This webinar was recorded on June 30th, 2023.

Join us for this discussion with rare caregivers about the challenges of self-care. People are fond of telling us we need to care for ourselves but that can often seem like a luxury when you are caring for a medically complex child. We will talk about ways that we both struggle with and have learned to care for ourselves and look forward to you sharing your thoughts, challenges and questions as well.

To find more resources tailored especially to rare epilepsy/DEE families, visit our Centro de Recursos.