{"id":2468,"date":"2020-11-13T15:39:56","date_gmt":"2020-11-13T23:39:56","guid":{"rendered":"http:\/\/wishesforelliott.flywheelsites.com\/?page_id=2468"},"modified":"2024-09-27T06:40:29","modified_gmt":"2024-09-27T13:40:29","slug":"sudep-old","status":"publish","type":"page","link":"https:\/\/deepconnections.net\/ug\/medical-2\/sudep-old\/","title":{"rendered":"SUDEP (old)"},"content":{"rendered":"<h1>\n\t\t\t\tRescue Medication\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Brain-Epilepsy-300x200.jpg\" alt=\"Seizures - Epilepsy\" itemprop=\"image\" height=\"200\" width=\"300\" title=\"\u0645\u06d0\u06ad\u06d5 \u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649\" onerror=\"this.style.display='none'\">\n\t<h1>\n\t\t\t\tWebinars\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Webinars.jpg\" alt=\"Webinars\" itemprop=\"image\" title=\"Webinars\" onerror=\"this.style.display='none'\">\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2021\/01\/26\/sudep-part-3\/\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 3 \u2013 Family Perspectives\"><meta itemprop=\"datePublished\" content=\"2021-01-26\"><meta itemprop=\"dateModified\" content=\"2022-06-22\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/1\/\"><meta itemprop=\"name\" content=\"Matt\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/01\/ef-sudep-inst-e1629146805584.png\"><meta itemprop=\"width\" content=\"277\"><meta itemprop=\"height\" content=\"182\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ug\/2021\/01\/26\/sudep-part-3\/\" title=\"\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649 (SUDEP) \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 3-\u0642\u0649\u0633\u0649\u0645 - \u0626\u0627\u0626\u0649\u0644\u06d5 \u0642\u0627\u0631\u0649\u0634\u0649\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/01\/ef-sudep-inst-e1629146805584.png\" alt=\"ef sudep inst\" itemprop=\"image\" data-no-lazy=\"1\" height=\"182\" width=\"277\" title=\"ef sudep inst\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649 (SUDEP) \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 3-\u0642\u0649\u0633\u0649\u0645 - \u0626\u0627\u0626\u0649\u0644\u06d5 \u0642\u0627\u0631\u0649\u0634\u0649\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2020\/10\/28\/sudep-part-2-what-can-we-do\/\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?\"><meta itemprop=\"datePublished\" content=\"2020-10-28\"><meta itemprop=\"dateModified\" content=\"2022-06-22\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\"><meta itemprop=\"name\" content=\"G C\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Encephalopathies.jpg\"><meta itemprop=\"width\" content=\"640\"><meta itemprop=\"height\" content=\"426\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ug\/2020\/10\/28\/sudep-part-2-what-can-we-do\/\" title=\"\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649 (SUDEP) \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 2-\u0642\u0649\u0633\u0649\u0645: \u0628\u0649\u0632 \u0646\u06d0\u0645\u06d5 \u0642\u0649\u0644\u0627\u0644\u0627\u064a\u0645\u0649\u0632\u061f\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/Encephalopathies.jpg\" alt=\"Developmental And Epileptic