Help families get answers, trusted guidance, and a path forward.
We are parents helping parents
Families facing DEEs and other severe NDDs need trusted answers, reliable resources, and hope for what comes next. Alongside our 50 partner organizations, DEEP works to provide caregivers with the tools, education, and connections they seek.
Your gift helps advance DEEP’s mission to accelerate research, advance advocacy, and increase education related to DEEs and other severe NDDs.
Your donation also helps DEEP serve as a home for families without a formal diagnosis DEEP helps caregivers feel informed, connected, and less alone.
Your donation also helps DEEP serve as a home for families without a formal diagnosis DEEP helps caregivers feel informed, connected, and less alone.
Sustained Support
Monthly donors create a reliable foundation for families who need ongoing support. Your monthly gift helps DEEP:
- Empower and educate caregivers and clinicians
- Accelerate groundbreaking cross-DEE research
- Advocate for improved quality of life
Why Help?
Supporting
DEE Families
DEE-P Connections offers families a comprehensive online resource center and access to expert-led webinars, providing essential tools to navigate the challenges of rare & severe epilepsy. We are a free resource for all DEE families.
Uniting 45+
Rare Disease Groups
By partnering with over 45 rare disease organizations, DEE-P Connections has built a cohesive network that bridges knowledge gaps and ensures families benefit from our coordinated efforts.
Home for the Undiagnosed
DEE-P Connections is a home for families of children with severe, undiagnosed epilepsy, providing a supportive community, expert guidance, and a path toward answers and empowerment.
Research &
Abogacía
DEE-P Connections advances rare epilepsy care through groundbreaking research, legislative advocacy, scientific publications, and partnerships with 55+ research institutions, including impactful family-centered studies.
Industry Sponsorship
Looking to expand your impact? Become a sponsor of DEEP and have your company or organization featured alongside our other partners. Click here to learn more about sponsoring our life changing work.
We are a GuideStar Platinum Certified Charity
Learn how we’ve earned GuideStar’s highest rating Platinum—THREE CONSECUTIVE YEARS!
Tax Information:
DEE-P Connections is a 501(c)(3) tax-exempt organization (Federal Tax ID 47-1822559) and operates as a DBA of Decoding Developmental Epilepsies (formerly Wishes for Elliott). Your donation is 100% tax-deductible in accordance with U.S. law. Retain the email donation receipt for claiming a deduction on your U.S. taxes, which will be sent to you upon the successful completion of your donation.