{"id":5578,"date":"2024-04-19T12:14:15","date_gmt":"2024-04-19T19:14:15","guid":{"rendered":"https:\/\/deepconnections.net\/?post_type=tribe_events&#038;p=5578"},"modified":"2024-04-29T10:32:23","modified_gmt":"2024-04-29T17:32:23","slug":"increasing-access-to-clinical-trials-and-new-treatments-across-the-dees","status":"publish","type":"tribe_events","link":"https:\/\/deepconnections.net\/ro_ro\/event\/increasing-access-to-clinical-trials-and-new-treatments-across-the-dees\/","title":{"rendered":"Cre\u0219terea accesului la studiile clinice \u0219i la noi tratamente \u00een DEE"},"content":{"rendered":"<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"940\" height=\"788\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/04\/Clinical-Trials.png\" alt=\"\" class=\"wp-image-5584\" srcset=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/04\/Clinical-Trials.png 940w, https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/04\/Clinical-Trials-600x503.png 600w, https:\/\/deepconnections.net\/wp-content\/uploads\/2024\/04\/Clinical-Trials-300x251.png 300w\" sizes=\"(max-width: 940px) 100vw, 940px\" \/><\/figure>\n\n\n<div  class=\"tribe-events-schedule tribe-clearfix\" >\n\t<p class=\"tribe-events-schedule__datetime\">\n\t\t<span class=\"tribe-events-schedule__date tribe-events-schedule__date--start\">\n\t\t\taprilie 29, 2024\t\t<\/span>\n\n\t\t\t\t\t<span class=\"tribe-events-schedule__separator tribe-events-schedule__separator--date\">\n\t\t\t\t @ \t\t\t<\/span>\n\t\t\t<span class=\"tribe-events-schedule__time tribe-events-schedule__time--start\">\n\t\t\t\t3:30 dupa masa\t\t\t<\/span>\n\t\t\n\t\t\t\t\t\t\t\t\t<span class=\"tribe-events-schedule__separator tribe-events-schedule__separator--time\">\n\t\t\t\t\t &#8211; \t\t\t\t<\/span>\n\t\t\t\n\t\t\t\t\t\t\t<span class=\"tribe-events-schedule__time tribe-events-schedule__time--end\">\n\t\t\t\t\t16:00\t\t\t\t<\/span>\n\t\t\t\n\t\t\t\t\t\t<\/p>\n<\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Al\u0103tura\u021bi-v\u0103 nou\u0103 pentru o conversa\u021bie despre un model promi\u021b\u0103tor de studii clinice pentru noi tratamente pentru epilepsie care accelereaz\u0103 accesul la comunitatea mai larg\u0103 a DEE. Designul \u201eprocesului \u00een co\u0219\u201d este utilizat \u00een studiile clinice pentru medicamentele care vizeaz\u0103 tratarea simptomelor celor care tr\u0103iesc cu DEE, inclusiv convulsii. Aceast\u0103 abordare larg\u0103 este diferit\u0103 de designul actual al studiilor clinice standard, care eviden\u021biaz\u0103 tulbur\u0103rile individuale \u0219i ar \u00eensemna acces sporit la cercetarea clinic\u0103 pentru familiile interesate s\u0103 participe. Cu acest model mai cuprinz\u0103tor, tratamentele aprobate folosind aceast\u0103 metod\u0103 ar putea include DEE \u00een \u201eetichet\u0103\u201d (adic\u0103 aprobate de FDA pentru utilizare), reduc\u00e2nd nevoia ca familiile de a fi nevoite s\u0103 se certe cu medicii \u0219i companiile de asigur\u0103ri pentru utilizarea medicamentelor off- eticheta. Al\u0103tura\u021bi-v\u0103 nou\u0103 pentru a afla mai multe despre acest model \u00een discu\u021bia noastr\u0103 cu <a href=\"https:\/\/www.longboardpharma.com\/\">Longboard Pharmaceuticals<\/a> care a aplicat acest model \u00een designul inovator al studiului de faz\u0103 2, care a inclus toate DEE. DEE-P Connections pledeaz\u0103 \u00een mod activ cu FDA pentru a sprijini mai mult companiile farmaceutice cu privire la acest model \u0219i salut\u0103m mai multe familii care s\u0103 ajute s\u0103 vorbeasc\u0103 despre necesitatea de a accelera tratamente \u00eembun\u0103t\u0103\u021bite pentru zecile de epilepsii rare.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Aceast\u0103 sesiune se desf\u0103\u0219oar\u0103 \u00een parteneriat cu <a href=\"https:\/\/www.rareepilepsynetwork.org\/\">Re\u021beaua de epilepsie rar\u0103<\/a>.