As a newer project, we are grateful to the sponsors who have shared our vision for a unified community and resources for families who have children with rare, severe epilepsies. With the support of these sponsors, we are able to commit more time and resources to building the DEE-P Connections site, Resource Center and community. We started with the promise to never ask caregivers to contribute and with the support of these generous donors, we can continue to operate without asking families to chip in.
In addition to bringing webinars, resources and relevant tools to families, we are also pushing forward with some exciting research to better understand the overlap in how rare epilepsy families struggle with similar challenges. Not only do we want to better understand how our families experience the same difficulties but we also have an ambitious goal of helping the wider community better understand the progress our children are making
We welcome additional financial support to ensure that this project is implemented to its highest quality. If you know are potential sponsor or know any groups that may be interested in supporting our work, please reach out to us at firstname.lastname@example.org