{"id":5571,"date":"2024-04-17T11:44:50","date_gmt":"2024-04-17T18:44:50","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5571"},"modified":"2025-01-15T18:24:18","modified_gmt":"2025-01-15T23:24:18","slug":"managing-journey","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/ml_in\/2024\/04\/17\/managing-journey\/","title":{"rendered":"\u0d28\u0d3f\u0d19\u0d4d\u0d19\u0d33\u0d41\u0d1f\u0d46 \u0d15\u0d4b\u0d02\u0d2a\u0d4d\u0d32\u0d15\u0d4d\u0d38\u0d4d \u0d15\u0d41\u0d1f\u0d4d\u0d1f\u0d3f\u0d2f\u0d41\u0d2e\u0d3e\u0d2f\u0d41\u0d33\u0d4d\u0d33 \u0d2f\u0d3e\u0d24\u0d4d\u0d30 \u0d28\u0d3f\u0d2f\u0d28\u0d4d\u0d24\u0d4d\u0d30\u0d3f\u0d15\u0d4d\u0d15\u0d41\u0d15"},"content":{"rendered":"<p class=\"wp-block-paragraph\">In this conversation, you will meet Blyth Lord &#8211; mom to Cameron who had a genetic disorder and passed away at the age of 2. She is the Founder of <a href=\"https:\/\/courageousparentsnetwork.org\/\">Courageous Parents Network<\/a> as well as an incredible new resource &#8211; <a href=\"https:\/\/neurojourney.courageousparentsnetwork.org\/\">NeuroJourney<\/a>, which guides families of children with severe neurological impairments (SNI) through the many stages we must confront when caring for our children. NeuroJourney is a comprehensive tool built with both caregivers and professionals, to help families navigate the evolving needs of our child as well as the complex decisions that we may have to face.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This is a conversation between Blyth, DEE-P Connections Co-Founder and DEE mom, Gabi Conecker and Chrissy Salley &#8211; a Pediatric Psychologist working with the Courageous Parents Network and NeuroJourney.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P: Introduction to NeuroJourney\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/jhP_s2slCOE?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">\u0d21\u0d3f\u0d07\u0d07 \u0d15\u0d41\u0d1f\u0d41\u0d02\u0d2c\u0d19\u0d4d\u0d19\u0d7e\u0d15\u0d4d\u0d15\u0d41\u0d33\u0d4d\u0d33 \u0d2e\u0d46\u0d21\u0d3f\u0d15\u0d4d\u0d15\u0d7d, \u0d2a\u0d30\u0d3f\u0d1a\u0d30\u0d23\u0d02, \u0d2a\u0d3f\u0d28\u0d4d\u0d24\u0d41\u0d23 \u0d05\u0d32\u0d4d\u0d32\u0d46\u0d19\u0d4d\u0d15\u0d3f\u0d7d \u0d17\u0d35\u0d47\u0d37\u0d23 \u0d35\u0d3f\u0d37\u0d2f\u0d19\u0d4d\u0d19\u0d33\u0d46 \u0d15\u0d41\u0d31\u0d3f\u0d1a\u0d4d\u0d1a\u0d4d \u0d15\u0d42\u0d1f\u0d41\u0d24\u0d32\u0d31\u0d3f\u0d2f\u0d3e\u0d7b, \u0d1e\u0d19\u0d4d\u0d19\u0d33\u0d41\u0d1f\u0d46 \u0d38\u0d28\u0d4d\u0d26\u0d7c\u0d36\u0d3f\u0d15\u0d4d\u0d15\u0d41\u0d15 <a href=\"https:\/\/deepconnections.net\/ml_in\/resource-center-main\/\">\u0d31\u0d3f\u0d38\u0d4b\u0d34\u0d4d\u0d38\u0d4d \u0d38\u0d46\u0d7b\u0d4d\u0d31\u0d7c<\/a>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>\u0d08 \u0d38\u0d02\u0d2d\u0d3e\u0d37\u0d23\u0d24\u0d4d\u0d24\u0d3f\u0d7d, \u0d28\u0d3f\u0d19\u0d4d\u0d19\u0d7e \u0d2c\u0d4d\u0d32\u0d3f\u0d24\u0d4d\u0d24\u0d4d \u0d32\u0d4b\u0d7c\u0d21\u0d3f\u0d28\u0d46 \u0d15\u0d3e\u0d23\u0d41\u0d02 - \u0d15\u0d3e\u0d2e\u0d31\u0d42\u0d23\u0d3f\u0d7b\u0d4d\u0d31\u0d46 \u0d05\u0d2e\u0d4d\u0d2e \u0d1c\u0d28\u0d3f\u0d24\u0d15 \u0d35\u0d48\u0d15\u0d32\u0d4d\u0d2f\u0d02 \u0d2c\u0d3e\u0d27\u0d3f\u0d1a\u0d4d\u0d1a\u0d4d 2 \u0d35\u0d2f\u0d38\u0d4d\u0d38\u0d3f\u0d7d \u0d05\u0d28\u0d4d\u0d24\u0d30\u0d3f\u0d1a\u0d4d\u0d1a\u0d41. \u0d05\u0d35\u0d7e \u0d07\u0d24\u0d3f\u0d7b\u0d4d\u0d31\u0d46 \u0d38\u0d4d\u0d25\u0d3e\u0d2a\u0d15\u0d2f\u0d3e\u0d23\u0d4d\u2026<\/p>","protected":false},"author":4,"featured_media":5570,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1099,1022,1100,1023,1024,1025],"tags":[1130,1058,1127,1132,1128,1192,1029,1026],"class_list":["post-5571","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-be-prepared","category-care","category-caregiver-self-care","category-family","category-video","category-webinar","tag-complex-care","tag-family","tag-hospice","tag-hospice-care","tag-palliative-care","tag-top-viewed","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - 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