{"id":5017,"date":"2023-05-02T14:15:28","date_gmt":"2023-05-02T21:15:28","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5017"},"modified":"2023-05-02T14:15:29","modified_gmt":"2023-05-02T21:15:29","slug":"learn-how-to-maximize-your-data-with-the-crid","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/nb_no\/2023\/05\/02\/learn-how-to-maximize-your-data-with-the-crid\/","title":{"rendered":"L\u00e6r hvordan du maksimerer dataene dine med CRID"},"content":{"rendered":"<p class=\"wp-block-paragraph\">This webinar was recorded on April 28th, 2023.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Watch to learn more about the Clinical Research ID (aka The CRID&#x2122;), a service that enables patients and parents (and their child\/children) involved in clinical research studies the opportunity to create their own unique universal patient identifier to be used in clinical research. This CRID identifier can be used across multiple clinical research studies. It will allow researchers to share your clinical data (not PII\/PHI) with other research studies you are involved in. The main benefit is that more of your research data can be shared between researchers and data silos can be eliminated.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">You&#8217;ll hear from the CRID developer, Gerry Nesbitt, an informatics innovator specializing in academic clinical research IT. He was previously the Director of Informatics at the University of California, San Francisco. He was responsible for IT on the Epilepsy Phenome\/Genome Project, a $15M\/5 year NIH-funded project and the largest ever epidemiological and genomic study of epilepsy and seizures.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Learn more at: <a href=\"https:\/\/thecrid.org\/\">https:\/\/thecrid.org\/<\/a><\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P: Using the CRID to control your research data\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/odtvX_fFvMc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">For \u00e5 finne flere ressurser skreddersydd spesielt for sjeldne epilepsi-\/DEE-familier, bes\u00f8k v\u00e5r <a href=\"https:\/\/deepconnections.net\/nb_no\/resource-center-main\/\">Resurs senter<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Dette webinaret ble tatt opp 28. april 2023. Se for \u00e5 l\u00e6re mer om Clinical Research ID (aka The CRID\u2122), en tjeneste som gj\u00f8r det mulig for pasienter og foreldre (og deres barn\/barn)...<\/p>","protected":false},"author":4,"featured_media":4997,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1147,1016,1024,1025],"tags":[1029,1026],"class_list":["post-5017","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-managing-your-data","category-medical","category-video","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Learn How to Maximize Your Data with The CRID<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center Hear about the Clinical Research ID, a unique identifier for those involved in clinical research studies\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/nb_no\/2023\/05\/02\/learn-how-to-maximize-your-data-with-the-crid\/\" \/>\n<meta property=\"og:locale\" content=\"nb_NO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Learn How To Maximize Your Data with The CRID\" \/>\n<meta property=\"og:description\" content=\"This webinar was recorded on April 28th, 2023. Watch to learn more about the Clinical Research ID (aka The CRID&#x2122;), a service that enables patients\" \/>\n<meta property=\"og:url\" content=\"https:\/\/deepconnections.net\/nb_no\/2023\/05\/02\/learn-how-to-maximize-your-data-with-the-crid\/\" \/>\n<meta property=\"og:site_name\" content=\"DEE-P Information Resource Center\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/DEEPConnectionsEpilepsy\" \/>\n<meta property=\"article:published_time\" content=\"2023-05-02T21:15:28+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-05-02T21:15:29+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/04\/crid.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1013\" \/>\n\t<meta property=\"og:image:height\" content=\"293\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Gabi Conecker\" \/>\n<meta name=\"twitter:card\" 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