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-fe48e5de wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button has-custom-font-size has-medium-font-size\"><a class=\"wp-block-button__link has-fl-topbar-bg-color has-fl-accent-hover-background-color has-text-color has-background has-link-color wp-element-button\" href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_aK2j-_ziT56kl0CCf1VbNQ\">\u00cenregistreaz\u0103-te aici<\/a><\/div>\n<\/div>\n\n\n\t<div  class=\"tribe-block tribe-block__events-link\" >\n\t\t<div class=\"tribe-events tribe-common\">\n\t\t\t<div class=\"tribe-events-c-subscribe-dropdown__container\">\n\t\t\t\t<div class=\"tribe-events-c-subscribe-dropdown\">\n\t\t\t\t\t<div class=\"tribe-common-c-btn-border tribe-events-c-subscribe-dropdown__button\">\n\t\t\t\t\t\t<svg\n\t class=\"tribe-common-c-svgicon tribe-common-c-svgicon--cal-export tribe-events-c-subscribe-dropdown__export-icon\" \taria-hidden=\"true\"\n\tviewbox=\"0 0 23 17\"\n\txmlns=\"http:\/\/www.w3.org\/2000\/svg\"\n>\n\t<path fill-rule=\"evenodd\" clip-rule=\"evenodd\" d=\"M.128.896V16.13c0 .211.145.383.323.383h15.354c.179 0 .323-.172.323-.383V.896c0-.212-.144-.383-.323-.383H.451C.273.513.128.684.128.896Zm16 6.742h-.901V4.679H1.009v10.729h14.218v-3.336h.901V7.638ZM1.01 1.614h14.218v2.058H1.009V1.614Z\" \/>\n\t<path 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class=\"tribe-events-c-subscribe-dropdown__content\">\n\t\t\t\t\t\t<ul class=\"tribe-events-c-subscribe-dropdown__list\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"tribe-events-c-subscribe-dropdown__list-item tribe-events-c-subscribe-dropdown__list-item--gcal\">\n\t\t\t\t\t\t\t\t\t<a\n\t\t\t\t\t\t\t\t\t\thref=\"https:\/\/www.google.com\/calendar\/event?action=TEMPLATE&#038;dates=20240429T153000\/20240429T160000&#038;text=Increasing%20Access%20to%20Clinical%20Trials%20and%20New%20Treatments%20Across%20the%20DEEs&#038;details=%3Cfigure+class%3D%22wp-block-image+size-full%22%3E%3Cimg+src%3D%22https%3A%2F%2Fdeepconnections.net%2Fwp-content%2Fuploads%2F2024%2F04%2FClinical-Trials.png%22+alt%3D%22%22+class%3D%22wp-image-5584%22%2F%3E%3C%2Ffigure%3E%3Cp%3EJoin+us+for+a+conversation+about+a+promising+model+of+clinical+trials+for+new+epilepsy+treatments+that+accelerate+access+to+the+wider+community+of+DEEs.%C2%A0The+%E2%80%9Cbasket+trial%E2%80%9D+design+is+used+in+clinical+trials+for+medicines+aiming+to+treat+symptoms+of+those+living+with+DEEs%2C+including+seizures.+This+broad+approach+is+different+than+the+current+standard+clinical+trial+design+singling+out+individual+disorders%2C+and+would+mean+increased+access+to+clinical+research+for+families+interested+in+participating.%C2%A0With+this+more+inclusive+model%2C%C2%A0treatments+approved+using+this+method+could+include+DEEs%C2%A0in+the+%22label%22+%28i.e.+approved+by+the+FDA+for+use%29%2C%C2%A0reducing%C2%A0the+need+for+families+to+have+to+argue+with+doctors+and+insurance+companies+for+the+use+of+drugs+off-label.+Join+us+to+learn+more+about+this+model+in+our+disc%3C%2Fp%3E+%28View+Full+eveniment+Description+Here%3A+https%3A%2F%2Fdeepconnections.net%2Fro_ro%2Fevent%2Fincreasing-access-to-clinical-trials-and-new-treatments-across-the-dees%2F%29&#038;trp=false&#038;ctz=America\/Los_Angeles&#038;sprop=website:https:\/\/deepconnections.net\/ro_ro\"\n\t\t\t\t\t\t\t\t\t\tclass=\"tribe-events-c-subscribe-dropdown__list-item-link\"\n\t\t\t\t\t\t\t\t\t\ttarget=\"_blank\"\n\t\t\t\t\t\t\t\t\t\trel=\"noopener 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Designul \u201eprob\u0103 co\u0219\u201d este folosit...<\/p>","protected":false},"author":4,"featured_media":0,"template":"","meta":{"_EventAllDay":false,"_EventTimezone":"America\/Los_Angeles","_EventStartDate":"2024-04-29 15:30:00","_EventEndDate":"2024-04-29 16:00:00","_EventStartDateUTC":"2024-04-29 22:30:00","_EventEndDateUTC":"2024-04-29 23:00:00","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"$","_EventCurrencyCode":"USD","_EventCurrencyPosition":"prefix","_EventDateTimeSeparator":" @ ","_EventTimeRangeSeparator":" - ","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-5578","tribe_events","type-tribe_events","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.4) - 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