{"id":2805,"date":"2020-06-05T16:38:21","date_gmt":"2020-06-05T23:38:21","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?p=2805"},"modified":"2022-07-07T16:53:12","modified_gmt":"2022-07-07T23:53:12","slug":"sibling-relationships","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/ro_ro\/2020\/06\/05\/sibling-relationships\/","title":{"rendered":"Promovarea rela\u021biilor s\u0103n\u0103toase \u00eentre cei cu epilepsie sever\u0103 \u0219i fra\u021bii lor"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Te-ai chinuit cum s\u0103 gestionezi rela\u021biile dintre copiii t\u0103i complexi din punct de vedere medical \u0219i fra\u021bii lor care se dezvolt\u0103 mai tipic? E\u0219ti un frate al unei persoane cu epilepsie sever\u0103 \u0219i vrei s\u0103 auzi cum au g\u0103sit al\u021bii modalit\u0103\u021bi de a construi rela\u021bii mai puternice?<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Aceasta este o \u00eenregistrare a webinarului DEE-P Connections din 3 iunie 2020, care a fost planificat \u00een coordonare cu to\u021bi membrii grupului.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Acest webinar a fost o conversa\u021bie despre provoc\u0103rile \u0219i bucuriile rela\u021biilor DEE-fra\u021bi \u2013 cu o gam\u0103 larg\u0103 de fra\u021bi, de la 4 ani, un preadolescent, un adolescent \u0219i un adult \u2013 care \u00ee\u0219i \u00eemp\u0103rt\u0103\u0219esc experien\u021bele.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"934\" height=\"624\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/06\/Sibs.png\" alt=\"\" class=\"wp-image-3254\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/06\/Sibs.png 934w, https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/06\/Sibs-600x401.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/06\/Sibs-300x200.png 300w\" sizes=\"(max-width: 934px) 100vw, 934px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.cureepilepsy.org\/meet-our-chief-scientific-officer\/\"><strong>Laura S. Lubbers<\/strong><\/a> \u2013 sora lui Ellyn \u0219i director \u0219tiin\u021bific la <a href=\"https:\/\/www.cureepilepsy.org\/\">Citizens United for Research in Epilepsie (CURE)<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Aria Moss<\/strong> \u2013 sora lui Evan \u0219i a c\u0103rui familie a \u00eenceput \u0219i conduce <a href=\"https:\/\/www.facebook.com\/seizuretracker\/?__tn__=K-R&amp;eid=ARDvbwJTNVGlLIkxK6TY4UQ4GVVKQneMqBRtVNB2PE8vfv-QRRmOcSOW5x1Ct8m1N08nBwSkPmQj4-M7&amp;fref=mentions&amp;__xts__%5B0%5D=68.ARDgGQIgOO_kXlWVtT84G_R9G04cKqZFBQZIU5iKvljFdFsQeuYm-m3yeplQ_2BfTdhd9oE2SeoCka6Kf-U1Bultu1SR_jsbjwywi7XoM_HAWHoDP9eWDcHeRB6PtyH73S7AHLPSVVztTEa1vX8KZpumai0gy49MrPvHxIxdObJ8U2dJBl-y3Y-DxNslS7EkV2CMKQa4yIZfzOIQ0wxDcJ_tLwF_2pZPgQJw5kwzbnRlkZ19f776CcLhHsUbmH8uL9BgwqyvepNlds-nCilHPivaHH18KGp_kJ17gkkAaYwWhwUkpMcJcWNEF2o_9pvxyFH3tCvYYJ0gDUHFFKXqmP8\">Tracker de convulsii<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Lily Howard<\/strong> \u2013 sora lui Harper care a murit \u00een 2016 \u0219i a c\u0103rei familie a \u00eenceput \u0219i conduce <a href=\"https:\/\/www.facebook.com\/hope4harper\/?