{"id":3337,"date":"2021-08-12T16:51:14","date_gmt":"2021-08-12T23:51:14","guid":{"rendered":"https:\/\/deepconnections.net\/?page_id=3337"},"modified":"2024-07-27T17:30:28","modified_gmt":"2024-07-28T00:30:28","slug":"dee-p-connections","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ro_ro\/dee-p-connections\/","title":{"rendered":"DEE-P Connections"},"content":{"rendered":"

\n\t\t\t\u00cempreun\u0103, putem face asta.\n\t\t<\/h2>\n\t\t\t\n\t\t\t\t\t\t\tVizita\u021bi Centrul de resurse\n\t\t\t\t\t<\/a>\n\t\t\t

Welcome – We Are So Glad You Found Us!<\/h2>\n\t\t\t\t

DEE-P Connections a devenit o resurs\u0103 din ce \u00een ce mai complet\u0103 pentru familiile ai c\u0103ror copii sunt afecta\u021bi de encefalopatii de dezvoltare \u0219i\/sau epileptice sau DEE. Acestea sunt epilepsii dificil de tratat care sunt \u00eenso\u021bite de \u00eent\u00e2rzieri severe de dezvoltare \u0219i\/sau regresie. <\/p>\n

Peste 45 de ani parteneri<\/a> have a shared vision for DEE-P as a one-stop hub for DEE families – have medically complex children and are often confronting a range of medical issues that are hard to manage and treat – to access high quality resources and services.\u00a0<\/p>\n

Webinarii noastre \u0219i \u00een continu\u0103 cre\u0219tere Centru de resurse<\/a> offer families a single place to find reliable, curated and vetted resources that are tailored to the DEE experience. The more than 70 webinars we have held are developed and led in coordination with leading experts in their fields-government institutions, research institutions and clinical centers-and are paired with a diversity of quality resources from our partners in our Resource Center. These resources are helping caregivers navigate the many challenges they face with their loved ones who have DEEs – improving their knowledge about how to address medical and care challenges, aiding them in advocating for and finding better care and ultimately improving quality of life for their families.<\/p>\n

In 2023, DEE-P expanded beyond educational and research efforts to also provide critical support and community for DEE families. We are providing caregivers with opportunities to connect via DEE-P Discussions-panels of caregivers dialoguing on critical issues-as well as DEE-P Chats, which are unrecorded open sessions for families to be in community with one another to listen, learn, ask and talk with others who truly understand.\u00a0<\/p>\n

V\u0103 rug\u0103m s\u0103 asigura\u021bi-v\u0103 c\u0103 ne urm\u0103ri\u021bi Facebook<\/a> \u0219i\/sau Instagram<\/a> pentru a r\u0103m\u00e2ne \u00een frunte cu tot ce avem de oferit.<\/p>\n

Dac\u0103 ave\u021bi idei despre resursele pe care ar trebui s\u0103 le ad\u0103ugam sau despre webinarii pe care ar trebui s\u0103 le organiz\u0103m, v\u0103 rug\u0103m s\u0103 ne contacta\u021bi Aici<\/a>.<\/p>\n\t\t

<\/a><\/blockquote>\n\t\t

\n\t\t\tV\u0103 rug\u0103m s\u0103 ni se al\u0103ture\n\t\t<\/h2>\n\t\t\t

Reunind familiile \u0219i partenerii de advocacy pentru a ajuta copiii cu DEE s\u0103-\u0219i tr\u0103iasc\u0103 cea mai bun\u0103 via\u021b\u0103.<\/strong>We hope to see you at a future webinar!\u00a0\u00a0Please also be in touch with us and share your ideas for webinars, give us feedback on the website or let us know if you’d like to volunteer to help us run this initiative. Feel free to share this resource widely. we hope you’ll find some helpful information here and continue to come back to learn more and connect with your DEE-P family.<\/p>\t\t\n\t\t\t\n\t\t\t\t\t\t\tWebinarii viitoare\n\t\t\t\t\t<\/a>\n\t\t\t

\u00a0Webinar introductiv<\/h2>\n\t\t\t\t