Encephalopathies\" itemprop=\"image\" data-no-lazy=\"1\" height=\"426\" width=\"640\" title=\"Encephalopathies\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649 (SUDEP) \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 2-\u0642\u0649\u0633\u0649\u0645: \u0628\u0649\u0632 \u0646\u06d0\u0645\u06d5 \u0642\u0649\u0644\u0627\u0644\u0627\u064a\u0645\u0649\u0632\u061f\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t<meta itemscope=\"\" itemprop=\"mainEntityOfPage\" itemtype=\"https:\/\/schema.org\/WebPage\" itemid=\"https:\/\/deepconnections.net\/2020\/10\/15\/sudep-part-1-what-do-we-know\/\" content=\"Sudden Unexpected Death in Epilepsy (SUDEP) Part 1: What do we know?\"><meta itemprop=\"datePublished\" content=\"2020-10-15\"><meta itemprop=\"dateModified\" content=\"2022-06-22\"><meta itemprop=\"name\" content=\"DEE-P Information Resource Center\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/author\/she55utwe3\/\"><meta itemprop=\"name\" content=\"G C\"><meta itemprop=\"url\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/10\/csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8.png\"><meta itemprop=\"width\" content=\"1200\"><meta itemprop=\"height\" content=\"500\"><meta itemprop=\"interactionType\" content=\"https:\/\/schema.org\/CommentAction\"><meta itemprop=\"userInteractionCount\" content=\"0\">\n\t\t\t\t\t<a href=\"https:\/\/deepconnections.net\/ug\/2020\/10\/15\/sudep-part-1-what-do-we-know\/\" title=\"\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649 (SUDEP) \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 1-\u0642\u0649\u0633\u0649\u0645: \u0628\u0649\u0632 \u0646\u06d0\u0645\u0649\u0646\u0649 \u0628\u0649\u0644\u0649\u0645\u0649\u0632\u061f\"><\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/10\/csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8-1024x427.png\" alt=\"csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8\" itemprop=\"image\" data-no-lazy=\"1\" height=\"427\" width=\"1024\" title=\"csr-bg-logo-405854b24f9957733fb175e2f19aa335ed564d89e41d192052cd0a0c1e60b8a8\" onerror=\"this.style.display='none'\">\n\t\t\t\t\t\t\t\t\t<h3 itemprop=\"headline\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649 (SUDEP) \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 1-\u0642\u0649\u0633\u0649\u0645: \u0628\u0649\u0632 \u0646\u06d0\u0645\u0649\u0646\u0649 \u0628\u0649\u0644\u0649\u0645\u0649\u0632\u061f\t\t\t\t\t\t\t\t\t\t\t<\/h3>\n\t\t<!-- .pp-content-posts -->\n\t<h1>\n\t\t\t\tPresentations\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Presentations.png\" alt=\"Presentation Materials\" itemprop=\"image\" title=\"Presentations\" onerror=\"this.style.display='none'\">\n\t\t\t\t<a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/02\/DEE-P-Lhatoo-SUDEP-Update.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/02\/Screen-Shot-2022-02-18-at-11.37.43-AM.png\" alt=\"Lhatoo - Update on SUDEP Research\" itemprop=\"image\" height=\"335\" width=\"548\" title=\"\u0626\u06d0\u0643\u0631\u0627\u0646 \u0643\u06c6\u0631\u06c8\u0646\u06c8\u0634\u0649 2022-02-18 \u062f\u06d5 11.37.43 \u062f\u06d5\" onerror=\"this.style.display='none'\">\n\t\t\t\t<\/a>\n\t\tLhatoo &#8211; Update on SUDEP Research\n\t\t\t\t<a href=\"\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/DEE-PSUDEPSeriesPart1slides.pdf\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/05\/SUDEP-pt-1.jpg\" alt=\"SUDEP