{"id":4526,"date":"2022-06-27T16:01:13","date_gmt":"2022-06-27T23:01:13","guid":{"rendered":"https:\/\/deepconnections.net\/?p=4526"},"modified":"2022-07-07T16:32:30","modified_gmt":"2022-07-07T23:32:30","slug":"why-brain-tissue-donation-matters","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/ro_ro\/2022\/06\/27\/why-brain-tissue-donation-matters\/","title":{"rendered":"Why Brain Tissue Donation Matters"},"content":{"rendered":"<p class=\"wp-block-paragraph\">This is the recording of the &#8220;Why Brain Tissue Donation Matters&#8221; DEE-P webinar which was recorded on June 24, 2022<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The loss of any loved one with a rare epilepsy is unimaginable. We all wish there were more we could do to help end the suffering that comes with a rare epilepsy diagnosis. In this webinar, we want to tell you about one incredibly important way families can make a huge impact \u2013 brain tissue donation.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We hear from families who have been through this, a world-renowned researcher utilizing these precious donations to make breakthroughs, and the director of the&nbsp;<em>\u021aesut cerebral Harvard<\/em>&nbsp;Centrul de resurse despre cum func\u021bioneaz\u0103 toate acestea. Acest webinar are loc \u00eempreun\u0103 cu partenerii no\u0219tri de la Hope4Harper.<\/p>\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<figure class=\"wp-block-embed aligncenter is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-4-3 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P - Why Brain Tissue Donation Matters\" width=\"500\" height=\"375\" src=\"https:\/\/www.youtube.com\/embed\/E42FkgIzW9Y?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Invita\u021bii no\u0219tri au fost:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/hope4harper.com\/board-members\/\" target=\"_blank\" rel=\"noreferrer noopener\">Penny Howard<\/a><\/strong>&nbsp;\u2013 mom to Harper, who had CDKL5 Deficiency Disorder (CDD) and bravely gave her brain to help study how to help those with CDD who come after her. Penny is also the Founder and Director of the Hope 4 Harper, a non-profit working to provide hope to those living with CDD and other related diseases.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Angie Weaver<\/strong>&nbsp;\u2013 Angie is Director of a nonprofit in Northern Minnesota, a passionate advocate and Warrior Mom to Amelia, who had&nbsp;<a href=\"http:\/\/scn2a.org\/\">SCN2A<\/a>&nbsp;\u0219i a murit la v\u00e2rsta de 12 ani. Angie \u0219i familia ei au luat decizia curajoas\u0103 de a dona organele \u0219i \u021besuturile Ameliei, a\u0219a c\u0103 \u0219i acum Amelia lupt\u0103 pentru un leac.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/www.med.upenn.edu\/jensenlab\/\" target=\"_blank\" rel=\"noreferrer noopener\">Frances Elizabeth Jensen, MD, FACP<\/a><\/strong>&nbsp;\u2013 among many other things, is the Chair of the Department of Neurology at the Perelman School of Medicine, University of Pennsylvania and Co-Director of the Penn Medicine Translational Neuroscience Center. Dr. Jensen has researched the brain&nbsp;extensively and uses donated brain tissue to make breakthroughs in our understanding of disease and potential pathways to better treatments.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/brain.harvard.edu\/?people=sabina-berretta\" target=\"_blank\" rel=\"noreferrer noopener\">Sabina Berretta, MD<\/a>.<\/strong>&nbsp;\u2013&nbsp;<em>Profesor asociat de psihiatrie, Harvard Medical School<\/em>&nbsp;\u0219i director al Centrului de Resurse pentru \u021aesutul Creier Harvard\/NIH NeuroBioBank, care nu numai c\u0103 conduce un centru de donare a creierului NIH, dar \u0219i-a petrecut mul\u021bi ani studiind creierul cu \u021besut donat.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Pentru mai multe resurse DEE, consulta\u021bi&nbsp;<a href=\"https:\/\/deepconnections.net\/resource-center-main\/\">centru de resurse<\/a><\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"962\" height=\"284\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner.png\" alt=\"\" class=\"wp-image-4531\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner.png 962w, https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner-600x177.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/06\/brain-banner-300x89.png 300w\" sizes=\"(max-width: 962px) 100vw, 962px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>This is the recording of the &#8220;Why Brain Tissue Donation Matters&#8221; DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy&hellip;<\/p>","protected":false},"author":4,"featured_media":3834,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1112,1016,1025],"tags":[1029,1026],"class_list":["post-4526","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-brain-tissue-donation","category-medical","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- 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