![Inchstone-Horiz-FullColor The Inchstone Project](https://deepconnections.net/wp-content/uploads/2023/12/Inchstone-Horiz-FullColor-1024x209.jpg)
STEERING COMMITTEE
Subject Matter Experts
![Madison M. Berl, Ph.D., A.B.P.P.; Director of Research, Division of Pediatric Neuropsychology; Pediatric Neuropsychologist, Comprehensive Pediatric Epilepsy Program, headshot](https://deepconnections.net/wp-content/uploads/2022/10/Madison-Berl.jpg)
Neuropsych
Children's National Hospital
Madison Berl, PhD, ABPP
![Robert Carson NEW](https://deepconnections.net/wp-content/uploads/2022/10/Robert-Carson-NEW.jpg)
Neuroscientist, Pediatric Neurology
Angelman
Outcome Development
Robert Carson, MD, PhD
![Scott Demarest](https://deepconnections.net/wp-content/uploads/2022/10/Scott-Demarest.jpg)
Pediatric Neurologist
Children's Hospital Colorado
Scott Demarest, MD
![Becky Hommer](https://deepconnections.net/wp-content/uploads/2022/10/Becky-Hommer.jpg)
TVI/CVI
Connections Beyond Sight and Sound
Rebecca Hommer, EdD
![Amanda-Luddeke (1)](https://deepconnections.net/wp-content/uploads/2022/10/Amanda-Luddeke-1.jpeg)
Speech Language Pathologist
Building Kid Steps
Amanda Luddeke, SLP
![Amanda-Moore](https://deepconnections.net/wp-content/uploads/2022/10/Amanda-Moore.jpeg)
REN Coordinating Committee
Amanda Moore
![Simon-Rogers](https://deepconnections.net/wp-content/uploads/2022/10/Simon-Rogers.jpeg)
Clinical Development
Strategist A Little Better, Co.
Simon Rogers
![Nicole-SirkotDolinsky](https://deepconnections.net/wp-content/uploads/2022/10/Nicole-SirkotDolinsky.jpeg)
Special Education Specialist
DC Public Schools
Nicole Sirkot-Delinsky
![WenHann-Tan](https://deepconnections.net/wp-content/uploads/2022/10/WenHann-Tan.jpeg)
Medical Geneticist
Boston Children's Hospital
Wen-Hann Tan, BMBS
![Christy Zigler](https://deepconnections.net/wp-content/uploads/2022/10/Christy-Zigler.jpg)
Psychometrician
Duke University
Principal Investigator ORCA Study
Christy Zigler, PhD, MSEd
Patient Advocacy Group Leaders
![Lisa Manaster](https://deepconnections.net/wp-content/uploads/2022/10/Lisa-Manaster.jpeg)
CACNA1A Foundation President
Lisa Manaster
![Karen Utley](https://deepconnections.net/wp-content/uploads/2022/10/Karen-Utley.jpg)
CDKL5 Foundation President and Co-Founder
Karen Utley
![Keith-McArthur-2 (1)](https://deepconnections.net/wp-content/uploads/2022/10/Keith-McArthur-2-1.jpeg)
CureGRIN CEO and Board Member
Keith McArthur
![Nuala Summerfield 2](https://deepconnections.net/wp-content/uploads/2022/10/Nuala-Summerfield-2.png)
Schinzel-Giedion Syndrome Foundation Founder and Chair of Trustees
Nuala Summerfield
![Leah-Schust](https://deepconnections.net/wp-content/uploads/2022/10/Leah-Schust.jpg)
Families SCN2A Foundation President, Founder, and Research Committee Chair
Leah Schust
![Screen Shot 2022-10-05 at 10.10.45 AM](https://deepconnections.net/wp-content/uploads/2022/10/Screen-Shot-2022-10-05-at-10.10.45-AM.png)
International SCN8A Alliance President and Co-Founder
Gabi Conecker, MPH
![Stephen-Pratt](https://deepconnections.net/wp-content/uploads/2022/10/Stephen-Pratt.jpeg)
WWOX Foundation Director and President