__tn__=K-R&amp;eid=ARBicxi1f4a9HV1awDQj_wK72SYr19dsT7PnFpCoxsjXDTlzTuLBI-RWlxJ9NNpLuVbqmX753RfVZkjX&amp;fref=mentions&amp;__xts__%5B0%5D=68.ARDgGQIgOO_kXlWVtT84G_R9G04cKqZFBQZIU5iKvljFdFsQeuYm-m3yeplQ_2BfTdhd9oE2SeoCka6Kf-U1Bultu1SR_jsbjwywi7XoM_HAWHoDP9eWDcHeRB6PtyH73S7AHLPSVVztTEa1vX8KZpumai0gy49MrPvHxIxdObJ8U2dJBl-y3Y-DxNslS7EkV2CMKQa4yIZfzOIQ0wxDcJ_tLwF_2pZPgQJw5kwzbnRlkZ19f776CcLhHsUbmH8uL9BgwqyvepNlds-nCilHPivaHH18KGp_kJ17gkkAaYwWhwUkpMcJcWNEF2o_9pvxyFH3tCvYYJ0gDUHFFKXqmP8\">Hope4Harper CDKL5<\/a><\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\"><p>\u201eAm vorbit mult despre c\u00e2t de bun\u0103 a fost via\u021ba cu Harper pentru c\u0103 simt cu adev\u0103rat c\u0103 am avut o via\u021b\u0103 grozav\u0103. Dar au fost multe sacrificii f\u0103cute, de c\u0103tre toat\u0103 lumea, din cauza lui Harper. Chiar dac\u0103 via\u021ba mea a fost diferit\u0103, ad\u0103postit\u0103 \u0219i izolat\u0103, nu sunt sup\u0103rat pe nimeni pentru luptele pe care le-am <em>\u00eendurat. \u0218tiu c\u0103 p\u0103rin\u021bii mei \u00ee\u0219i fac griji pentru sentimentele mele. Se simt vinova\u021bi pentru ceea ce am ratat, dar eu nu v\u0103d asta ca pe un lucru r\u0103u. Nu am vrut cu adev\u0103rat s\u0103 aduc \u00een discu\u021bie \u0219i s\u0103 reflectez asupra acelor negative pentru a-i face pe p\u0103rin\u021bi s\u0103 fie mai \u00eengrijora\u021bi de copiii lor care nu au nevoi speciale. Da, avem o via\u021b\u0103 diferit\u0103. Da, ne lupt\u0103m, dar peste tot \u0219tim c\u0103 nu suntem uita\u021bi \u0219i c\u0103 suntem bine. La sf\u00e2r\u0219itul zilei, \u00eenc\u0103 te iubim \u0219i via\u021ba noastr\u0103 ne-a \u00eenv\u0103\u021bat ceea ce mul\u021bi s-ar putea s\u0103 nu \u00eenve\u021be niciodat\u0103. \u201d<\/em><\/p><cite>- Lily Howard - 12 ani \u0219i sora lui Harper, care a murit din cauza tulbur\u0103rii de deficit CDKL5 \u00een 2016<\/cite><\/blockquote>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P - \u00cenregistrarea webinarului pentru construirea rela\u021biilor de fra\u021bi\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/li_goC3HZa0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Pentru mai multe resurse DEE, consulta\u021bi\u00a0<a href=\"https:\/\/deepconnections.net\/resource-center-main\/\">centru de resurse<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? Are you a sibling to someone with severe epilepsy and&hellip;<\/p>","protected":false},"author":4,"featured_media":3254,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1022,1023,1064,1024,1025],"tags":[1058,1065,1026],"class_list":["post-2805","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-care","category-family","category-siblings","category-video","category-webinar","tag-family","tag-siblings","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.4) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Promoting Healthy Sibling Relationships with a Severe Epilepsy Child<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource Center - This webinar was a conversation about the challenges and joys of DEE-sibling relationships.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/ro_ro\/2020\/06\/05\/sibling-relationships\/\" \/>\n<meta property=\"og:locale\" content=\"ro_RO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings\" \/>\n<meta property=\"og:description\" content=\"Have you struggled with how to manage the relationships between your medically complex children and their more typically developing siblings? 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