pt 1\" itemprop=\"image\" height=\"438\" width=\"779\" title=\"SUDEP pt 1\" onerror=\"this.style.display='none'\">\n\t\t\t\t<\/a>\n\t<h1>\n\t\t\t\t\u0642\u0648\u0631\u0627\u0644 \u06cb\u06d5 \u0628\u0627\u064a\u0644\u0649\u0642\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Tools-2.png\" alt=\"online tools\" itemprop=\"image\" title=\"\u0642\u0648\u0631\u0627\u0644\u0644\u0627\u0631 2\" onerror=\"this.style.display='none'\">\n\t<p><a href=\"https:\/\/www.childneurologyfoundation.org\/programs\/sudep\/\" target=\"_blank\" rel=\"noopener\">\u0628\u0627\u0644\u0649\u0644\u0627\u0631 \u0646\u06d0\u0631\u06cb\u0627 \u0641\u0648\u0646\u062f\u0649<\/a><\/p>\n<p><a href=\"https:\/\/www.cureepilepsy.org\/signature_programs\/sudden-unexpected-death-in-epilepsy-sudep\/\" target=\"_blank\" rel=\"noopener\">Cure Epilepsy &#8211; Resources and Facts<\/a><\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/about-us\/our-programs\/about-sudep-institute\" target=\"_blank\" rel=\"noopener\">Epilepsy Foundation&#8217;s SUDEP Institute<\/a> &#8211; to prevent SUDEP and support people bereaved by SUDEP and other epilepsy-related deaths<\/p>\n<p><a href=\"https:\/\/www.dannydid.org\/\" target=\"_blank\" rel=\"noopener\">Danny Did Foundation<\/a> &#8211; resources on devices, prevention of SUDEP and advocacy<\/p>\n<p><a href=\"http:\/\/knowsudepnow.org\/\" target=\"_blank\" rel=\"noopener\">\u06be\u0627\u0632\u0649\u0631 SUDEP \u067e\u0627\u0626\u0627\u0644\u0649\u064a\u0649\u062a\u0649\u0646\u0649 \u0628\u0649\u0644\u0649\u06ad<\/a><\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/learn\/early-death-and-sudep\/sudep\/sudep-research-efforts\" target=\"_blank\" rel=\"noopener\">\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0641\u0648\u0646\u062f\u0649<\/a> &#8211; Information about SUDEP Research<\/p>\n<p><a href=\"http:\/\/sudepregistry.org\/\" target=\"_blank\" rel=\"noopener\">\u0634\u0649\u0645\u0627\u0644\u0649\u064a \u0626\u0627\u0645\u06d0\u0631\u0649\u0643\u0627 SUDEP \u062a\u0649\u0632\u0649\u0645\u0644\u0627\u0634 \u0626\u0648\u0631\u06af\u0649\u0646\u0649 (NASR)<\/a> &#8211; NASR collects DNA, brain, and other tissues for scientific studies about the causes of SUDEP<\/p>\n<p><a href=\"https:\/\/www.pameonline.org\/\" target=\"_blank\" rel=\"noopener\">\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642\u062a\u0649\u0643\u0649 \u0626\u06c6\u0644\u06c8\u0645\u06af\u06d5 \u0642\u0627\u0631\u0634\u0649 \u0634\u06d0\u0631\u0649\u0643\u0644\u06d5\u0631 (PAME)<\/a> &#8211; Improving Understanding of and Working to Prevent Epilepsy-related Mortality<\/p>\n<p><a href=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2023\/02\/Preventing_Epilepsy_Deaths_Informational_Handout.pdf\">\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649\u0646\u0649\u06ad \u0626\u0627\u0644\u062f\u0649\u0646\u0649 \u0626\u06d0\u0644\u0649\u0634 \u0642\u0648\u0631\u0627\u0644\u0644\u0649\u0631\u0649<\/a> &#8211; Child Neurology Foundation<\/p>\n<p><a href=\"https:\/\/www.aesnet.org\/clinical_resources\/sudep\" target=\"_blank\" rel=\"noopener\">SUDEP \u062f\u0649\u0643\u0649 AES \u0628\u0627\u064a\u0644\u0649\u0642\u0649\u0646\u0649\u06ad \u0645\u06c7\u0646\u062f\u06d5\u0631\u0649\u062c\u0649\u0633\u0649<\/a><\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/living-epilepsy\/our-programs\/about-sudep-institute\" target=\"_blank\" rel=\"noopener\">\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0641\u0648\u0646\u062f\u0649\u0646\u0649\u06ad \u0626\u0649\u0686\u0649\u062f\u0649\u0643\u0649 SUDEP \u0626\u0649\u0646\u0633\u062a\u0649\u062a\u06c7\u062a\u0649<\/a><\/p>\n<p><a href=\"https:\/\/www.youtube.com\/watch?v=fmghr97Ymrc&amp;feature=youtu.be\" target=\"_blank\" rel=\"noopener\">Let&#8217;s Talk About Sudden Infant Death in Epilepsy<\/a> &#8211; Online Discussion From Child Neurology Foundation<\/p>\n\t<h1>\n\t\t\t\t\u0645\u0627\u0642\u0627\u0644\u0649\u0644\u06d5\u0631\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2021\/04\/Articles.png\" alt=\"Articles\" itemprop=\"image\" title=\"\u0645\u0627\u0642\u0627\u0644\u0649\u0644\u06d5\u0631\" onerror=\"this.style.display='none'\">\n\t<p><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/35093831\/\">Counseling About Sudden Unexpected Death in Epilepsy (SUDEP): A Global Survey of Neurologists&#8217; Opinions; Epilepsy &amp; Behavior Journal<\/a><\/p>\n<p><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/31462384\/\">SUDEP: \u062f\u06c7\u0646\u064a\u0627\u06cb\u0649 \u0646\u06d5\u0632\u06d5\u0631 Epilepsy &amp; Behavior Journal<\/a><\/p>\n<p><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/34421404\/\">\u062a\u06c7\u062a\u0642\u0627\u0642\u0644\u0649\u0642 \u0643\u06d0\u0633\u0649\u0644\u0649\u062f\u06d5 \u062a\u06c7\u064a\u06c7\u0642\u0633\u0649\u0632 \u0643\u06c8\u062a\u06c8\u0644\u0645\u0649\u06af\u06d5\u0646 \u0626\u06c6\u0644\u06c8\u0645 (SUDEP): \u062e\u06d5\u062a\u06d5\u0631 \u0626\u0627\u0645\u0649\u0644\u0649 \u06cb\u06d5 \u0628\u0627\u0644\u0649\u0644\u0627\u0631\u063a\u0627 \u0626\u0627\u0631\u0649\u0644\u0649\u0634\u0649\u0634 \u0626\u06d0\u06be\u062a\u0649\u0645\u0627\u0644\u0644\u0649\u0642\u0649 \u0628\u0627\u0644\u0649\u0644\u0627\u0631 \u062f\u0648\u0631\u0649\u06af\u06d5\u0631\u0644\u0649\u0643\u0649 \u06cb\u06d5 \u062f\u0627\u06cb\u0627\u0644\u0627\u0634 \u0698\u06c7\u0631\u0646\u0649\u0644\u0649<\/a><\/p>\n<p>\u062a\u06d5\u0643\u0644\u0649\u067e \u0628\u06d5\u0631\u06af\u06d5\u0646 \u0645\u0627\u0642\u0627\u0644\u0649\u06ad\u0649\u0632 \u0628\u0648\u0644\u0633\u0627 \u060c <a href=\"https:\/\/deepconnections.net\/ug\/contact\/\" target=\"_blank\" rel=\"noopener\">\u0628\u0649\u0632 \u0628\u0649\u0644\u06d5\u0646 \u0626\u0627\u0644\u0627\u0642\u0649\u0644\u0649\u0634\u0649\u06ad<\/a>.<\/p>\n\t<h1>\n\t\t\t\t\u0642\u0648\u0644\u0644\u0649\u063a\u06c7\u0686\u0649\u0644\u0649\u0631\u0649\u0645\u0649\u0632 \u06cb\u06d5 \u062a\u06c6\u06be\u067e\u0649\u0643\u0627\u0631\u0644\u0649\u0631\u0649\u0645\u0649\u0632\u063a\u0627 \u0631\u06d5\u06be\u0645\u06d5\u062a\n\t\t\t<\/h1>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2020\/11\/neurocrine2.png\" alt=\"Neurocrine Biosciences Logo\" itemprop=\"image\" title=\"\u0646\u06d0\u0631\u06cb\u0627 \u06be\u06c8\u062c\u06d5\u064a\u0631\u0649\u0644\u0649\u0631\u0649\" onerror=\"this.style.display='none'\">\n\t<h1>\n\t\t\t\t\u0628\u0627\u064a\u0644\u0649\u0642 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(SUDEP) Part 2: What can we do? 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