{"id":2630,"date":"2020-10-28T17:13:48","date_gmt":"2020-10-29T00:13:48","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?p=2630"},"modified":"2022-06-22T15:53:01","modified_gmt":"2022-06-22T22:53:01","slug":"sudep-part-2-what-can-we-do","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/nb_no\/2020\/10\/28\/sudep-part-2-what-can-we-do\/","title":{"rendered":"Sudden Unexpected Death in Epilepsy (SUDEP) Del 2: Hva kan vi gj\u00f8re?"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Det p\u00e5g\u00e5r en rekke tiltak for \u00e5 forbedre kommunikasjonen om og forebygging av SUDEP. Dette nettseminaret utforsker hvordan noen talsmenn jobber for \u00e5 forbedre kommunikasjonen med familier om SUDEP og forhindre fremtidige tilfeller av SUDEP.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">V\u00e5r foredragsholder er Jill Paradise. Hun ble aldri fortalt om og mistet deretter datteren Quinn til SUDEP og har siden blitt en hard talsmann for at foreldre skal informeres om SUDEP<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Elizabeth Donner, MD er direkt\u00f8r for Comprehensive Pediatric Epilepsy Program ved <a href=\"http:\/\/www.sickkids.ca\/AboutSickKids\/Directory\/People\/D\/Elizabeth-Donner.html\" target=\"_blank\" rel=\"noreferrer noopener\">Sykehus for syke barn i Toronto<\/a> &amp; Michael Bahen leder i epilepsiforskning og f\u00f8rsteamanuensis ved Det medisinske fakultet ved <a href=\"http:\/\/www.neuroscience.utoronto.ca\/faculty\/list\/donner.htm\" target=\"_blank\" rel=\"noreferrer noopener\">Universitetet i Toronto<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Tom Stanton er administrerende direkt\u00f8r for <a href=\"https:\/\/www.dannydid.org\/about-us\/staff\/tom-stanton\/\" target=\"_blank\" rel=\"noreferrer noopener\">Danny Did Foundation<\/a> og Dannys onkel<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">William D. Gaillard, MD, er sjef for divisjonene for barnneurologi, epilepsi og nevrofysiologi og direkt\u00f8r for Comprehensive Pediatric Epilepsy Program ved <a href=\"https:\/\/childrensnational.org\/visit\/find-a-provider\/william-gaillard\" target=\"_blank\" rel=\"noreferrer noopener\">Barnas nasjonale medisinske senter<\/a> og n\u00e5v\u00e6rende president i <a href=\"https:\/\/www.aesnet.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">American Epilepsy Society<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dette er innspillingen av &quot;SUDEP \u2013 Hva kan vi gj\u00f8re?&quot; webinar som ble tatt opp 28. oktober kl. 17.00 EST.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-4-3 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P: SUDEP del 2 - Hva kan vi gj\u00f8re?\" width=\"500\" height=\"375\" src=\"https:\/\/www.youtube.com\/embed\/HEFa6-orT7Q?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">For flere DEE-ressurser, sjekk ut v\u00e5r\u00a0<a href=\"https:\/\/deepconnections.net\/nb_no\/resource-center-main\/\">resurs senter<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP&hellip;<\/p>","protected":false},"author":4,"featured_media":2563,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1016,1045,1024,1025],"tags":[1020,1046,1029,1026],"class_list":["post-2630","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical","category-sudep","category-video","category-webinar","tag-medical","tag-sudep","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Sudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center - This webinar explores how advocates are improving communication about and prevention of SUDEP.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/nb_no\/2020\/10\/28\/sudep-part-2-what-can-we-do\/\" \/>\n<meta property=\"og:locale\" content=\"nb_NO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?\" \/>\n<meta property=\"og:description\" content=\"There are a number of efforts underway to improve communication about and prevention of SUDEP. 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