{"id":5571,"date":"2024-04-17T11:44:50","date_gmt":"2024-04-17T18:44:50","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5571"},"modified":"2025-01-15T18:24:18","modified_gmt":"2025-01-15T23:24:18","slug":"managing-journey","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/ro_ro\/2024\/04\/17\/managing-journey\/","title":{"rendered":"Gestionarea c\u0103l\u0103toriei cu copilul dumneavoastr\u0103 complex"},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u00cen aceast\u0103 conversa\u021bie, \u00eel ve\u021bi \u00eent\u00e2lni pe Blyth Lord - mama lui Cameron care a avut o tulburare genetic\u0103 \u0219i a murit la v\u00e2rsta de 2 ani. Ea este fondatorul <a href=\"https:\/\/courageousparentsnetwork.org\/\">Re\u021beaua de p\u0103rin\u021bi curajo\u0219i<\/a> precum \u0219i o nou\u0103 resurs\u0103 incredibil\u0103 - <a href=\"https:\/\/neurojourney.courageousparentsnetwork.org\/\">NeuroJourney<\/a>, care ghideaz\u0103 familiile copiilor cu deficien\u021be neurologice severe (SNI) prin numeroasele etape cu care trebuie s\u0103 ne confrunt\u0103m atunci c\u00e2nd ne \u00eengrijim copiii. NeuroJourney este un instrument cuprinz\u0103tor, construit at\u00e2t cu \u00eengrijitorii, c\u00e2t \u0219i cu profesioni\u0219ti, pentru a ajuta familiile s\u0103 navigheze \u00een nevoile \u00een evolu\u021bie ale copilului nostru, precum \u0219i \u00een deciziile complexe cu care ar trebui s\u0103 ne confrunt\u0103m.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Aceasta este o conversa\u021bie \u00eentre Blyth, co-fondatorul DEE-P Connections \u0219i mama DEE, Gabi Conecker \u0219i Chrissy Salley \u2013 un psiholog pediatru care lucreaz\u0103 cu Courageous Parents Network \u0219i NeuroJourney.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"DEE-P: Introducere \u00een NeuroJourney\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/jhP_s2slCOE?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Pentru a afla mai multe despre teme medicale, de \u00eengrijire \u0219i de sprijin sau de cercetare pentru familiile DEE, vizita\u021bi-ne <a href=\"https:\/\/deepconnections.net\/resource-center-main\/\">Centru de resurse<\/a>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>\u00cen aceast\u0103 conversa\u021bie, \u00eel vei \u00eent\u00e2lni pe Blyth Lord - mama lui Cameron care a avut o tulburare genetic\u0103 \u0219i a murit la v\u00e2rsta de 2 ani. Ea este fondatoarea...<\/p>","protected":false},"author":4,"featured_media":5570,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1099,1022,1100,1023,1024,1025],"tags":[1130,1058,1127,1132,1128,1192,1029,1026],"class_list":["post-5571","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-be-prepared","category-care","category-caregiver-self-care","category-family","category-video","category-webinar","tag-complex-care","tag-family","tag-hospice","tag-hospice-care","tag-palliative-care","tag-top-viewed","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Managing the Journey with your Complex Child - DEE-P Information Resource Center<\/title>\n<meta name=\"description\" content=\"Managing the Journey with your Complex Child - Webinar on pediatric hospice support and the benefits to the entire DEE family to improve quality of life.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/ro_ro\/2024\/04\/17\/managing-journey\/\" \/>\n<meta property=\"og:locale\" content=\"ro_RO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Managing the Journey with your Complex Child\" \/>\n<meta property=\"og:description\" content=\"In this conversation, you will meet Blyth Lord - mom to Cameron who had a genetic disorder and passed away at the age of 2. 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