{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ms_my\/dee-p-connections\/","title":{"rendered":"Sambungan DEE-P"},"content":{"rendered":"

\n\t\t\tBersama-sama, Kita Boleh Lakukan Ini.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tLawati Pusat Sumber\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

Sambungan DEE-P telah berkembang menjadi sumber perkhidmatan penuh yang semakin meningkat untuk keluarga yang anak-anaknya terjejas oleh perkembangan dan\/atau ensefalopati epilepsi atau DEE. Ini adalah sukar untuk merawat epilepsi yang disertai dengan kelewatan perkembangan yang teruk dan\/atau regresi. <\/p>\n

45+ kami rakan kongsi<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

Webinar kami dan sentiasa berkembang Pusat Sumber<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

Sila pastikan anda mengikuti kami Facebook<\/a> dan\/atau Instagram<\/a> untuk kekal di atas semua yang kami tawarkan.<\/p>\n

Jika anda mempunyai idea tentang sumber yang perlu kami tambah atau webinar yang perlu kami adakan, sila hubungi kami di sini<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tSila sertai kami\n\t\t<\/h2>\n\t\t\t

Menghimpunkan keluarga dan rakan kongsi advokasi untuk membantu kanak-kanak dengan DEE menjalani kehidupan terbaik mereka.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tWebinar akan datang\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0Webinar Pengenalan<\/h2>\n\t\t\t\t