{"id":5080,"date":"2023-05-30T15:24:39","date_gmt":"2023-05-30T22:24:39","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5080"},"modified":"2024-05-09T20:51:16","modified_gmt":"2024-05-10T03:51:16","slug":"protecting-rare-access-to-off-label-treatments","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/ms_my\/2023\/05\/30\/protecting-rare-access-to-off-label-treatments\/","title":{"rendered":"Melindungi Akses Jarang kepada Rawatan Luar Label"},"content":{"rendered":"<p>Webinar ini dirakam pada 22 Mei 2023.<\/p>\n<p>Adakah syarikat insurans atau Medicaid enggan melindungi rawatan kritikal yang ditetapkan dengan mendakwa mereka di luar label dan tidak &quot;perlu dari segi perubatan&quot;?<\/p>\n<p>Adakah perlindungan dinafikan kerana rawatan yang mungkin berkesan untuk anda atau anak anda tidak mengikut kompendia \u2013 kompilasi pilihan rawatan luar label berasaskan bukti?<\/p>\n<p>Hampir separuh daripada ubat kemoterapi yang ditetapkan hari ini adalah di luar label tetapi terdapat senarai luas ubat yang dilindungi kerana terdapat tindakan Kongres. Gabung tenaga dengan pesakit penyakit jarang lain dan keluarga lain untuk mempelajari cara mudah ANDA boleh menggalakkan tindakan Kongres untuk memastikan penanggung insurans dan pembayar lain tidak lagi boleh menafikan perlindungan rawatan luar label yang diperlukan untuk gangguan jarang dan sangat jarang berlaku.<\/p>\n\t<iframe title=\"DEE-P: Melindungi Akses Jarang kepada Rawatan Luar Label - Bagaimana Anda Boleh Membantu\" width=\"500\" height=\"375\" src=\"https:\/\/www.youtube.com\/embed\/Ppx5a3LawEk?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\n\t<p>Untuk mencari lebih banyak sumber yang disesuaikan terutamanya untuk keluarga epilepsi\/DEE yang jarang berlaku, lawati kami <a href=\"https:\/\/deepconnections.net\/ms_my\/resource-center-main\/\">Pusat Sumber<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not &#8220;medically necessary&#8221;? Is coverage denied&hellip;<\/p>","protected":false},"author":4,"featured_media":4204,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1148,1016,1024,1025],"tags":[1029,1026],"class_list":["post-5080","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dee-advocacy","category-medical","category-video","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Protecting Rare Access to Off-Label Treatments<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource CenterLearn about ways to help advocate for access to off-label treatments for rare conditions\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/ms_my\/2023\/05\/30\/protecting-rare-access-to-off-label-treatments\/\" \/>\n<meta property=\"og:locale\" content=\"ms_MY\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Protecting Rare Access to Off-Label Treatments\" \/>\n<meta property=\"og:description\" content=\"This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were\" \/>\n<meta property=\"og:url\" content=\"https:\/\/deepconnections.net\/ms_my\/2023\/05\/30\/protecting-rare-access-to-off-label-treatments\/\" \/>\n<meta property=\"og:site_name\" content=\"DEE-P Information Resource Center\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/DEEPConnectionsEpilepsy\" \/>\n<meta property=\"article:published_time\" content=\"2023-05-30T22:24:39+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-05-10T03:51:16+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/02\/med-pic.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"295\" \/>\n\t<meta property=\"og:image:height\" content=\"171\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Gabi Conecker\" \/>\n<meta name=\"twitter:card\" 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