{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/nb_no\/dee-p-connections\/","title":{"rendered":"DEE-P tilkoblinger"},"content":{"rendered":"

\n\t\t\tSammen kan vi gj\u00f8re dette.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tBes\u00f8k Ressurssenteret\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

DEE-P Connections har vokst til \u00e5 bli en stadig mer fullserviceressurs for familier hvis barn er p\u00e5virket av utviklingsmessige og\/eller epileptiske encefalopatier eller DEEs. Disse er vanskelige \u00e5 behandle epilepsier som er ledsaget av alvorlige utviklingsforsinkelser og\/eller regresjon. <\/p>\n

V\u00e5re 45+ partnere<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

V\u00e5re webinarer og stadig voksende Resurs senter<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

V\u00e6r sikker p\u00e5 at du f\u00f8lger oss videre Facebook<\/a> og\/eller Instagram<\/a> \u00e5 holde seg p\u00e5 toppen av alt vi har \u00e5 tilby.<\/p>\n

Hvis du har ideer om ressurser vi b\u00f8r legge til eller webinarer vi b\u00f8r holde, vennligst ta kontakt med oss her<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tV\u00e6r s\u00e5 snill \u00e5 bli med oss\n\t\t<\/h2>\n\t\t\t

Samle familier og partnere for \u00e5 hjelpe barn med DEE med \u00e5 leve sitt beste liv.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tKommende webinarer\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0Innledende webinar<\/h2>\n\t\t\t\t