{"id":5080,"date":"2023-05-30T15:24:39","date_gmt":"2023-05-30T22:24:39","guid":{"rendered":"https:\/\/deepconnections.net\/?p=5080"},"modified":"2024-05-09T20:51:16","modified_gmt":"2024-05-10T03:51:16","slug":"protecting-rare-access-to-off-label-treatments","status":"publish","type":"post","link":"https:\/\/deepconnections.net\/zh_tw\/2023\/05\/30\/protecting-rare-access-to-off-label-treatments\/","title":{"rendered":"\u4fdd\u8b77\u7f55\u898b\u7684\u6a19\u7c64\u5916\u6cbb\u7642"},"content":{"rendered":"<p>This webinar was recorded on May 22nd, 2023.<\/p>\n<p>Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not &#8220;medically necessary&#8221;?<\/p>\n<p>Is coverage denied because treatments that may work for you or your child are not on compendia &#8211; a compilation of evidence-based, off-label treatment options?<\/p>\n<p>Nearly half of chemotherapy drugs prescribed today are off-label but there is a broad list of drugs that are covered because there was Congressional action. Join forces with other rare disease patients and other families to learn\u00a0simple ways\u00a0YOU can encourage Congressional action to make sure insurers and other payers can no longer deny coverage of needed off-label treatments for rare and ultra-rare disorders.<\/p>\n\t<iframe title=\"DEE-P: Protecting Rare Access to Off-Label Treatments - How You Can Help\" width=\"500\" height=\"375\" src=\"https:\/\/www.youtube.com\/embed\/Ppx5a3LawEk?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\n\t<p>\u8981\u67e5\u627e\u66f4\u591a\u5c08\u70ba\u7f55\u898b\u7672\u7647\/DEE \u5bb6\u5ead\u91cf\u8eab\u5b9a\u5236\u7684\u8cc7\u6e90\uff0c\u8acb\u8a2a\u554f\u6211\u5011\u7684 <a href=\"https:\/\/deepconnections.net\/zh_tw\/resource-center-main\/\">\u8cc7\u6e90\u4e2d\u5fc3<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not &#8220;medically necessary&#8221;? Is coverage denied&hellip;<\/p>","protected":false},"author":4,"featured_media":4204,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"footnotes":""},"categories":[1148,1016,1024,1025],"tags":[1029,1026],"class_list":["post-5080","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dee-advocacy","category-medical","category-video","category-webinar","tag-video","tag-webinar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.1 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Protecting Rare Access to Off-Label Treatments<\/title>\n<meta name=\"description\" content=\"DEE-P Information Resource CenterLearn about ways to help advocate for access to off-label treatments for rare conditions\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deepconnections.net\/zh_tw\/2023\/05\/30\/protecting-rare-access-to-off-label-treatments\/\" \/>\n<meta property=\"og:locale\" content=\"zh_TW\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Protecting Rare Access to Off-Label Treatments\" \/>\n<meta property=\"og:description\" content=\"This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were\" \/>\n<meta property=\"og:url\" content=\"https:\/\/deepconnections.net\/zh_tw\/2023\/05\/30\/protecting-rare-access-to-off-label-treatments\/\" \/>\n<meta property=\"og:site_name\" content=\"DEE-P Information Resource Center\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/DEEPConnectionsEpilepsy\" \/>\n<meta property=\"article:published_time\" content=\"2023-05-30T22:24:39+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-05-10T03:51:16+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/deepconnections.net\/wp-content\/uploads\/2022\/02\/med-pic.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"295\" \/>\n\t<meta property=\"og:image:height\" content=\"171\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Gabi Conecker\" \/>\n<meta name=\"twitter:card\" 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