u0443\u0440\u0430\u043b\u0434\u0430\u0440 2\" onerror=\"this.style.display='none'\">\n\t<p><a href=\"https:\/\/dravetfoundation.org\/caregiver-resources\/caregiver-connect\/\">Caregiver Connect<\/a> &#8211; Dravet Syndrome Foundation<\/p>\n<p><a href=\"https:\/\/dravetfoundation.org\/wp-content\/uploads\/2023\/03\/DravetSyndromeFoundation-TipSheet1_v4-1.pdf\">\u041a\u0430\u043c\u043a\u043e\u0440\u0447\u0443\u0433\u0430 \u043a\u0430\u043c \u043a\u04e9\u0440\u04af\u04af \u043a\u0435\u04a3\u0435\u0448 \u0431\u0430\u0440\u0430\u043a\u0447\u0430\u0441\u044b<\/a> &#8211; Dravet Syndrome Foundation<\/p>\n<p>\u042d\u0433\u0435\u0440 \u0441\u0438\u0437\u0434\u0435 \u0441\u0443\u043d\u0443\u0448\u0442\u0430\u043b\u0433\u0430\u043d \u043a\u0443\u0440\u0430\u043b \u0436\u0435 \u0431\u0443\u043b\u0430\u043a \u0431\u043e\u043b\u0441\u043e, <a href=\"https:\/\/deepconnections.net\/kir\/contact\/\" target=\"_blank\" rel=\"noopener\">\u0431\u0438\u0437 \u043c\u0435\u043d\u0435\u043d \u0431\u0430\u0439\u043b\u0430\u043d\u044b\u0448\u044b\u04a3\u044b\u0437<\/a>.<\/p>\n\t<h1>\n\t\t\t\t\u041c\u0430\u043a\u0430\u043b\u0430\u043b\u0430\u0440\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Articles.png\" alt=\"Articles\" itemprop=\"image\" title=\"\u041c\u0430\u043a\u0430\u043b\u0430\u043b\u0430\u0440\" onerror=\"this.style.display='none'\">\n\t<p>\u041c\u04af\u043c\u043a\u04af\u043d \u0431\u043e\u043b\u0443\u0448\u0443\u043d\u0447\u0430 \u0442\u0438\u0435\u0448\u0435\u043b\u04af\u04af \u043c\u0430\u0442\u0435\u0440\u0438\u0430\u043b\u0434\u0430\u0440\u0434\u044b \u043a\u043e\u0448\u043e\u0442.<\/p>\n<p>\u042d\u0433\u0435\u0440 \u0441\u0438\u0437\u0434\u0435 \u0441\u0443\u043d\u0443\u0448 \u043a\u044b\u043b\u044b\u043d\u0433\u0430\u043d \u043c\u0430\u043a\u0430\u043b\u0430 \u0431\u043e\u043b\u0441\u043e, <a href=\"https:\/\/deepconnections.net\/kir\/contact\/\" target=\"_blank\" rel=\"noopener\">\u0431\u0438\u0437 \u043c\u0435\u043d\u0435\u043d \u0431\u0430\u0439\u043b\u0430\u043d\u044b\u0448\u044b\u04a3\u044b\u0437<\/a>.<\/p>\n\t<h1>\n\t\t\t\t\u0411\u0438\u0437\u0434\u0438\u043d \u0434\u0435\u043c\u04e9\u04e9\u0440\u0447\u04af\u043b\u04e9\u0440\u0433\u04e9 \u0436\u0430\u043d\u0430 \u0441\u0430\u043b\u044b\u043c \u043a\u043e\u0448\u043a\u043e\u043d\u0434\u043e\u0440\u0433\u043e \u0440\u0430\u0445\u043c\u0430\u0442\n\t\t\t<\/h1>\n\t<h1>\n\t\t\t\t\u0420\u0435\u0441\u0443\u0440\u0441\u0442\u0443\u043a \u0431\u043e\u0440\u0431\u043e\u0440\u0434\u043e\u043d \u0438\u0437\u0434\u04e9\u04e9\n\t\t\t<\/h1>\n\t<form role=\"search\" action=\"https:\/\/deepconnections.net\/kir\/\" method=\"get\" data-trp-original-action=\"https:\/\/deepconnections.net\">\n\t\t\t\t\t\t<input placeholder=\"\u0421\u0438\u0437\u0434\u0438 \u043a\u044b\u0437\u044b\u043a\u0442\u044b\u0440\u0433\u0430\u043d \u0438\u0437\u0434\u04e9\u04e9 \u0442\u0435\u0440\u043c\u0438\u043d\u0438\u043d \u0442\u0435\u0440\u0438\u04a3\u0438\u0437\" type=\"search\" name=\"s\" title=\"\u0418\u0437\u0434\u04e9\u04e9\" value=\"\">\n\t\t\t\t\t\t\t\t\t<button type=\"submit\">\n\t\t\t\t\t\u0418\u0437\u0434\u04e9\u04e9\n\t\t\t\t\t\t\t\t\t\t\t\t<\/button>\n\t\t\t<input type=\"hidden\" name=\"trp-form-language\" value=\"kir\"\/><\/form>","protected":false},"excerpt":{"rendered":"<p>Rescue Medication Webinars and Videos Rare Caregiving &amp; Challenges with Self-Care \u2013 A DEE-P Discussion By G C | July 9, 2023 Presentations Will add relevant materials as available. 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